rare disease Archives - Rare Patient Voice Helping Patients with Rare Diseases Voice Their Opinions Mon, 24 Feb 2025 04:48:50 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.3 https://rarepatientvoice.com/wp-content/uploads/2020/05/cropped-RPV-Logo_Also-Non-Rare_300dpi1-32x32.png rare disease Archives - Rare Patient Voice 32 32 A Rare Disease Day Message from RPV https://rarepatientvoice.com/a-rare-disease-day-message-from-rpv/ Mon, 28 Feb 2022 14:39:58 +0000 https://rarepatientvoice.com/?p=43459 #RareDiseaseDay is a time to raise awareness of the issues facing over 300 million people living with rare diseases worldwide. At Rare Patient Voice, we are committed to bringing the ... READ MORE

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]]> Rare Patient Voice Launches New “Sharing My Voice” Video Series https://rarepatientvoice.com/rare-patient-voice-launches-new-sharing-my-voice-video-series/ Thu, 21 Oct 2021 14:51:00 +0000 https://rarepatientvoice.com/?p=40386 Patients and caregivers are the leading experts on the diseases and conditions impacting their lives everyday. Researchers and companies are increasingly listening to the patient voice in developing products and ... READ MORE

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]]> Rare Patient Voice Finalist for 2021 Panel Company of the Year Award from Quirk’s https://rarepatientvoice.com/rare-patient-voice-finalist-for-2021-panel-company-of-the-year-award-from-quirks/ Mon, 13 Sep 2021 14:33:14 +0000 https://rarepatientvoice.com/?p=39250 Rare Patient Voice Named Panel Company of the Year Award Finalist by Quirk’s Winner to Be Announced During Marketing Research and Insight Excellence Awards Virtual Ceremony on November 9 TOWSON, ... READ MORE

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]]> Germany’s +3 Magazine Interviews Pam Cusick on the Patient Voice https://rarepatientvoice.com/germanys-3-magazine-interviews-pam-cusick-on-the-patient-voice/ Fri, 03 Sep 2021 17:01:54 +0000 https://rarepatientvoice.com/?p=39116 Rare disease affects over 300 million people around the world, making it a truly global health priority. Rare Patient Voice connects patients and caregivers in Germany, Spain, Italy, France, and ... READ MORE

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