Patient/Caregiver Panels

Rare Patient Voice recruits patients and family caregivers wherever they are, including disease-specific meetings and conferences, on social media, and through recommendations and word of mouth. They sign up with us to take part in online surveys, interviews, focus groups, and other research studies, and are excited to participate. Patients and caregivers know we keep their information private, and that they will get paid for their time. In addition to recruiting at in-person patient events, our Patient Advocacy Team is always busy developing relationships with referral partners, advocacy groups, and patient support networks throughout the world.

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Here are our current patient and caregiver counts by condition and country. If you do not see the information you are looking for, please contact requests@rarepatientvoice.com. Pricing can be found here; for specific pricing questions, please contact sales@rarepatientvoice.com.

United States Canada France Germany Italy Spain UK Australia New Zealand

United States


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	5	1	6
Achalasia	154	15	169
Acne	981	64	1045
Acoustic Neuroma (Vestibula Schwannoma)	42	7	49
Acromegaly	70	11	81
Adams-Oliver Syndrome (AOS)	3	2	5
Addiction	1813	201	2014
Addison's Disease (Adrenal insufficiency)	624	126	750
Adenomyosis	298	9	307
Adhesive Capsulitis (Frozen Shoulder)	73	11	84
Adrenal Cortical Carcinoma (ACC)	12	3	15
Agenesis of the Corpus Callosum (ACC)	29	78	107
Aicardi Syndrome	7	59	66
Alagille Syndrome (AS)	6	9	15
Albinism	55	15	70
Alice in Wonderland Syndrome (AWS)	8	1	9
Alkaptonuria	4	1	5
Allergies	3895	752	4647
Alopecia	424	208	632
Alpha 1 Antitrypsin Deficiency (A1AD)	203	36	239
Alpha-Mannosidosis	2	4	6
Alternating Hemiplegia of Childhood (AHC)	14	10	24
Alzheimer's Disease (AD)	167	2734	2901
Amniotic Band Syndrome	7	2	9
Amplified Musculoskeletal Pain Syndrome	89	22	111
Amputation	223	177	400
Amyloidosis	302	34	336
Amyotrophic Lateral Sclerosis (ALS)	193	167	360
Anal Cancer	83	10	93
Anemia	3588	353	3941
Aneurysm	121	42	163
Anhidrosis (Hypohydrosis)	15	3	18
Ankylosing Spondylitis (AS)	2306	201	2507
Anosmia (loss of smell)	30	4	34
Anoxic Brain Injury	16	40	56
Antiphospholipid Syndrome (APS)	249	24	273
Antisynthetase Syndrome	28	1	29
Anxiety	23194	2240	25434
Aortic Disease	190	79	269
Aphantasia	16	1	17
Aphasia	62	68	130
Aplastic Anemia (AA)	110	49	159
Appendix Cancer	25	6	31
Apraxia	18	106	124
Arachnoid Cyst	54	18	72
Arachnoiditis	572	82	654
Arteriovenous Malformation (AVM)	623	121	744
Arthrogryposis Multiplex Congenita (AMC)	57	42	99
Aspirin-like defect (ALD)	3	4	7
Asthma	8986	1618	10604
Ataxia	1071	236	1307
Atrial Fibrillation (AFIB)	772	260	1032
Atrophic Vaginitis	26	2	28
Attention Deficit Hyperactivity Disorder (ADHD	13934	2328	16262
Atypical Hemolytic Uremic Syndrome (aHUS)	147	37	184
Auditory Processing Disorder (APD)	174	46	220
Autism Spectrum Disorder (ASD)	2602	2847	5449
Autoimmune	9874	1397	11271
Autoimmune Encephalitis (AE)	45	29	74
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	3	1	4
Avascular Necrosis (AVN	347	46	393
Bardet Biedl Syndrome (BBS)	515	141	656
Barrett's Esophagus	227	22	249
Barth Syndrome (BTHS)	7	7	14
Bartonella	77	8	85
Batten Disease	362	71	433
Beckwith-Wiedemann Syndrome (BWS)	13	10	23
Behcet's Disease (BD)	226	20	246
Bell's Palsy	97	21	118
Benign Prostatic Hyperplasia (BPH	163	59	222
Beta Thalassemia (Cooley s Anemia)	117	34	151
Bile Acid Malabsorption (BAD)	57	2	59
Bile Duct Cancer (Cholangiocarcinoma)	136	52	188
Bipolar	6342	1003	7345
Bladder Cancer	181	72	253
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	5	2	7
Blood Cancer and or Cancer	1385	448	1833
Blood Clot	374	98	472
Blood Clotting Disorder	324	67	391
Blount's Disease	23	17	40
Bone Cancer	135	67	202
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	84	24	108
Borderline Personality Disorder (BPD)	1863	127	1990
Brain Aneurysm	151	53	204
Brain Cancer	120	135	255
Brain Damage	120	117	237
Brain Tumor	277	138	415
BRCA Mutation	105	7	112
Breast Cancer (BC)	2668	370	3038
Breast Cancer in Men	100	9	109
Breast Implant Illness	30	7	37
Bronchiectasis	691	179	870
Bronchitis	322	52	374
Bronchopulmonary Dysplasia (BPD)	7	35	42
Bulging Disc	584	60	644
Bursitis	260	16	276
Calcinosis	16	2	18
Calciphylaxis	18	4	22
Campomelic Dysplasia	10	2	12
Cancer	8128	3000	11128
Candidiasis (Yeast Infection)	202	21	223
Capillary Lymphatic Venous Malformations (CLVMs)	3	3	6
Carcinoma	190	41	231
Cardiofaciocutaneous Syndrome (CFC syndrome)	11	14	25
Carnitine Deficiency	16	11	27
Caroli Disease	134	9	143
Carpal Tunnel Syndrome (CTS)	1022	136	1158
Castleman Disease (CD)	18	7	25
Catheter	290	129	419
Cauda Equina Syndrome	32	4	36
Celiac Disease (CCD)	1574	219	1793
Cellulitis	89	21	110
Central Pain Syndrome (CPS)	54	3	57
Cerebellar Atrophy	8	9	17
Cerebral Amyloid Angiopathy	2	6	8
Cerebral Cavernous Malformations (CCMs)	29	8	37
Cerebral Palsy (CP)	371	956	1327
Cervical Cancer	239	35	274
Cervical Dystonia	170	22	192
Charge Syndrome	159	26	185
Chiari Malformation (CM)	627	145	772
Chilblains (Pernio)	29	1	30
Chronic cough	80	13	93
Chronic Fatigue Syndrome (CFS	2297	189	2486
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	594	86	680
Chronic Intestinal Pseudo-obstruction (CIPO)	63	16	79
Chronic obstructive pulmonary disease (COPD)	1983	1196	3179
Chronic Pain	5283	615	5898
Chronic Venous Insufficiency (CVI)	194	47	241
Cleft	66	57	123
Clostridium difficile (C Diff)	147	39	186
Clubfoot	60	54	114
Cluster Headache	370	51	421
Coffin-Lowry Syndrome (CLS)	6	0	6
Cognitive Impairment (CI)	182	185	367
Colon Polyps	138	15	153
Colonic Inertia	80	6	86
Color Blind	38	31	69
Colorectal (Colon) Cancer	318	165	483
Complex Regional Pain Syndrome (CRPS	693	73	766
Congenital Adrenal Hyperplasia (CAH)	97	109	206
Congenital Central Hypoventilation Syndrome (CCHS)	49	18	67
Congenital Fibrinogen Deficiency (CFD)	69	17	86
Congenital Myopathy	34	15	49
Congenital Sucrase-Isomaltase Deficiency (CSID)	138	36	174
Constipation	742	184	926
Conversion Disorder (CD)	49	14	63
Coronavirus (COVID-19)	905	87	992
Cortical Dysplasia	9	18	27
Costochondritis	178	7	185
Cowden Syndrome (CS)	14	4	18
Craniocervical Instability (CCI)	246	15	261
Craniosynostosis	28	32	60
Crohn's Disease (CD)	2402	404	2806
Cushing's Syndrome (Hypercortisolism)	368	65	433
Cyclic Vomiting Syndrome (CVS)	335	119	454
Cystic Fibrosis (CF)	862	827	1689
Cystic Hygroma	10	3	13
Cystinosis	9	2	11
Cytomegalovirus (CMV)	43	26	69
Dandy Walker Syndrome (DWS)	171	42	213
Danon Disease	22	14	36
Darier Disease (DD Keratosis Follicularis)	3	1	4
Deep Vein Thrombosis (DVT)	327	71	398
Degenerative Disc Disease (DDD)	3946	413	4359
Deletion Duplication Syndrome	44	332	376
Delta-Storage Pool Deficiency	12	7	19
Depression	22440	2079	24519
Dercum's Disease (adiposis dolorosa)	587	244	831
Dermatomyositis (DM)	196	33	229
Desmoid Tumor	64	8	72
Developmental Delay (DD)	101	721	822
Diabetes (DM)	10115	4407	14522
Disabled	171	104	275
Disruptive Mood Dysregulation Disorder (DMDD)	59	64	123
Dissociative Identity Disorder (DID	370	40	410
Diverticulitis	520	93	613
Down Syndrome (DS)	12	300	312
Dry Mouth	157	9	166
Duodenitis	17	0	17
Dupuytren's Contracture	365	19	384
Dwarfism	94	113	207
Dysarthria (Slurred Speech)	49	28	77
Dysautonomia	4528	321	4849
Dyskeratosis Congenita	4	3	7
Dyslexia	317	94	411
Dysmenorrhea (Painful Menstruation)	445	22	467
Dysphagia (Difficulty Swallowing)	293	156	449
Dystonia	351	124	475
Ear Cancer	5	5	10
Eating Disorder	1205	133	1338
Eczema (Atopic Dermatitis)	2716	414	3130
Edema	263	68	331
Ehlers-Danlos Syndrome (EDS)	3966	355	4321
Elephantiasis (Lymphatic Filariasis)	6	3	9
Empty Sella Syndrome (ESS)	47	3	50
Encephalitis	32	24	56
Encephalocele	4	4	8
Endometrial Cancer	181	19	200
Endometriosis	2749	136	2885
Enlarged Spleen (Splenomegaly)	49	5	54
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	28	11	39
Eosinophilic Esophagitis (EOE)	592	304	896
