Wes Michael, Author at Rare Patient Voice https://rarepatientvoice.com/author/wesmichael/ Helping Patients with Rare Diseases Voice Their Opinions Mon, 24 Feb 2025 05:08:07 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.3 https://rarepatientvoice.com/wp-content/uploads/2020/05/cropped-RPV-Logo_Also-Non-Rare_300dpi1-32x32.png Wes Michael, Author at Rare Patient Voice https://rarepatientvoice.com/author/wesmichael/ 32 32 RPV Basics https://rarepatientvoice.com/rpv-basics/ Fri, 26 Feb 2021 21:21:55 +0000 https://rarepatientvoice.com/?p=35688 Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions ... READ MORE

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]]> How much detail to reveal in survey invitations? https://rarepatientvoice.com/how-much-detail-to-reveal-in-survey-invitations/ Fri, 26 Feb 2021 21:21:13 +0000 https://rarepatientvoice.com/?p=35686 As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour (typically). One of the biggest complaints that we get from our ... READ MORE

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]]> Is Telehealth Here to Stay? https://rarepatientvoice.com/is-telehealth-here-to-stay/ Thu, 18 Feb 2021 15:22:27 +0000 https://rarepatientvoice.com/?p=35250 Image credit: Unsplash We’re excited to share this post written by Ruth Claire James! The pandemic has been disruptive, but a silver lining that came out of it is how ... READ MORE

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]]> 2020 Year in Review https://rarepatientvoice.com/2020-year-in-review/ Mon, 15 Feb 2021 19:59:11 +0000 https://rarepatientvoice.com/?p=35085 2020 was a very difficult year for everyone. It affected us all personally. Some businesses were hit harder than others. How did your business do? I have a friend in ... READ MORE

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]]> Inspiration and Motivation https://rarepatientvoice.com/inspiration-and-motivation/ Mon, 15 Feb 2021 19:58:18 +0000 https://rarepatientvoice.com/?p=35083 People often ask me what inspired me and what motivated me to start up Rare Patient Voice. Turns out they were two very different things. Several things and people inspired ... READ MORE

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