Laura Mullen, Author at Rare Patient Voice https://rarepatientvoice.com/author/lmullen/ Helping Patients with Rare Diseases Voice Their Opinions Tue, 24 Feb 2026 15:09:12 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.3 https://rarepatientvoice.com/wp-content/uploads/2020/05/cropped-RPV-Logo_Also-Non-Rare_300dpi1-32x32.png Laura Mullen, Author at Rare Patient Voice https://rarepatientvoice.com/author/lmullen/ 32 32 Wes Michael Visits Skot Woldron’s Unlocked for Rare Disease Day 2026 https://rarepatientvoice.com/wes-michael-visits-skot-woldrons-unlocked-for-rare-disease-day-2026/ Tue, 24 Feb 2026 15:09:12 +0000 https://rarepatientvoice.com/?p=54769 With Rare Disease Day 2026 coming up later this week, Wes Michael recently discussed the power of the rare disease patient voice, the importance of trust, and RPV’s joining with ... READ MORE

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]]> Black History Month Meets Rare Disease Day https://rarepatientvoice.com/black-history-month-meets-rare-disease-day/ Mon, 09 Feb 2026 15:34:16 +0000 https://rarepatientvoice.com/?p=54699 February is Black History Month, and in anticipation of Rare Disease Day on February 28, we are highlighting inventions and developments by African Americans that have provided support and improvements ... READ MORE

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]]> Rare Patient Voice is Acquired by Konovo, a Technology-First Healthcare Intelligence Company https://rarepatientvoice.com/rare-patient-voice-is-acquired-by-konovo-a-technology-first-healthcare-intelligence-company/ Tue, 03 Feb 2026 14:30:19 +0000 https://rarepatientvoice.com/?p=54642 Konovo Achieves Significant Milestone in Connecting Patient and Healthcare Provider Insights with Rare Patient Voice Acquisition Rare Patient Voice’s 200,000+ registered patients and caregivers expand Konovo’s ability to deliver connected ... READ MORE

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]]> Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers https://rarepatientvoice.com/hear-how-rpv-was-created-to-connect-patients-caregivers-and-researchers/ Thu, 29 Jan 2026 16:30:31 +0000 https://rarepatientvoice.com/?p=54615 Rare Rebels™ is an ongoing effort to map the rare disease ecosystem through the people leading the charge, documenting how change happens and how connections across science, advocacy, infrastructure, and ... READ MORE

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]]> Join Us on 2.4 for a Discussion of AI Agents & Patient-Level Data – From Confirmation of Diagnosis to Insights https://rarepatientvoice.com/join-us-on-2-4-for-a-discussion-of-ai-agents-patient-level-data-from-confirmation-of-diagnosis-to-insights/ Fri, 23 Jan 2026 21:52:01 +0000 https://rarepatientvoice.com/?p=54585 In  AI Agents & Patient-Level Data from Confirmation of Diagnosis to Insights, a live webinar happening on Wednesday, February 4th, 11am ET, Rare Patient Voice President Wes Michael and Clinakos, Inc. ... READ MORE

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