Eosinophilic Gasteroenteritis (EG)	193	194	387
Epicondylitis (Tennis Elbow)	62	2	64
Epidermolysis Bullosa (EB)	33	11	44
Epilepsy	2140	2703	4843
Epithelial Basement Membrane Dystrophy	17	2	19
Epstein Barr Syndrome (EBV)	287	14	301
Erb's Palsy	8	4	12
Erectile Dysfunction (ED)	215	28	243
Erythema Nodosum	22	1	23
Erythromelalgia	76	6	82
Esophageal Atresia (EA)	5	22	27
Esophageal Cancer	29	48	77
Esophageal Varices	45	6	51
Essential Thrombocythemia	58	5	63
Essential Tremor	320	49	369
Ewing's Sarcoma	36	10	46
Exocrine Pancreatic Insufficiency (EPI)	163	32	195
Eye Cancer	23	19	42
Fabry disease	242	52	294
Factor V Leiden	48	3	51
Failure to Thrive (FTT)	29	82	111
Familial Adenomatous Polyposis (FAP)	53	15	68
Familial Chylomicronemia Syndrome (FCS)	15	1	16
Familial Hypercholesterolemia (FH)	105	17	122
Familial Mediterranean Fever (FMF)	18	4	22
Fatty Oxidation Disorder (FAOD)	27	70	97
Feeding Tube	474	630	1104
Fetal Alcohol Syndrome (FAS)	437	55	492
Fibrocystic Breasts	224	13	237
Fibrodysplasia Ossificans Progressiva (FOP)	12	13	25
Fibromatosis	11	0	11
Fibromuscular Dysplasia (FMD)	72	11	83
Fibromyalgia (FM)	6820	511	7331
Fibrosing Mediastinitis	15	3	18
Fibrous Dysplasia	62	3	65
Fistula	108	21	129
Foot Drop	156	23	179
FOXG1 Syndrome	1	43	44
Fragile X Syndrome (FXS)	69	76	145
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	14	11	25
Friedreich's Ataxia (FA)	315	59	374
Functional Neurological Disorder (FND)	276	40	316
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	32	6	38
Galactosemia	4	5	9
Gall Stones	293	24	317
Ganglioneuroblastoma	8	5	13
Gastric Bypass	255	27	282
Gastric Dysmotility	382	47	429
Gastritis	745	65	810
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	3	2	5
Gastroesophageal Reflux Disease (GERD)	4801	641	5442
Gastrointestinal Stromal Tumor (GIST)	46	13	59
Gastroparesis (GP)	2074	253	2327
Gastroschisis	22	18	40
Gaucher Disease (GD)	104	31	135
Gender Dysphoria	334	9	343
Giant Cell Arteritis (GCA)	27	3	30
Glucose Transporter Deficiency (GLUT1DS)	7	5	12
Gluten Intolerance	274	13	287
Glycogen Storage Disease (GSD)	98	19	117
Goiter	107	8	115
Goldenhar Syndrome	13	10	23
Gout	462	147	609
Graft Versus Host Disease (GVHD)	103	22	125
Granular Cell Tumors	66	6	72
Granuloma Annulare (GA)	60	3	63
Grave's Disease (GD)	764	56	820
Guillain-Barre Syndrome (GBS)	198	43	241
Hansen's Disease (Leprosy)	6	3	9
Hashimoto's Disease (HT)	2789	277	3066
Head and Neck Cancer	75	30	105
Headache	1060	117	1177
Hearing Aid	365	234	599
Hearing Loss	1122	516	1638
Heart Disease	4570	2299	6869
HELLP Syndrome	18	1	19
Hemangioma	70	62	132
Hemihyperplasia	5	7	12
Hemochromatosis (Iron Overload)	235	41	276
Hemolytic Disease of the Fetus and Newborn (HDFN)	16	5	21
Hemophilia	1023	1092	2115
Hemorrhoids	240	21	261
Hepatitis	1074	164	1238
Hereditary alpha-tryptasemia (H?T)	55	7	62
Hereditary Angioedema (HAE)	127	25	152
Hereditary hemorrhagic telangiectasia (HHT)	92	12	104
Hereditary Spastic Paraparesis (HSP)	123	24	147
Hereditary Spastic Paraplegia (HSP)	91	32	123
Hernia	921	109	1030
Herpes (HSV)	1331	197	1528
Hidradenitis Suppurativa (HS)	3804	151	3955
High Blood Pressure (Hypertension	10392	2558	12950
High Cholesterol (Hyperlipidemia)	4565	1058	5623
Hip Dysplasia	274	85	359
Hip Replacement	241	76	317
Hirschsprung's Disease (HD	38	91	129
Hirsutism	98	3	101
HIV	1547	215	1762
Hodgkins Lymphoma	169	23	192
Holoprosencephaly (HPE)	21	13	34
Homocystinuria (HCU)	8	9	17
Horner Syndrome	27	2	29
Human Growth Hormone Deficiency (GHD)	189	361	550
Human Papillomavirus (Human Papillomavirus (HPV)	348	21	369
Huntington's Disease (HD)	223	289	512
Hydrocephalus	178	279	457
Hyper-IgA Syndrome	8	1	9
Hyperaldosteronism	28	0	28
Hyperemesis Gravidarum (HG	112	8	120
Hypereosinophilic Syndrome (HES)	56	5	61
Hyperhidrosis	279	15	294
Hyperkalemia	80	8	88
Hypermobility Syndrome	1059	70	1129
Hyperoxaluria	3	0	3
Hyperparathyroidism	283	36	319
Hypersomnia	476	24	500
Hyperthyroidism	541	57	598
Hypocalcemia	58	8	66
Hypoglycemia (Low Blood Sugar)	709	95	804
Hypogonadism (Low Testosterone)	29	6	35
Hypohidrotic Ectodermal Dysplasia (HED)	18	6	24
Hypokalemia	434	54	488
Hypokalemic Periodic Paralysis	42	17	59
Hyponatremia	39	11	50
Hypoparathyroidism	264	59	323
Hypophosphatasia (HPP)	69	8	77
Hypoplasia of the Corpus Callosum	6	42	48
Hypothyroidism	4722	506	5228
Hypotonia	58	260	318
Hypoxic Ischemic Encephalopathy (HIE)	12	74	86
Hysterectomy	539	28	567
Ichthyosis	24	7	31
Idiopathic Short Stature	9	7	16
IgG 4 related disease (IgG4-RD)	64	6	70
Immune Thrombocytopenic Purpura (ITP)	260	44	304
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	25	7	32
Incontinence	607	233	840
Incontinentia Pigmenti (IP)	62	16	78
Infertility	343	13	356
Insomnia	2457	218	2675
Intellectual Disability	45	366	411
Intermittent Explosive Disorder (IED)	41	26	67
Interstitial Cystitis (IC)	740	31	771
Interstitial Lung Disease (ILD)	301	44	345
Intracranial Hemorrhage (Brain Bleeds)	45	45	90
Intracranial Hypertension (IH	817	58	875
intracranial Pressure (ICP)	29	4	33
Iritis	77	13	90
Irritable Bowel Syndrome (IBS)	4450	356	4806
Ischemic Colitis	20	6	26
Jansen's Metaphyseal Chondrodysplasia	3	2	5
Juvenile Arthritis (JA)	331	202	533
Kabuki Syndrome	2	8	10
Kaposi Sarcoma (KS)	40	13	53
Kawasaki Disease	20	11	31
Keratosis Pilaris (follicular keratosis)	148	10	158
Kidney Disease	2766	1142	3908
Klinefelter Syndrome (XXY Syndrome)	29	6	35
Klippel-Feil Syndrome (KFS)	29	11	40
Klippel-Trenaunay Syndrome (KTS)	39	6	45
Knee Replacement	257	97	354
Lactose Intolerance	304	48	352
Lamb-Shaffer Syndrome	12	4	16
Lambert-Eaton myasthenic syndrome (LEMS)	35	7	42
Landau Kleffner Syndrome (LKS)	3	6	9
Langerhans Cell Histiocytosis (LCH)	18	14	32
Larsen syndrome	41	5	46
Laryngeal Cancer	15	3	18
Laryngomalacia	5	43	48
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	5	15	20
Learning Disability	216	175	391
Legg-Calve-Perthes Disease (LCPD)	17	20	37
Leiomyosarcoma	15	3	18
LEOPARD Syndrome	17	1	18
Leukemia	524	233	757
Leukocytosis	46	4	50
Leukodystrophy	32	45	77
Leukopenia	30	7	37
Lichen Planus	132	8	140
Lichen Sclerosus (LS)	188	14	202
Lipedema	198	45	243
Lipodystrophy	11	3	14
Liposarcoma	54	21	75
Lissencephaly	0	40	40
Livedo Reticularis (LR)	38	1	39
Liver Cancer	105	124	229
Liver Disease (not hepatitis)	1690	400	2090
Loeys Dietz Syndrome	13	5	18
Loin Pain Hematuria Syndrome (LPHS)	56	6	62
Loss of Mobility	129	107	236
Low Blood Pressure (Hypotension)	862	85	947
Low Testosterone	154	16	170
Lung Cancer	623	434	1057
Lung Disease	433	290	723
Lupus	3870	400	4270
Lyme Disease	665	68	733
Lymphatic Malformation (LM)	6	5	11
Lymphedema	456	78	534
Lymphocytic Colitis	77	22	99
Lymphoma	167	68	235
Lymphoproliferative Disease (LPD)	38	12	50
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	56	9	65
Macular Degeneration	306	121	427
Macular Telangiectasia (MacTel)	14	6	20
Mal de debarquement Syndrome (MdDS)	11	1	12
Malabsorption	113	13	126
Malignant Hyperthermia (MH)	15	7	22
Maple Syrup Urine Disease (MSUD)	102	20	122
Marfan Syndrome (MFS)	61	12	73
Mastocytosis (Mast Cell Activating Disease	1615	113	1728
May Thurner Syndrome	128	7	135
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	13	1	14
McCune-Albright Syndrome (MAS)	10	9	19
Median arcuate ligament syndrome (MALS)	221	8	229
Memory Loss	263	236	499
Meniere's Disease (MD)	735	49	784
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	580	29	609
Menorrhagia (Heavy Menstrual Bleeding	331	16	347
Mental Illness	504	187	691
Mesothelioma	11	11	22
Metabolic Syndrome	122	26	148
Metatarsalgia	11	0	11
Methicillin-Resistant Staphylococcus Aureus (MRSA)	138	21	159
Microcephaly	13	112	125
Microscopic Colitis	90	4	94
Microtia	9	26	35
Migraine	8715	672	9387
Misophonia	50	3	53
Mitochondrial Disease	150	115	265
Mixed Connective Tissue Disease (MCTD)	453	29	482
Moebius Syndrome	52	31	83
Monoclonal gammopathy of undetermined significance (MGUS)	97	10	107
Mood Disorder	362	93	455
Morgellons Disease (MD)	20	3	23
Moyamoya Disease	30	14	44
MTHFR	664	91	755
Mucopolysaccharidoses (MPS)	11	48	59
Multiple Endocrine Neoplasia (MEN)	20	7	27
