Business Archives - Rare Patient Voice Helping Patients with Rare Diseases Voice Their Opinions Tue, 24 Feb 2026 15:09:12 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.3 https://rarepatientvoice.com/wp-content/uploads/2020/05/cropped-RPV-Logo_Also-Non-Rare_300dpi1-32x32.png Business Archives - Rare Patient Voice 32 32 Wes Michael Visits Skot Woldron’s Unlocked for Rare Disease Day 2026 https://rarepatientvoice.com/wes-michael-visits-skot-woldrons-unlocked-for-rare-disease-day-2026/ Tue, 24 Feb 2026 15:09:12 +0000 https://rarepatientvoice.com/?p=54769 With Rare Disease Day 2026 coming up later this week, Wes Michael recently discussed the power of the rare disease patient voice, the importance of trust, and RPV’s joining with ... READ MORE

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]]> Rare Patient Voice is Acquired by Konovo, a Technology-First Healthcare Intelligence Company https://rarepatientvoice.com/rare-patient-voice-is-acquired-by-konovo-a-technology-first-healthcare-intelligence-company/ Tue, 03 Feb 2026 14:30:19 +0000 https://rarepatientvoice.com/?p=54642 Konovo Achieves Significant Milestone in Connecting Patient and Healthcare Provider Insights with Rare Patient Voice Acquisition Rare Patient Voice’s 200,000+ registered patients and caregivers expand Konovo’s ability to deliver connected ... READ MORE

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]]> Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers https://rarepatientvoice.com/hear-how-rpv-was-created-to-connect-patients-caregivers-and-researchers/ Thu, 29 Jan 2026 16:30:31 +0000 https://rarepatientvoice.com/?p=54615 Rare Rebels™ is an ongoing effort to map the rare disease ecosystem through the people leading the charge, documenting how change happens and how connections across science, advocacy, infrastructure, and ... READ MORE

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]]> Join Us on 2.4 for a Discussion of AI Agents & Patient-Level Data – From Confirmation of Diagnosis to Insights https://rarepatientvoice.com/join-us-on-2-4-for-a-discussion-of-ai-agents-patient-level-data-from-confirmation-of-diagnosis-to-insights/ Fri, 23 Jan 2026 21:52:01 +0000 https://rarepatientvoice.com/?p=54585 In  AI Agents & Patient-Level Data from Confirmation of Diagnosis to Insights, a live webinar happening on Wednesday, February 4th, 11am ET, Rare Patient Voice President Wes Michael and Clinakos, Inc. ... READ MORE

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]]> A Look Back at RPV’s 2025 https://rarepatientvoice.com/a-look-back-at-rpvs-2025/ Mon, 05 Jan 2026 16:13:50 +0000 https://rarepatientvoice.com/?p=54398 2025 was an exciting year for us at Rare Patient Voice! In this video message, recorded in late December, RPV President and Founder Wes Michael looks back at 2025 and ... READ MORE

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