patient story Archives - Rare Patient Voice Helping Patients with Rare Diseases Voice Their Opinions Fri, 02 Jun 2023 14:47:58 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.3 https://rarepatientvoice.com/wp-content/uploads/2020/05/cropped-RPV-Logo_Also-Non-Rare_300dpi1-32x32.png patient story Archives - Rare Patient Voice 32 32 Weekly Warriors: Meet Katie and Jolene https://rarepatientvoice.com/weekly-warriors-meet-katie-and-jolene/ Fri, 02 Jun 2023 14:47:58 +0000 https://rarepatientvoice.com/?p=52672 Mom Katie and daughter Jolene are our latest Weekly Warriors. Their moving story, initially shared on RPV’s TikTok account, has gone viral, with over 30k views on TikTok and Instagram ... READ MORE

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