Multiple Myeloma (MM)	367	122	489
Multiple Sclerosis (MS)	6729	977	7706
Multiple System Atrophy (MSA)	92	24	116
Muscle Spasms	332	44	376
Muscle Tension Dysphonia (MTD)	23	3	26
Muscular Dystrophy (MD)	517	611	1128
Myasthenia Gravis (MG)	1200	159	1359
Mycobacterium Avium Complex (MAC)	139	0	139
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	58	14	72
Myelodysplastic syndrome (MDS)	215	30	245
Myelofibrosis	70	16	86
Myeloproliferative Neoplasms	104	10	114
Myopathy	117	30	147
Myositis	144	14	158
Narcolepsy	1318	101	1419
Nasal Polyps	164	20	184
Nasopharyngeal Carcinoma (NPC)	3	1	4
Neck Cancer	16	13	29
Neck Surgery	95	20	115
Netherton Syndrome (NS)	64	13	77
Neuralgia	667	49	716
Neuroblastoma	18	39	57
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	121	26	147
Neurofibromatosis (NF)	154	80	234
Neurogenic Bladder	521	138	659
Neurogenic Bowel	79	33	112
Neuromyelitis optica (NMO)	344	65	409
Neuropathy	3625	458	4083
Neurotrophic Keratitis	24	18	42
Neutropenia	234	61	295
Niemann-Pick Disease	43	8	51
Non-Hodgkin's Lymphoma (NHL)	344	79	423
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	213	7	220
Nonspecific Interstitial Pneumonia (NSIP)	21	1	22
Nontuberculous Mycobacterial (NTM)	317	151	468
Noonan Syndrome (NS)	188	45	233
Obesity	3266	327	3593
Obsessive Compulsive Disorder (OCD)	2777	331	3108
Oppositional Defiant Disorder (ODD)	151	239	390
Oral Cancer	19	18	37
Organ Transplant	827	250	1077
Organic Acidemia (OA)	13	51	64
Osteoarthritis (OA)	5107	721	5828
Osteogenesis Imperfecta (OI)	118	44	162
Osteomyelitis (OM)	155	44	199
Osteopenia	579	67	646
Osteoporosis	1153	263	1416
Ostomy	320	89	409
Other	1282	305	1587
Ovarian Cancer	390	86	476
Ovarian Cyst	571	25	596
Overactive Bladder (OAB)	515	62	577
Paget's	25	10	35
Palmoplantar Pustulosis	24	1	25
Pancreatic Cancer	80	92	172
Pancreatitis	407	96	503
Paraganglioma	46	4	50
Paralysis	441	367	808
Paraneoplastic Syndrome	8	8	16
Parkinson's Disease (PD)	626	630	1256
Paroxysmal Nocturnal Hemoglobinuria (PNH)	204	48	252
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	74	93	167
Pelvic Congestion Syndrome (PCS)	98	6	104
Pelvic Floor Dysfunction	433	11	444
Pelvic Inflammatory Disease (PID)	58	5	63
Pemphigus / Pemphigoid	212	23	235
Pendred Syndrome	7	1	8
Periodic Limb Movement Disorder (PLMD)	76	17	93
Periodontitis (Gum Disease)	211	19	230
Perivascular Epithelioid Cell Tumour (PEComas)	3	3	6
Periventricular Leukomalacia (PVL)	4	28	32
Persistent Genital Arousal Disorder	9	0	9
Personality Disorder	180	25	205
Peyronie's Disease (Penile Fibrosis)	53	4	57
Pfeiffer Syndrome	10	6	16
Phenylketonuria (PKU)	76	187	263
Pheochromocytoma (PCC)	53	4	57
Pierre Robin Sequence (PRS)	5	21	26
Pituitary Tumor	252	26	278
Plagiocephaly (Flat Head Syndrome)	2	6	8
Plantar Fasciitis (PF)	711	36	747
Pneumonia	199	56	255
Poland Syndrome	14	5	19
Polio	20	20	40
Polychondritis	68	7	75
Polycystic Ovarian Syndrome (PCOS)	3623	162	3785
Polycythemia Vera (PV)	161	12	173
Polymicrogyria (PMG)	5	32	37
Polymyalgia Rheumatica (PMR)	76	9	85
Polymyositis (PM)	678	59	737
Pompe Disease	33	35	68
Popliteal Artery Entrapment Syndrome (PAES)	8	1	9
Porphyria	94	8	102
Post-Polio Syndrome (PPS)	39	14	53
Posttraumatic Stress Disorder (PTSD)	9808	980	10788
Pre-exposure Prophylaxis (PrEP)	35	5	40
Precocious Puberty	9	20	29
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	100	4	104
Premenstrual Dysphoric Disorder (PMDD)	799	20	819
Primary Ciliary Dyskinesia (PCD)	12	11	23
Primary Hyperoxaluria (PH)	9	12	21
Primary Immunodeficiency (PIDD)	790	183	973
Primary Peritoneal	26	2	28
Progressive Multifocal Leukoencephalopathy (PML)	19	7	26
Progressive Supranuclear Palsy (PSP)	94	28	122
Prolactinoma	69	0	69
Prostate Cancer	356	249	605
Protein Deficiency	36	9	45
Proteinuria (Protein in Urine)	37	7	44
Prurigo Nodularis (PN)	53	5	58
Pseudobulbar Affect (PBA)	24	4	28
Psoriasis (PsO)	2056	206	2262
Psoriatic Arthritis (PsA)	1279	138	1417
Ptosis (Drooping eye	47	14	61
Pulmonary Arterial Hypertension (PAH)	1389	270	1659
Pulmonary Embolism (PE)	327	44	371
Pulmonary Fibrosis (PF)	331	70	401
Pyloric Stenosis (Gastric Outlet Obstruction)	45	13	58
Pyoderma Gangrenosum (PG)	49	4	53
Pyruvate Kinase Deficiency (PKD)	14	6	20
Raynaud's Syndrome	2029	151	2180
Rectal Cancer (CRC)	71	30	101
Rectocele	64	3	67
Recurrent Respiratory Papillomatosis (RRP)	3	1	4
Renal Cell Carcinoma (Kidney Cancer	197	100	297
Respiratory Disease	8555	2726	11281
Respiratory Syncytial Virus (RSV) Infection	211	153	364
Restless Leg Syndrome (RLS)	997	132	1129
Retroperitoneal Fibrosis	13	3	16
Rheumatoid Arthritis (RA)	5180	791	5971
Rickets (Osteomalacia)	17	4	21
Rocky Mountain Spotted Fever (RMSF)	22	3	25
Rosacea	369	17	386
Rubella- German Measles	7	1	8
Sacroiliac Joint Disease (SI)	181	8	189
Sarcoidosis	302	43	345
Sarcoma	117	30	147
Sarcopenia	3	2	5
Schamberg's Disease	8	0	8
Scheuermann's Kyphosis	65	14	79
Schinzel-Giedion Syndrome (SGS)	68	27	95
Schizencephaly	53	26	79
Schizophrenia	1044	505	1549
Sciatica	988	96	1084
Scleroderma	620	88	708
Sclerosing Peritonitis (SP)	5	2	7
Scoliosis	1922	361	2283
Secondary Adrenal insufficiency	247	43	290
Secondary Immune Deficiency (SID)	522	192	714
Sensory Processing Disorder (SPD)	295	328	623
Sepsis	190	33	223
Sexually Transmitted Disease (STD)	74	8	82
Shaken Baby Syndrome (SBS)	41	43	84
Shingles (Herpes Zoster)	246	47	293
Short Bowel Syndrome (SBS	244	59	303
Shoulder Replacement	45	9	54
Sickle Cell Disease (SCD)	1288	592	1880
Sickle Cell Trait (SCT)	175	41	216
Sinusitis	654	84	738
Sjogren's Syndrome (SjS	1605	101	1706
Skin Cancer	677	163	840
Sleep Apnea (OSA)	3003	510	3513
Sleep Disorder	792	122	914
Small for Gestational Age SGA)	5	30	35
Small Intestinal Bacterial Overgrowth (SIBO)	297	27	324
Smith-Lemli-Opitz Syndrome (SLOS)	1	4	5
Sotos Syndrome	5	9	14
Spasmodic Dysphonia	33	2	35
Spastic Diplegia	23	20	43
Spasticity	109	80	189
Speech Impairment	81	196	277
Spherocytosis	43	10	53
Sphincter of Oddi Dysfunction	36	3	39
Spina Bifida (SB)	265	218	483
Spinal Cancer	23	20	43
Spinal Cord	2037	354	2391
Spinal Muscular Atrophy (SMA)	385	465	850
Sprengel Deformity	6	3	9
Stickler Syndrome	39	9	48
Stiff Person Syndrome (SPS)	112	10	122
Stomach (Gastric) Cancer	50	69	119
Stomach Ulcer	369	63	432
Stroke	840	982	1822
Subcortical Band Heterotopia	5	5	10
Subglottic Stenosis (SGS)	58	18	76
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	161	9	170
Syncope	412	33	445
Synesthesia	22	1	23
Syringomyelia	197	25	222
Tardive Dyskinesia (TD)	111	19	130
Tarlov Cysts	62	3	65
Tay Sachs (TSD)	20	16	36
Temporomandibular joint (TMJ)	931	46	977
Tendonitis	411	18	429
Tenosynovial Giant Cell Tumor (TGCT)	7	2	9
Testicular Cancer	55	12	67
Thalassemia	116	24	140
Thoracic Outlet Syndrome (TOS)	198	10	208
Throat Cancer	33	40	73
Thrombocytopenia (TCP)	102	24	126
Thrombotic Thrombocytopenic Purpura (TTP)	22	3	25
Thyroid Cancer	508	61	569
Thyroid Eye Disease (TED)	231	35	266
Thyroid Nodule	349	28	377
Thyroidectomy	330	25	355
Tics	73	17	90
Tongue Cancer	15	6	21
Tooth Agenesis (Anodontia)	9	3	12
Torticollis (Wry Neck)	19	13	32
Tourette Syndrome (TS)	186	92	278
Townes-Brocks Syndrome	3	1	4
Toxic Synovitis	4	1	5
Tracheobronchomalacia (TBM)	15	11	26
Tracheomalacia	9	32	41
Transient Global Amnesia (TGA)	18	11	29
Traumatic Brain Injury (TBI)	812	332	1144
Treacher Collins syndrome (TCS)	3	5	8
Trichotillomania (TTM)	187	17	204
Trigger Finger (Stenosing Tenosynovitis)	99	11	110
Trisomy 13 (Patau Syndrome)	5	4	9
Trisomy 18 (Edwards Syndrome)	19	9	28
Trisomy X (XXX)	14	13	27
Tuberculosis	44	9	53
Ulcerative Colitis (UC)	1504	221	1725
Undifferentiated Connective Tissue Disease (UCTD)	311	17	328
Urea Cycle Disorder (UCD)	46	22	68
Urethral Prolapse	32	2	34
Urinary Tract Infection (UTI)	646	98	744
Urticaria (Hives)	924	52	976
Usher Syndrome	23	7	30
Uterine Cancer	81	28	109
Uterine Fibroids	684	33	717
Uterine Leiomyosarcoma	12	2	14
Uterine Polyps	71	4	75
Uveitis	159	22	181
VACTERL Syndrome	15	10	25
Vaginismus	66	3	69
Valosin Containing Protein (VCP)	24	6	30
