Media Mentions Archives - Rare Patient Voice Helping Patients with Rare Diseases Voice Their Opinions Tue, 11 Nov 2025 14:26:37 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.3 https://rarepatientvoice.com/wp-content/uploads/2020/05/cropped-RPV-Logo_Also-Non-Rare_300dpi1-32x32.png Media Mentions Archives - Rare Patient Voice 32 32 Lessons Learned on MR Fraud – New Article by Wes Michael in Greenbook https://rarepatientvoice.com/lessons-learned-on-mr-fraud-new-article-by-wes-michael-in-greenbok/ Mon, 10 Nov 2025 16:01:54 +0000 https://rarepatientvoice.com/?p=54285 Fraud in research is real and growing, but it doesn’t have to be overwhelming. With vigilance, thoughtful sourcing, and transparency, preserving  the integrity of our insights can be a reality. ... READ MORE

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]]> Read About Overcoming Challenges to Engaging Rare Patients in Clinical Research https://rarepatientvoice.com/read-about-overcoming-challenges-to-engaging-rare-patients-in-clinical-research/ Mon, 06 Oct 2025 15:02:21 +0000 https://rarepatientvoice.com/?p=54236 Clinical research is key to medical progress, providing the data necessary to develop new treatments, improve outcomes, and offer hope to patients. Nowhere is this hope more urgently needed than ... READ MORE

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]]> RPV’s Rare Caregiver Survey Featured in Rare Revolution Magazine https://rarepatientvoice.com/rpvs-rare-caregiver-survey-featured-in-rare-revolution-magazine/ Mon, 14 Oct 2024 16:08:01 +0000 https://rarepatientvoice.com/?p=53554 Earlier this year, Rare Patient Voice survey 735 caregivers of loved ones living with a rare disease on how their caring role has affected their lives.  The survey results then ... READ MORE

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]]> New on the Bookshelf: Reinventing Patient Centricity https://rarepatientvoice.com/new-on-the-bookshelf-reinventing-patient-centricity/ Thu, 27 Oct 2022 19:39:28 +0000 https://rarepatientvoice.com/?p=48137 Reinventing Patient Centricity: Bringing patient-led business models to life, by Sharon Suchotliff and Hensley Evans We hear a lot about patient centricity these days. A Google search on the term ... READ MORE

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]]> Rare Revolution Magazine Features Wes Michael in Rare Entrepreneur Spotlight https://rarepatientvoice.com/rare-revolution-magazine-features-wes-michael-in-rare-entrepreneur-spotlight/ Wed, 12 Oct 2022 14:57:59 +0000 https://rarepatientvoice.com/?p=47960 President and founder Wes Michael’s belief in the power of patient insights in improving treatment options, and ultimately lives, motivated him to found Rare Patient Voice in 2013. He discusses ... READ MORE

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