Varicose Veins	174	23	197
Vasculitis	256	28	284
Velopharyngeal Insufficiency (VPI)	3	1	4
Vertebral Artery Dissection (VAD)	175	52	227
Vertigo	605	85	690
VEXAS Syndrome	0	0	0
Vision Impairment	2498	1003	3501
Vitamin B12 Deficiency	392	29	421
Vitamin D Deficiency	842	73	915
Vitiligo	292	32	324
Vocal Cord Dysfunction (VCD)	140	29	169
Von Hippel-Lindau Syndrome	7	2	9
Von Willebrand Disease (VWD)	392	193	585
Vulvar Cancer	22	3	25
Vulvodynia	57	2	59
Waldenstroms Macroglobulinemia (WM)	164	10	174
Wegener's Granulomatosis with Polyangiitis (GPA)	73	10	83
Wheelchair	3304	2435	5739
Williams Syndrome (WS)	12	25	37
Wilson's Disease (hepatolenticular degeneration)	20	3	23
Wolf-Hirschhorn Syndrome (WHS)	10	8	18
Wolff-Parkinson-White (WPW) Syndrome	147	28	175
X-Linked Hypophosphatemia (XLH)	26	10	36
Zoon vulvitis	0	0	0

Canada


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	6	0	6
Acne	42	1	43
Acoustic Neuroma (Vestibula Schwannoma)	2	0	2
Acromegaly	3	0	3
Adams-Oliver Syndrome (AOS)	0	0	0
Addiction	66	4	70
Addison's Disease (Adrenal insufficiency)	39	4	43
Adenomyosis	29	0	29
Adhesive Capsulitis (Frozen Shoulder)	8	0	8
Adrenal Cortical Carcinoma (ACC)	0	0	0
Agenesis of the Corpus Callosum (ACC)	2	3	5
Aicardi Syndrome	0	0	0
Alagille Syndrome (AS)	0	1	1
Albinism	2	1	3
Alice in Wonderland Syndrome (AWS)	1	0	1
Alkaptonuria	0	0	0
Allergies	214	24	238
Alopecia	29	1	30
Alpha 1 Antitrypsin Deficiency (A1AD)	6	0	6
Alpha-Mannosidosis	0	0	0
Alternating Hemiplegia of Childhood (AHC)	0	0	0
Alzheimer's Disease (AD)	1	52	53
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	5	0	5
Amputation	9	0	9
Amyloidosis	5	1	6
Amyotrophic Lateral Sclerosis (ALS)	4	4	8
Anal Cancer	5	0	5
Anemia	142	8	150
Aneurysm	3	3	6
Anhidrosis (Hypohydrosis)	1	0	1
Ankylosing Spondylitis (AS)	77	7	84
Anosmia (loss of smell)	1	0	1
Anoxic Brain Injury	1	1	2
Antiphospholipid Syndrome (APS)	10	1	11
Antisynthetase Syndrome	2	0	2
Anxiety	1486	90	1576
Aortic Disease	10	4	14
Aphantasia	0	0	0
Aphasia	3	1	4
Aplastic Anemia (AA)	3	1	4
Appendix Cancer	1	0	1
Apraxia	0	6	6
Arachnoid Cyst	4	2	6
Arachnoiditis	3	0	3
Arteriovenous Malformation (AVM)	1	0	1
Arthrogryposis Multiplex Congenita (AMC)	5	2	7
Aspirin-like defect (ALD)	0	0	0
Asthma	400	36	436
Ataxia	17	3	20
Atrial Fibrillation (AFIB)	16	3	19
Atrophic Vaginitis	0	0	0
Attention Deficit Hyperactivity Disorder (ADHD	1607	131	1738
Atypical Hemolytic Uremic Syndrome (aHUS)	4	6	10
Auditory Processing Disorder (APD)	17	2	19
Autism Spectrum Disorder (ASD)	300	103	403
Autoimmune	473	42	515
Autoimmune Encephalitis (AE)	0	0	0
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	13	1	14
Bardet Biedl Syndrome (BBS)	0	0	0
Barrett's Esophagus	0	1	1
Barth Syndrome (BTHS)	0	1	1
Bartonella	2	0	2
Batten Disease	0	3	3
Beckwith-Wiedemann Syndrome (BWS)	0	1	1
Behcet's Disease (BD)	6	0	6
Bell's Palsy	3	0	3
Benign Prostatic Hyperplasia (BPH	1	2	3
Beta Thalassemia (Cooley s Anemia)	3	0	3
Bile Acid Malabsorption (BAD)	2	0	2
Bile Duct Cancer (Cholangiocarcinoma)	3	2	5
Bipolar	147	15	162
Bladder Cancer	6	1	7
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	29	10	39
Blood Clot	12	0	12
Blood Clotting Disorder	8	2	10
Blount's Disease	0	0	0
Bone Cancer	11	3	14
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	3	1	4
Borderline Personality Disorder (BPD)	191	13	204
Brain Aneurysm	6	3	9
Brain Cancer	2	6	8
Brain Damage	10	4	14
Brain Tumor	9	2	11
BRCA Mutation	5	0	5
Breast Cancer (BC)	118	12	130
Breast Cancer in Men	0	0	0
Breast Implant Illness	0	0	0
Bronchiectasis	6	0	6
Bronchitis	10	2	12
Bronchopulmonary Dysplasia (BPD)	0	0	0
Bulging Disc	29	1	30
Bursitis	19	0	19
Calcinosis	0	0	0
Calciphylaxis	0	0	0
Campomelic Dysplasia	0	0	0
Cancer	307	65	372
Candidiasis (Yeast Infection)	8	0	8
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	4	0	4
Cardiofaciocutaneous Syndrome (CFC syndrome)	0	0	0
Carnitine Deficiency	1	0	1
Caroli Disease	0	0	0
Carpal Tunnel Syndrome (CTS)	31	1	32
Castleman Disease (CD)	1	0	1
Catheter	11	4	15
Cauda Equina Syndrome	1	0	1
Celiac Disease (CCD)	116	11	127
Cellulitis	2	0	2
Central Pain Syndrome (CPS)	5	0	5
Cerebellar Atrophy	2	1	3
Cerebral Amyloid Angiopathy	0	0	0
Cerebral Cavernous Malformations (CCMs)	0	0	0
Cerebral Palsy (CP)	21	25	46
Cervical Cancer	9	0	9
Cervical Dystonia	4	2	6
Charge Syndrome	0	2	2
Chiari Malformation (CM)	19	6	25
Chilblains (Pernio)	3	0	3
Chronic cough	7	0	7
Chronic Fatigue Syndrome (CFS	207	5	212
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	5	1	6
Chronic Intestinal Pseudo-obstruction (CIPO)	5	1	6
Chronic obstructive pulmonary disease (COPD)	57	18	75
Chronic Pain	309	20	329
Chronic Venous Insufficiency (CVI)	7	1	8
Cleft	0	2	2
Clostridium difficile (C Diff)	6	0	6
Clubfoot	2	3	5
Cluster Headache	27	2	29
Coffin-Lowry Syndrome (CLS)	0	0	0
Cognitive Impairment (CI)	12	4	16
Colon Polyps	3	0	3
Colonic Inertia	3	0	3
Color Blind	5	0	5
Colorectal (Colon) Cancer	8	2	10
Complex Regional Pain Syndrome (CRPS	50	3	53
Congenital Adrenal Hyperplasia (CAH)	4	4	8
Congenital Central Hypoventilation Syndrome (CCHS)	0	0	0
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	0	0	0
Congenital Sucrase-Isomaltase Deficiency (CSID)	0	0	0
Constipation	34	6	40
Conversion Disorder (CD)	4	0	4
Coronavirus (COVID-19)	54	2	56
Cortical Dysplasia	0	1	1
Costochondritis	16	0	16
Cowden Syndrome (CS)	2	0	2
Craniocervical Instability (CCI)	13	1	14
Craniosynostosis	1	4	5
Crohn's Disease (CD)	232	23	255
Cushing's Syndrome (Hypercortisolism)	24	3	27
Cyclic Vomiting Syndrome (CVS)	32	8	40
Cystic Fibrosis (CF)	71	32	103
Cystic Hygroma	1	0	1
Cystinosis	0	1	1
Cytomegalovirus (CMV)	0	1	1
Dandy Walker Syndrome (DWS)	0	0	0
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	0	0	0
Deep Vein Thrombosis (DVT)	12	1	13
Degenerative Disc Disease (DDD)	94	3	97
Deletion Duplication Syndrome	1	15	16
Delta-Storage Pool Deficiency	0	0	0
Depression	1287	70	1357
Dercum's Disease (adiposis dolorosa)	0	0	0
Dermatomyositis (DM)	10	0	10
Desmoid Tumor	1	0	1
Developmental Delay (DD)	6	31	37
Diabetes (DM)	314	79	393
Disabled	8	1	9
Disruptive Mood Dysregulation Disorder (DMDD)	0	2	2
Dissociative Identity Disorder (DID	20	3	23
Diverticulitis	20	2	22
Down Syndrome (DS)	1	8	9
Dry Mouth	3	0	3
Duodenitis	2	0	2
Dupuytren's Contracture	2	0	2
Dwarfism	7	1	8
Dysarthria (Slurred Speech)	2	0	2
Dysautonomia	251	12	263
Dyskeratosis Congenita	0	0	0
Dyslexia	29	3	32
Dysmenorrhea (Painful Menstruation)	42	2	44
Dysphagia (Difficulty Swallowing)	12	3	15
Dystonia	9	6	15
Ear Cancer	0	0	0
Eating Disorder	97	9	106
Eczema (Atopic Dermatitis)	187	11	198
Edema	7	0	7
Ehlers-Danlos Syndrome (EDS)	226	5	231
Elephantiasis (Lymphatic Filariasis)	0	0	0
Empty Sella Syndrome (ESS)	1	0	1
Encephalitis	3	0	3
Encephalocele	0	0	0
Endometrial Cancer	10	0	10
Endometriosis	211	8	219
Enlarged Spleen (Splenomegaly)	1	0	1
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	2	0	2
Eosinophilic Esophagitis (EOE)	28	12	40
Eosinophilic Gasteroenteritis (EG)	2	1	3
Epicondylitis (Tennis Elbow)	2	0	2
Epidermolysis Bullosa (EB)	1	0	1
Epilepsy	86	97	183
Epithelial Basement Membrane Dystrophy	0	0	0
Epstein Barr Syndrome (EBV)	7	0	7
Erb's Palsy	4	0	4
Erectile Dysfunction (ED)	9	0	9
Erythema Nodosum	2	0	2
Erythromelalgia	7	0	7
Esophageal Atresia (EA)	0	1	1
Esophageal Cancer	0	1	1
Esophageal Varices	0	0	0
Essential Thrombocythemia	1	0	1
Essential Tremor	15	0	15
Ewing's Sarcoma	2	0	2
Exocrine Pancreatic Insufficiency (EPI)	1	0	1
Eye Cancer	3	1	4
Fabry disease	4	3	7
Factor V Leiden	1	0	1
Failure to Thrive (FTT)	0	4	4
Familial Adenomatous Polyposis (FAP)	6	0	6
Familial Chylomicronemia Syndrome (FCS)	0	0	0
Familial Hypercholesterolemia (FH)	4	2	6
Familial Mediterranean Fever (FMF)	2	0	2
Fatty Oxidation Disorder (FAOD)	0	2	2
Feeding Tube	19	21	40
Fetal Alcohol Syndrome (FAS)	5	6	11
Fibrocystic Breasts	15	1	16
Fibrodysplasia Ossificans Progressiva (FOP)	1	1	2
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	3	0	3
Fibromyalgia (FM)	483	17	500
Fibrosing Mediastinitis	0	0	0
Fibrous Dysplasia	0	1	1
Fistula	7	0	7
Foot Drop	1	0	1
FOXG1 Syndrome	0	2	2
Fragile X Syndrome (FXS)	0	4	4
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	1	0	1
Friedreich's Ataxia (FA)	5	4	9
Functional Neurological Disorder (FND)	32	1	33
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	0	1	1
Galactosemia	1	0	1
Gall Stones	19	1	20
Ganglioneuroblastoma	0	0	0
Gastric Bypass	6	0	6
Gastric Dysmotility	23	2	25
Gastritis	30	0	30
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	179	15	194
Gastrointestinal Stromal Tumor (GIST)	1	0	1
Gastroparesis (GP)	85	5	90
Gastroschisis	1	0	1
Gaucher Disease (GD)	2	1	3
Gender Dysphoria	23	1	24
Giant Cell Arteritis (GCA)	2	0	2
Glucose Transporter Deficiency (GLUT1DS)	0	2	2
Gluten Intolerance	23	1	24
Glycogen Storage Disease (GSD)	0	2	2
Goiter	0	0	0
Goldenhar Syndrome	0	0	0
Gout	15	2	17
Graft Versus Host Disease (GVHD)	4	1	5
Granular Cell Tumors	0	0	0
Granuloma Annulare (GA)	3	0	3
Grave's Disease (GD)	20	0	20
Guillain-Barre Syndrome (GBS)	8	1	9
Hansen's Disease (Leprosy)	0	0	0
Hashimoto's Disease (HT)	114	6	120
Head and Neck Cancer	3	0	3
Headache	62	7	69
Hearing Aid	26	12	38
Hearing Loss	52	16	68
Heart Disease	135	51	186
HELLP Syndrome	2	0	2
Hemangioma	2	1	3
Hemihyperplasia	0	0	0
Hemochromatosis (Iron Overload)	9	1	10
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	20	20	40
Hemorrhoids	14	0	14
Hepatitis	27	5	32
Hereditary alpha-tryptasemia (H?T)	1	0	1
Hereditary Angioedema (HAE)	16	1	17
Hereditary hemorrhagic telangiectasia (HHT)	1	0	1
Hereditary Spastic Paraparesis (HSP)	9	0	9
Hereditary Spastic Paraplegia (HSP)	8	3	11
Hernia	26	4	30
Herpes (HSV)	27	0	27
Hidradenitis Suppurativa (HS)	166	3	169
High Blood Pressure (Hypertension	249	44	293
High Cholesterol (Hyperlipidemia)	116	23	139
Hip Dysplasia	10	1	11
Hip Replacement	12	0	12
Hirschsprung's Disease (HD	1	5	6
Hirsutism	5	0	5
HIV	12	3	15
Hodgkins Lymphoma	16	3	19
Holoprosencephaly (HPE)	0	0	0
Homocystinuria (HCU)	3	0	3
Horner Syndrome	1	0	1
Human Growth Hormone Deficiency (GHD)	11	9	20
Human Papillomavirus (Human Papillomavirus (HPV)	9	0	9
Huntington's Disease (HD)	3	8	11
Hydrocephalus	12	7	19
Hyper-IgA Syndrome	1	0	1
Hyperaldosteronism	1	0	1
Hyperemesis Gravidarum (HG	1	1	2
Hypereosinophilic Syndrome (HES)	1	0	1
Hyperhidrosis	19	0	19
Hyperkalemia	1	1	2
Hypermobility Syndrome	97	2	99
Hyperoxaluria	0	0	0
Hyperparathyroidism	11	0	11
Hypersomnia	16	1	17
Hyperthyroidism	20	2	22
Hypocalcemia	2	1	3
Hypoglycemia (Low Blood Sugar)	36	8	44
Hypogonadism (Low Testosterone)	0	0	0
Hypohidrotic Ectodermal Dysplasia (HED)	0	0	0
Hypokalemia	3	0	3
Hypokalemic Periodic Paralysis	0	0	0
Hyponatremia	1	0	1
Hypoparathyroidism	9	0	9
Hypophosphatasia (HPP)	4	0	4
Hypoplasia of the Corpus Callosum	0	1	1
Hypothyroidism	244	11	255
Hypotonia	0	10	10
Hypoxic Ischemic Encephalopathy (HIE)	0	0	0
Hysterectomy	11	0	11
Ichthyosis	2	0	2
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	3	1	4
Immune Thrombocytopenic Purpura (ITP)	17	2	19
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	1	1	2
Incontinence	20	10	30
Incontinentia Pigmenti (IP)	0	0	0
Infertility	31	0	31
Insomnia	114	1	115
Intellectual Disability	2	21	23
Intermittent Explosive Disorder (IED)	0	0	0
Interstitial Cystitis (IC)	45	1	46
Interstitial Lung Disease (ILD)	9	1	10
Intracranial Hemorrhage (Brain Bleeds)	3	1	4
Intracranial Hypertension (IH	12	2	14
intracranial Pressure (ICP)	2	0	2
Iritis	4	0	4
Irritable Bowel Syndrome (IBS)	385	17	402
Ischemic Colitis	2	0	2
Jansen's Metaphyseal Chondrodysplasia	0	0	0
Juvenile Arthritis (JA)	26	11	37
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	0	0	0
Kawasaki Disease	1	2	3
Keratosis Pilaris (follicular keratosis)	8	0	8
Kidney Disease	110	22	132
Klinefelter Syndrome (XXY Syndrome)	1	0	1
Klippel-Feil Syndrome (KFS)	3	1	4
Klippel-Trenaunay Syndrome (KTS)	2	0	2
Knee Replacement	14	2	16
Lactose Intolerance	30	2	32
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	0	0	0
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	0	0	0
Larsen syndrome	0	0	0
Laryngeal Cancer	0	0	0
Laryngomalacia	0	0	0
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	1	1	2
Learning Disability	33	15	48
Legg-Calve-Perthes Disease (LCPD)	3	1	4
Leiomyosarcoma	1	0	1
LEOPARD Syndrome	1	1	2
Leukemia	20	9	29
Leukocytosis	0	0	0
Leukodystrophy	4	2	6
Leukopenia	2	0	2
Lichen Planus	6	0	6
Lichen Sclerosus (LS)	14	0	14
Lipedema	6	0	6
Lipodystrophy	1	0	1
Liposarcoma	2	0	2
Lissencephaly	0	0	0
Livedo Reticularis (LR)	2	0	2
Liver Cancer	7	1	8
Liver Disease (not hepatitis)	71	15	86
Loeys Dietz Syndrome	1	0	1
Loin Pain Hematuria Syndrome (LPHS)	1	0	1
Loss of Mobility	14	6	20
Low Blood Pressure (Hypotension)	46	4	50
Low Testosterone	2	1	3
Lung Cancer	25	10	35
Lung Disease	12	8	20
Lupus	181	6	187
Lyme Disease	19	1	20
Lymphatic Malformation (LM)	0	0	0
Lymphedema	18	1	19
Lymphocytic Colitis	0	0	0
Lymphoma	10	0	10
Lymphoproliferative Disease (LPD)	0	0	0
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	2	0	2
Macular Degeneration	12	5	17
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	1	0	1
Malabsorption	3	0	3
Malignant Hyperthermia (MH)	0	1	1
Maple Syrup Urine Disease (MSUD)	0	0	0
Marfan Syndrome (MFS)	6	3	9
Mastocytosis (Mast Cell Activating Disease	88	5	93
May Thurner Syndrome	1	0	1
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	0	0	0
McCune-Albright Syndrome (MAS)	0	1	1
Median arcuate ligament syndrome (MALS)	6	0	6
Memory Loss	13	6	19
Meniere's Disease (MD)	10	0	10
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	33	2	35
Menorrhagia (Heavy Menstrual Bleeding	22	0	22
Mental Illness	41	11	52
Mesothelioma	0	0	0
Metabolic Syndrome	6	0	6
Metatarsalgia	1	0	1
Methicillin-Resistant Staphylococcus Aureus (MRSA)	3	0	3
Microcephaly	0	1	1
Microscopic Colitis	7	0	7
Microtia	1	1	2
Migraine	430	20	450
Misophonia	3	0	3
Mitochondrial Disease	7	4	11
Mixed Connective Tissue Disease (MCTD)	18	0	18
Moebius Syndrome	3	1	4
Monoclonal gammopathy of undetermined significance (MGUS)	2	0	2
Mood Disorder	21	2	23
Morgellons Disease (MD)	0	0	0
Moyamoya Disease	2	0	2
MTHFR	2	0	2
Mucopolysaccharidoses (MPS)	1	3	4
Multiple Endocrine Neoplasia (MEN)	6	0	6
Multiple Myeloma (MM)	10	0	10
Multiple Sclerosis (MS)	281	23	304
Multiple System Atrophy (MSA)	1	1	2
Muscle Spasms	11	1	12
Muscle Tension Dysphonia (MTD)	4	0	4
Muscular Dystrophy (MD)	34	16	50
Myasthenia Gravis (MG)	39	2	41
Mycobacterium Avium Complex (MAC)	0	0	0
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	6	0	6
Myelodysplastic syndrome (MDS)	5	1	6
Myelofibrosis	1	1	2
Myeloproliferative Neoplasms	0	1	1
Myopathy	8	3	11
Myositis	5	0	5
Narcolepsy	33	2	35
Nasal Polyps	1	0	1
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	0	0	0
Neck Surgery	1	0	1
Netherton Syndrome (NS)	0	0	0
Neuralgia	31	1	32
Neuroblastoma	0	3	3
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	8	2	10
Neurofibromatosis (NF)	8	2	10
Neurogenic Bladder	16	3	19
Neurogenic Bowel	3	1	4
Neuromyelitis optica (NMO)	32	1	33
Neuropathy	96	5	101
Neurotrophic Keratitis	1	0	1
Neutropenia	2	2	4
Niemann-Pick Disease	1	1	2
Non-Hodgkin's Lymphoma (NHL)	16	3	19
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	5	0	5
Nonspecific Interstitial Pneumonia (NSIP)	0	0	0
Nontuberculous Mycobacterial (NTM)	1	1	2
Noonan Syndrome (NS)	0	1	1
Obesity	146	9	155
Obsessive Compulsive Disorder (OCD)	226	18	244
Oppositional Defiant Disorder (ODD)	14	8	22
Oral Cancer	0	0	0
Organ Transplant	29	7	36
Organic Acidemia (OA)	0	1	1
Osteoarthritis (OA)	256	27	283
Osteogenesis Imperfecta (OI)	10	2	12
Osteomyelitis (OM)	2	1	3
Osteopenia	16	3	19
Osteoporosis	59	8	67
Ostomy	7	2	9
Other	182	33	215
Ovarian Cancer	11	1	12
Ovarian Cyst	22	0	22
Overactive Bladder (OAB)	23	1	24
Paget's	2	0	2
Palmoplantar Pustulosis	3	0	3
Pancreatic Cancer	2	2	4
Pancreatitis	3	1	4
Paraganglioma	0	0	0
Paralysis	22	5	27
Paraneoplastic Syndrome	1	0	1
Parkinson's Disease (PD)	24	16	40
Paroxysmal Nocturnal Hemoglobinuria (PNH)	4	1	5
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	0	0	0
Pelvic Congestion Syndrome (PCS)	2	0	2
Pelvic Floor Dysfunction	26	1	27
Pelvic Inflammatory Disease (PID)	0	0	0
Pemphigus / Pemphigoid	12	1	13
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	3	0	3
Periodontitis (Gum Disease)	2	0	2
Perivascular Epithelioid Cell Tumour (PEComas)	0	0	0
Periventricular Leukomalacia (PVL)	0	2	2
Persistent Genital Arousal Disorder	0	0	0
Personality Disorder	12	1	13
Peyronie's Disease (Penile Fibrosis)	0	0	0
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	7	8	15
Pheochromocytoma (PCC)	1	0	1
Pierre Robin Sequence (PRS)	0	1	1
Pituitary Tumor	17	1	18
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	26	2	28
Pneumonia	6	1	7
Poland Syndrome	1	0	1
Polio	2	0	2
Polychondritis	8	0	8
Polycystic Ovarian Syndrome (PCOS)	267	10	277
Polycythemia Vera (PV)	10	1	11
Polymicrogyria (PMG)	0	2	2
Polymyalgia Rheumatica (PMR)	1	0	1
Polymyositis (PM)	8	0	8
Pompe Disease	0	3	3
Popliteal Artery Entrapment Syndrome (PAES)	0	0	0
Porphyria	2	1	3
Post-Polio Syndrome (PPS)	4	0	4
Posttraumatic Stress Disorder (PTSD)	507	30	537
Pre-exposure Prophylaxis (PrEP)	2	0	2
Precocious Puberty	0	1	1
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	5	0	5
Premenstrual Dysphoric Disorder (PMDD)	81	2	83
Primary Ciliary Dyskinesia (PCD)	1	1	2
Primary Hyperoxaluria (PH)	0	0	0
Primary Immunodeficiency (PIDD)	17	3	20
Primary Peritoneal	0	0	0
Progressive Multifocal Leukoencephalopathy (PML)	0	0	0
Progressive Supranuclear Palsy (PSP)	0	0	0
Prolactinoma	7	0	7
Prostate Cancer	12	4	16
Protein Deficiency	5	0	5
Proteinuria (Protein in Urine)	1	0	1
Prurigo Nodularis (PN)	1	0	1
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	158	6	164
Psoriatic Arthritis (PsA)	85	4	89
Ptosis (Drooping eye	4	2	6
Pulmonary Arterial Hypertension (PAH)	28	6	34
Pulmonary Embolism (PE)	11	1	12
Pulmonary Fibrosis (PF)	9	0	9
Pyloric Stenosis (Gastric Outlet Obstruction)	0	0	0
Pyoderma Gangrenosum (PG)	5	0	5
Pyruvate Kinase Deficiency (PKD)	0	0	0
Raynaud's Syndrome	111	5	116
Rectal Cancer (CRC)	1	2	3
Rectocele	3	0	3
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	8	2	10
Respiratory Disease	494	81	575
Respiratory Syncytial Virus (RSV) Infection	1	0	1
Restless Leg Syndrome (RLS)	42	4	46
Retroperitoneal Fibrosis	0	0	0
Rheumatoid Arthritis (RA)	236	28	264
Rickets (Osteomalacia)	1	0	1
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	35	2	37
Rubella- German Measles	0	0	0
Sacroiliac Joint Disease (SI)	9	0	9
Sarcoidosis	11	0	11
Sarcoma	2	0	2
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	3	2	5
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	0	0	0
Schizophrenia	30	9	39
Sciatica	39	3	42
Scleroderma	32	2	34
Sclerosing Peritonitis (SP)	0	0	0
Scoliosis	126	15	141
Secondary Adrenal insufficiency	20	2	22
Secondary Immune Deficiency (SID)	2	0	2
Sensory Processing Disorder (SPD)	25	7	32
Sepsis	1	1	2
Sexually Transmitted Disease (STD)	2	0	2
Shaken Baby Syndrome (SBS)	0	0	0
Shingles (Herpes Zoster)	11	0	11
Short Bowel Syndrome (SBS	6	3	9
Shoulder Replacement	1	0	1
Sickle Cell Disease (SCD)	35	31	66
Sickle Cell Trait (SCT)	2	2	4
Sinusitis	35	4	39
Sjogren's Syndrome (SjS	44	1	45
Skin Cancer	26	4	30
Sleep Apnea (OSA)	111	16	127
Sleep Disorder	38	2	40
Small for Gestational Age SGA)	0	3	3
Small Intestinal Bacterial Overgrowth (SIBO)	19	1	20
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	1	1
Spasmodic Dysphonia	1	0	1
Spastic Diplegia	1	1	2
Spasticity	2	1	3
Speech Impairment	5	5	10
Spherocytosis	1	0	1
Sphincter of Oddi Dysfunction	0	0	0
Spina Bifida (SB)	13	4	17
Spinal Cancer	1	0	1
Spinal Cord	81	13	94
Spinal Muscular Atrophy (SMA)	25	60	85
Sprengel Deformity	0	0	0
Stickler Syndrome	1	0	1
Stiff Person Syndrome (SPS)	5	0	5
Stomach (Gastric) Cancer	3	1	4
Stomach Ulcer	13	4	17
Stroke	19	18	37
Subcortical Band Heterotopia	0	0	0
Subglottic Stenosis (SGS)	2	0	2
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	9	1	10
Syncope	16	2	18
Synesthesia	3	0	3
Syringomyelia	7	0	7
Tardive Dyskinesia (TD)	1	0	1
Tarlov Cysts	7	1	8
Tay Sachs (TSD)	0	0	0
Temporomandibular joint (TMJ)	79	2	81
Tendonitis	23	1	24
Tenosynovial Giant Cell Tumor (TGCT)	1	0	1
Testicular Cancer	4	1	5
Thalassemia	11	1	12
Thoracic Outlet Syndrome (TOS)	17	0	17
Throat Cancer	0	1	1
Thrombocytopenia (TCP)	8	0	8
Thrombotic Thrombocytopenic Purpura (TTP)	1	0	1
Thyroid Cancer	23	2	25
Thyroid Eye Disease (TED)	5	2	7
Thyroid Nodule	16	0	16
Thyroidectomy	11	0	11
Tics	3	0	3
Tongue Cancer	0	0	0
Tooth Agenesis (Anodontia)	0	0	0
Torticollis (Wry Neck)	1	2	3
Tourette Syndrome (TS)	26	7	33
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	1	0	1
Tracheomalacia	1	1	2
Transient Global Amnesia (TGA)	1	0	1
Traumatic Brain Injury (TBI)	46	8	54
Treacher Collins syndrome (TCS)	0	0	0
Trichotillomania (TTM)	14	0	14
Trigger Finger (Stenosing Tenosynovitis)	3	0	3
Trisomy 13 (Patau Syndrome)	0	1	1
Trisomy 18 (Edwards Syndrome)	0	1	1
Trisomy X (XXX)	0	0	0
Tuberculosis	4	3	7
Ulcerative Colitis (UC)	111	12	123
Undifferentiated Connective Tissue Disease (UCTD)	10	0	10
Urea Cycle Disorder (UCD)	4	1	5
Urethral Prolapse	1	0	1
Urinary Tract Infection (UTI)	14	3	17
Urticaria (Hives)	75	5	80
Usher Syndrome	0	0	0
Uterine Cancer	1	2	3
Uterine Fibroids	33	0	33
Uterine Leiomyosarcoma	0	0	0
Uterine Polyps	3	0	3
Uveitis	9	1	10
VACTERL Syndrome	1	0	1
Vaginismus	7	0	7
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	9	1	10
Vasculitis	11	0	11
Velopharyngeal Insufficiency (VPI)	0	0	0
Vertebral Artery Dissection (VAD)	2	0	2
Vertigo	30	2	32
VEXAS Syndrome	0	0	0
Vision Impairment	99	25	124
Vitamin B12 Deficiency	20	0	20
Vitamin D Deficiency	16	0	16
Vitiligo	10	0	10
Vocal Cord Dysfunction (VCD)	6	0	6
Von Hippel-Lindau Syndrome	1	0	1
Von Willebrand Disease (VWD)	9	2	11
Vulvar Cancer	1	0	1
Vulvodynia	8	1	9
Waldenstroms Macroglobulinemia (WM)	12	1	13
Wegener's Granulomatosis with Polyangiitis (GPA)	8	0	8
Wheelchair	232	93	325
Williams Syndrome (WS)	0	0	0
Wilson's Disease (hepatolenticular degeneration)	1	0	1
Wolf-Hirschhorn Syndrome (WHS)	0	1	1
Wolff-Parkinson-White (WPW) Syndrome	9	1	10
X-Linked Hypophosphatemia (XLH)	0	1	1
Zoon vulvitis	0	0	0

France


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	0	0	0
Acne	19	2	21
Acoustic Neuroma (Vestibula Schwannoma)	0	0	0
Acromegaly	0	1	1
Adams-Oliver Syndrome (AOS)	0	0	0
Addiction	24	9	33
Addison's Disease (Adrenal insufficiency)	2	1	3
Adenomyosis	8	4	12
Adhesive Capsulitis (Frozen Shoulder)	2	1	3
Adrenal Cortical Carcinoma (ACC)	0	0	0
Agenesis of the Corpus Callosum (ACC)	0	0	0
Aicardi Syndrome	1	0	1
Alagille Syndrome (AS)	0	0	0
Albinism	0	0	0
Alice in Wonderland Syndrome (AWS)	0	0	0
Alkaptonuria	0	0	0
Allergies	94	6	100
Alopecia	3	0	3
Alpha 1 Antitrypsin Deficiency (A1AD)	0	0	0
Alpha-Mannosidosis	0	0	0
Alternating Hemiplegia of Childhood (AHC)	0	0	0
Alzheimer's Disease (AD)	6	100	106
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	2	1	3
Amputation	6	3	9
Amyloidosis	0	0	0
Amyotrophic Lateral Sclerosis (ALS)	1	2	3
Anal Cancer	0	0	0
Anemia	23	2	25
Aneurysm	7	1	8
Anhidrosis (Hypohydrosis)	0	0	0
Ankylosing Spondylitis (AS)	43	3	46
Anosmia (loss of smell)	0	0	0
Anoxic Brain Injury	0	0	0
Antiphospholipid Syndrome (APS)	2	0	2
Antisynthetase Syndrome	0	0	0
Anxiety	148	14	162
Aortic Disease	5	1	6
Aphantasia	0	0	0
Aphasia	0	1	1
Aplastic Anemia (AA)	2	0	2
Appendix Cancer	1	0	1
Apraxia	0	0	0
Arachnoid Cyst	0	0	0
Arachnoiditis	1	0	1
Arteriovenous Malformation (AVM)	1	1	2
Arthrogryposis Multiplex Congenita (AMC)	0	1	1
Aspirin-like defect (ALD)	0	0	0
Asthma	193	35	228
Ataxia	2	1	3
Atrial Fibrillation (AFIB)	5	4	9
Atrophic Vaginitis	0	0	0
Attention Deficit Hyperactivity Disorder (ADHD	101	19	120
Atypical Hemolytic Uremic Syndrome (aHUS)	0	0	0
Auditory Processing Disorder (APD)	1	0	1
Autism Spectrum Disorder (ASD)	49	40	89
Autoimmune	124	25	149
Autoimmune Encephalitis (AE)	0	0	0
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	2	0	2
Bardet Biedl Syndrome (BBS)	0	1	1
Barrett's Esophagus	0	0	0
Barth Syndrome (BTHS)	1	1	2
Bartonella	0	0	0
Batten Disease	0	0	0
Beckwith-Wiedemann Syndrome (BWS)	0	0	0
Behcet's Disease (BD)	1	0	1
Bell's Palsy	2	1	3
Benign Prostatic Hyperplasia (BPH	8	0	8
Beta Thalassemia (Cooley s Anemia)	0	0	0
Bile Acid Malabsorption (BAD)	1	0	1
Bile Duct Cancer (Cholangiocarcinoma)	1	0	1
Bipolar	70	21	91
Bladder Cancer	4	2	6
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	4	3	7
Blood Clot	0	0	0
Blood Clotting Disorder	0	0	0
Blount's Disease	0	0	0
Bone Cancer	2	0	2
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	0	0	0
Borderline Personality Disorder (BPD)	37	2	39
Brain Aneurysm	3	0	3
Brain Cancer	3	2	5
Brain Damage	4	1	5
Brain Tumor	9	2	11
BRCA Mutation	2	0	2
Breast Cancer (BC)	74	13	87
Breast Cancer in Men	0	0	0
Breast Implant Illness	0	0	0
Bronchiectasis	2	0	2
Bronchitis	14	2	16
Bronchopulmonary Dysplasia (BPD)	0	0	0
Bulging Disc	31	4	35
Bursitis	2	0	2
Calcinosis	1	0	1
Calciphylaxis	0	0	0
Campomelic Dysplasia	1	0	1
Cancer	154	81	235
Candidiasis (Yeast Infection)	1	0	1
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	2	1	3
Cardiofaciocutaneous Syndrome (CFC syndrome)	1	1	2
Carnitine Deficiency	0	0	0
Caroli Disease	1	0	1
Carpal Tunnel Syndrome (CTS)	9	1	10
Castleman Disease (CD)	0	0	0
Catheter	1	0	1
Cauda Equina Syndrome	3	0	3
Celiac Disease (CCD)	6	0	6
Cellulitis	1	1	2
Central Pain Syndrome (CPS)	0	0	0
Cerebellar Atrophy	0	0	0
Cerebral Amyloid Angiopathy	0	1	1
Cerebral Cavernous Malformations (CCMs)	0	1	1
Cerebral Palsy (CP)	2	4	6
Cervical Cancer	5	3	8
Cervical Dystonia	1	0	1
Charge Syndrome	0	0	0
Chiari Malformation (CM)	2	0	2
Chilblains (Pernio)	0	0	0
Chronic cough	0	0	0
Chronic Fatigue Syndrome (CFS	33	3	36
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	5	1	6
Chronic Intestinal Pseudo-obstruction (CIPO)	2	0	2
Chronic obstructive pulmonary disease (COPD)	58	8	66
Chronic Pain	73	8	81
Chronic Venous Insufficiency (CVI)	7	2	9
Cleft	0	0	0
Clostridium difficile (C Diff)	0	0	0
Clubfoot	1	0	1
Cluster Headache	6	1	7
Coffin-Lowry Syndrome (CLS)	0	0	0
Cognitive Impairment (CI)	4	3	7
Colon Polyps	2	1	3
Colonic Inertia	0	0	0
Color Blind	2	0	2
Colorectal (Colon) Cancer	9	7	16
Complex Regional Pain Syndrome (CRPS	14	2	16
Congenital Adrenal Hyperplasia (CAH)	0	0	0
Congenital Central Hypoventilation Syndrome (CCHS)	0	0	0
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	1	0	1
Congenital Sucrase-Isomaltase Deficiency (CSID)	0	0	0
Constipation	11	0	11
Conversion Disorder (CD)	0	0	0
Coronavirus (COVID-19)	26	7	33
Cortical Dysplasia	0	0	0
Costochondritis	0	0	0
Cowden Syndrome (CS)	1	0	1
Craniocervical Instability (CCI)	1	1	2
Craniosynostosis	0	0	0
Crohn's Disease (CD)	33	15	48
Cushing's Syndrome (Hypercortisolism)	5	0	5
Cyclic Vomiting Syndrome (CVS)	1	0	1
Cystic Fibrosis (CF)	2	0	2
Cystic Hygroma	0	0	0
Cystinosis	0	0	0
Cytomegalovirus (CMV)	0	1	1
Dandy Walker Syndrome (DWS)	0	0	0
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	0	0	0
Deep Vein Thrombosis (DVT)	10	0	10
Degenerative Disc Disease (DDD)	24	7	31
Deletion Duplication Syndrome	0	0	0
Delta-Storage Pool Deficiency	0	0	0
Depression	291	49	340
Dercum's Disease (adiposis dolorosa)	0	0	0
Dermatomyositis (DM)	0	0	0
Desmoid Tumor	0	0	0
Developmental Delay (DD)	0	2	2
Diabetes (DM)	235	88	323
Disabled	11	11	22
Disruptive Mood Dysregulation Disorder (DMDD)	0	1	1
Dissociative Identity Disorder (DID	7	1	8
Diverticulitis	5	0	5
Down Syndrome (DS)	0	1	1
Dry Mouth	2	0	2
Duodenitis	0	0	0
Dupuytren's Contracture	0	0	0
Dwarfism	1	0	1
Dysarthria (Slurred Speech)	0	0	0
Dysautonomia	10	0	10
Dyskeratosis Congenita	1	0	1
Dyslexia	6	5	11
Dysmenorrhea (Painful Menstruation)	3	0	3
Dysphagia (Difficulty Swallowing)	1	0	1
Dystonia	3	1	4
Ear Cancer	0	0	0
Eating Disorder	33	5	38
Eczema (Atopic Dermatitis)	52	5	57
Edema	6	0	6
Ehlers-Danlos Syndrome (EDS)	24	3	27
Elephantiasis (Lymphatic Filariasis)	0	1	1
Empty Sella Syndrome (ESS)	0	0	0
Encephalitis	1	0	1
Encephalocele	0	0	0
Endometrial Cancer	1	1	2
Endometriosis	71	5	76
Enlarged Spleen (Splenomegaly)	0	1	1
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	0	0	0
Eosinophilic Esophagitis (EOE)	2	1	3
Eosinophilic Gasteroenteritis (EG)	0	0	0
Epicondylitis (Tennis Elbow)	3	1	4
Epidermolysis Bullosa (EB)	0	0	0
Epilepsy	50	33	83
Epithelial Basement Membrane Dystrophy	1	0	1
Epstein Barr Syndrome (EBV)	0	0	0
Erb's Palsy	0	0	0
Erectile Dysfunction (ED)	3	0	3
Erythema Nodosum	0	0	0
Erythromelalgia	0	0	0
Esophageal Atresia (EA)	0	0	0
Esophageal Cancer	1	2	3
Esophageal Varices	0	0	0
Essential Thrombocythemia	2	0	2
Essential Tremor	1	0	1
Ewing's Sarcoma	0	0	0
Exocrine Pancreatic Insufficiency (EPI)	0	0	0
Eye Cancer	0	0	0
Fabry disease	0	0	0
Factor V Leiden	0	0	0
Failure to Thrive (FTT)	0	0	0
Familial Adenomatous Polyposis (FAP)	1	0	1
Familial Chylomicronemia Syndrome (FCS)	0	0	0
Familial Hypercholesterolemia (FH)	24	2	26
Familial Mediterranean Fever (FMF)	1	1	2
Fatty Oxidation Disorder (FAOD)	0	0	0
Feeding Tube	0	0	0
Fetal Alcohol Syndrome (FAS)	0	0	0
Fibrocystic Breasts	1	0	1
Fibrodysplasia Ossificans Progressiva (FOP)	0	0	0
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	5	0	5
Fibromyalgia (FM)	165	20	185
Fibrosing Mediastinitis	0	0	0
Fibrous Dysplasia	0	0	0
Fistula	0	0	0
Foot Drop	0	0	0
FOXG1 Syndrome	0	0	0
Fragile X Syndrome (FXS)	1	0	1
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	0	0	0
Friedreich's Ataxia (FA)	0	1	1
Functional Neurological Disorder (FND)	8	2	10
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	0	0	0
Galactosemia	0	0	0
Gall Stones	6	1	7
Ganglioneuroblastoma	1	0	1
Gastric Bypass	2	0	2
Gastric Dysmotility	1	0	1
Gastritis	12	4	16
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	37	4	41
Gastrointestinal Stromal Tumor (GIST)	1	0	1
Gastroparesis (GP)	0	0	0
Gastroschisis	0	0	0
Gaucher Disease (GD)	1	0	1
Gender Dysphoria	5	0	5
Giant Cell Arteritis (GCA)	1	1	2
Glucose Transporter Deficiency (GLUT1DS)	0	0	0
Gluten Intolerance	5	1	6
Glycogen Storage Disease (GSD)	0	1	1
Goiter	1	0	1
Goldenhar Syndrome	1	0	1
Gout	3	0	3
Graft Versus Host Disease (GVHD)	0	0	0
Granular Cell Tumors	0	0	0
Granuloma Annulare (GA)	0	0	0
Grave's Disease (GD)	9	0	9
Guillain-Barre Syndrome (GBS)	0	1	1
Hansen's Disease (Leprosy)	0	0	0
Hashimoto's Disease (HT)	28	2	30
Head and Neck Cancer	2	0	2
Headache	17	1	18
Hearing Aid	6	0	6
Hearing Loss	33	5	38
Heart Disease	99	36	135
HELLP Syndrome	0	0	0
Hemangioma	1	0	1
Hemihyperplasia	0	0	0
Hemochromatosis (Iron Overload)	2	0	2
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	6	0	6
Hemorrhoids	4	0	4
Hepatitis	5	2	7
Hereditary alpha-tryptasemia (H?T)	0	0	0
Hereditary Angioedema (HAE)	1	0	1
Hereditary hemorrhagic telangiectasia (HHT)	0	0	0
Hereditary Spastic Paraparesis (HSP)	2	0	2
Hereditary Spastic Paraplegia (HSP)	0	0	0
Hernia	26	2	28
Herpes (HSV)	6	0	6
Hidradenitis Suppurativa (HS)	2	1	3
High Blood Pressure (Hypertension	223	43	266
High Cholesterol (Hyperlipidemia)	39	10	49
Hip Dysplasia	1	0	1
Hip Replacement	1	5	6
Hirschsprung's Disease (HD	0	0	0
Hirsutism	1	0	1
HIV	17	2	19
Hodgkins Lymphoma	1	1	2
Holoprosencephaly (HPE)	0	0	0
Homocystinuria (HCU)	0	0	0
Horner Syndrome	0	0	0
Human Growth Hormone Deficiency (GHD)	2	1	3
Human Papillomavirus (Human Papillomavirus (HPV)	12	0	12
Huntington's Disease (HD)	1	1	2
Hydrocephalus	4	3	7
Hyper-IgA Syndrome	0	0	0
Hyperaldosteronism	1	1	2
Hyperemesis Gravidarum (HG	1	0	1
Hypereosinophilic Syndrome (HES)	2	0	2
Hyperhidrosis	1	0	1
Hyperkalemia	0	0	0
Hypermobility Syndrome	4	0	4
Hyperoxaluria	0	0	0
Hyperparathyroidism	7	1	8
Hypersomnia	10	0	10
Hyperthyroidism	19	3	22
Hypocalcemia	0	0	0
Hypoglycemia (Low Blood Sugar)	4	0	4
Hypogonadism (Low Testosterone)	0	0	0
Hypohidrotic Ectodermal Dysplasia (HED)	0	0	0
Hypokalemia	1	1	2
Hypokalemic Periodic Paralysis	0	0	0
Hyponatremia	0	0	0
Hypoparathyroidism	1	0	1
Hypophosphatasia (HPP)	0	0	0
Hypoplasia of the Corpus Callosum	0	1	1
Hypothyroidism	81	9	90
Hypotonia	0	0	0
Hypoxic Ischemic Encephalopathy (HIE)	0	0	0
Hysterectomy	0	0	0
Ichthyosis	0	0	0
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	0	0	0
Immune Thrombocytopenic Purpura (ITP)	2	0	2
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	0	0	0
Incontinence	5	6	11
Incontinentia Pigmenti (IP)	0	0	0
Infertility	6	1	7
Insomnia	41	7	48
Intellectual Disability	2	5	7
Intermittent Explosive Disorder (IED)	0	0	0
Interstitial Cystitis (IC)	5	0	5
Interstitial Lung Disease (ILD)	1	0	1
Intracranial Hemorrhage (Brain Bleeds)	0	0	0
Intracranial Hypertension (IH	5	1	6
intracranial Pressure (ICP)	0	0	0
Iritis	0	0	0
Irritable Bowel Syndrome (IBS)	62	8	70
Ischemic Colitis	0	0	0
Jansen's Metaphyseal Chondrodysplasia	0	0	0
Juvenile Arthritis (JA)	1	2	3
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	0	0	0
Kawasaki Disease	0	0	0
Keratosis Pilaris (follicular keratosis)	1	0	1
Kidney Disease	23	8	31
Klinefelter Syndrome (XXY Syndrome)	0	0	0
Klippel-Feil Syndrome (KFS)	0	0	0
Klippel-Trenaunay Syndrome (KTS)	0	0	0
Knee Replacement	5	1	6
Lactose Intolerance	4	0	4
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	0	0	0
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	0	0	0
Larsen syndrome	0	0	0
Laryngeal Cancer	1	1	2
Laryngomalacia	0	0	0
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	0	0	0
Learning Disability	0	3	3
Legg-Calve-Perthes Disease (LCPD)	0	0	0
Leiomyosarcoma	1	0	1
LEOPARD Syndrome	0	0	0
Leukemia	8	3	11
Leukocytosis	0	0	0
Leukodystrophy	0	0	0
Leukopenia	0	0	0
Lichen Planus	1	0	1
Lichen Sclerosus (LS)	0	0	0
Lipedema	0	0	0
Lipodystrophy	0	0	0
Liposarcoma	0	1	1
Lissencephaly	0	0	0
Livedo Reticularis (LR)	1	0	1
Liver Cancer	5	5	10
Liver Disease (not hepatitis)	19	5	24
Loeys Dietz Syndrome	0	0	0
Loin Pain Hematuria Syndrome (LPHS)	1	0	1
Loss of Mobility	9	8	17
Low Blood Pressure (Hypotension)	7	2	9
Low Testosterone	0	0	0
Lung Cancer	24	19	43
Lung Disease	18	6	24
Lupus	28	2	30
Lyme Disease	5	0	5
Lymphatic Malformation (LM)	0	0	0
Lymphedema	4	0	4
Lymphocytic Colitis	0	0	0
Lymphoma	4	0	4
Lymphoproliferative Disease (LPD)	0	0	0
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	1	0	1
Macular Degeneration	3	3	6
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	0	0	0
Malabsorption	0	0	0
Malignant Hyperthermia (MH)	1	0	1
Maple Syrup Urine Disease (MSUD)	1	0	1
Marfan Syndrome (MFS)	2	2	4
Mastocytosis (Mast Cell Activating Disease	8	0	8
May Thurner Syndrome	0	0	0
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	0	0	0
McCune-Albright Syndrome (MAS)	0	0	0
Median arcuate ligament syndrome (MALS)	0	1	1
Memory Loss	8	18	26
Meniere's Disease (MD)	5	1	6
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	15	1	16
Menorrhagia (Heavy Menstrual Bleeding	1	0	1
Mental Illness	6	7	13
Mesothelioma	0	0	0
Metabolic Syndrome	0	2	2
Metatarsalgia	0	0	0
Methicillin-Resistant Staphylococcus Aureus (MRSA)	0	0	0
Microcephaly	0	0	0
Microscopic Colitis	1	1	2
Microtia	0	0	0
Migraine	117	17	134
Misophonia	2	0	2
Mitochondrial Disease	0	0	0
Mixed Connective Tissue Disease (MCTD)	3	0	3
Moebius Syndrome	0	0	0
Monoclonal gammopathy of undetermined significance (MGUS)	0	0	0
Mood Disorder	18	4	22
Morgellons Disease (MD)	0	0	0
Moyamoya Disease	0	0	0
MTHFR	1	0	1
Mucopolysaccharidoses (MPS)	0	0	0
Multiple Endocrine Neoplasia (MEN)	1	0	1
Multiple Myeloma (MM)	3	0	3
Multiple Sclerosis (MS)	69	23	92
Multiple System Atrophy (MSA)	0	0	0
Muscle Spasms	2	1	3
Muscle Tension Dysphonia (MTD)	0	0	0
Muscular Dystrophy (MD)	1	2	3
Myasthenia Gravis (MG)	6	1	7
Mycobacterium Avium Complex (MAC)	0	0	0
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	0	0	0
Myelodysplastic syndrome (MDS)	0	0	0
Myelofibrosis	0	0	0
Myeloproliferative Neoplasms	1	1	2
Myopathy	7	4	11
Myositis	0	0	0
Narcolepsy	4	1	5
Nasal Polyps	3	1	4
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	1	0	1
Neck Surgery	0	0	0
Netherton Syndrome (NS)	0	0	0
Neuralgia	19	2	21
Neuroblastoma	0	0	0
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	0	2	2
Neurofibromatosis (NF)	3	0	3
Neurogenic Bladder	3	0	3
Neurogenic Bowel	0	0	0
Neuromyelitis optica (NMO)	2	0	2
Neuropathy	33	6	39
Neurotrophic Keratitis	1	0	1
Neutropenia	0	0	0
Niemann-Pick Disease	0	0	0
Non-Hodgkin's Lymphoma (NHL)	3	1	4
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	4	1	5
Nonspecific Interstitial Pneumonia (NSIP)	0	0	0
Nontuberculous Mycobacterial (NTM)	0	0	0
Noonan Syndrome (NS)	0	0	0
Obesity	86	18	104
Obsessive Compulsive Disorder (OCD)	19	4	23
Oppositional Defiant Disorder (ODD)	2	0	2
Oral Cancer	2	1	3
Organ Transplant	7	4	11
Organic Acidemia (OA)	0	0	0
Osteoarthritis (OA)	113	26	139
Osteogenesis Imperfecta (OI)	0	1	1
Osteomyelitis (OM)	0	0	0
Osteopenia	0	0	0
Osteoporosis	19	5	24
Ostomy	0	1	1
Other	77	23	100
Ovarian Cancer	3	1	4
Ovarian Cyst	4	1	5
Overactive Bladder (OAB)	3	2	5
Paget's	1	0	1
Palmoplantar Pustulosis	1	0	1
Pancreatic Cancer	5	2	7
Pancreatitis	4	1	5
Paraganglioma	0	0	0
Paralysis	15	17	32
Paraneoplastic Syndrome	0	0	0
Parkinson's Disease (PD)	10	30	40
Paroxysmal Nocturnal Hemoglobinuria (PNH)	0	0	0
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	0	2	2
Pelvic Congestion Syndrome (PCS)	0	0	0
Pelvic Floor Dysfunction	0	1	1
Pelvic Inflammatory Disease (PID)	0	0	0
Pemphigus / Pemphigoid	1	0	1
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	0	0	0
Periodontitis (Gum Disease)	4	0	4
Perivascular Epithelioid Cell Tumour (PEComas)	0	0	0
Periventricular Leukomalacia (PVL)	0	0	0
Persistent Genital Arousal Disorder	1	0	1
Personality Disorder	5	1	6
Peyronie's Disease (Penile Fibrosis)	1	0	1
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	0	0	0
Pheochromocytoma (PCC)	0	0	0
Pierre Robin Sequence (PRS)	0	0	0
Pituitary Tumor	3	0	3
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	1	0	1
Pneumonia	4	2	6
Poland Syndrome	1	0	1
Polio	2	0	2
Polychondritis	0	0	0
Polycystic Ovarian Syndrome (PCOS)	30	3	33
Polycythemia Vera (PV)	0	0	0
Polymicrogyria (PMG)	0	1	1
Polymyalgia Rheumatica (PMR)	2	1	3
Polymyositis (PM)	0	0	0
Pompe Disease	0	0	0
Popliteal Artery Entrapment Syndrome (PAES)	0	0	0
Porphyria	0	0	0
Post-Polio Syndrome (PPS)	1	0	1
Posttraumatic Stress Disorder (PTSD)	51	4	55
Pre-exposure Prophylaxis (PrEP)	1	0	1
Precocious Puberty	0	0	0
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	2	0	2
Premenstrual Dysphoric Disorder (PMDD)	3	0	3
Primary Ciliary Dyskinesia (PCD)	1	0	1
Primary Hyperoxaluria (PH)	0	0	0
Primary Immunodeficiency (PIDD)	0	0	0
Primary Peritoneal	0	0	0
Progressive Multifocal Leukoencephalopathy (PML)	2	0	2
Progressive Supranuclear Palsy (PSP)	0	0	0
Prolactinoma	1	0	1
Prostate Cancer	5	5	10
Protein Deficiency	2	1	3
Proteinuria (Protein in Urine)	0	0	0
Prurigo Nodularis (PN)	0	0	0
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	46	5	51
Psoriatic Arthritis (PsA)	13	1	14
Ptosis (Drooping eye	0	0	0
Pulmonary Arterial Hypertension (PAH)	13	3	16
Pulmonary Embolism (PE)	6	0	6
Pulmonary Fibrosis (PF)	1	2	3
Pyloric Stenosis (Gastric Outlet Obstruction)	0	0	0
Pyoderma Gangrenosum (PG)	0	0	0
Pyruvate Kinase Deficiency (PKD)	0	0	0
Raynaud's Syndrome	11	0	11
Rectal Cancer (CRC)	0	0	0
Rectocele	0	0	0
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	5	2	7
Respiratory Disease	238	44	282
Respiratory Syncytial Virus (RSV) Infection	0	0	0
Restless Leg Syndrome (RLS)	16	1	17
Retroperitoneal Fibrosis	0	0	0
Rheumatoid Arthritis (RA)	64	24	88
Rickets (Osteomalacia)	0	0	0
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	7	1	8
Rubella- German Measles	0	0	0
Sacroiliac Joint Disease (SI)	1	0	1
Sarcoidosis	5	1	6
Sarcoma	2	1	3
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	2	0	2
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	0	0	0
Schizophrenia	12	16	28
Sciatica	24	2	26
Scleroderma	1	1	2
Sclerosing Peritonitis (SP)	3	0	3
Scoliosis	40	11	51
Secondary Adrenal insufficiency	3	0	3
Secondary Immune Deficiency (SID)	0	0	0
Sensory Processing Disorder (SPD)	4	0	4
Sepsis	1	0	1
Sexually Transmitted Disease (STD)	0	0	0
Shaken Baby Syndrome (SBS)	0	0	0
Shingles (Herpes Zoster)	2	1	3
Short Bowel Syndrome (SBS	0	0	0
Shoulder Replacement	0	1	1
Sickle Cell Disease (SCD)	2	0	2
Sickle Cell Trait (SCT)	0	0	0
Sinusitis	11	2	13
Sjogren's Syndrome (SjS	7	3	10
Skin Cancer	7	7	14
Sleep Apnea (OSA)	58	10	68
Sleep Disorder	29	4	33
Small for Gestational Age SGA)	0	0	0
Small Intestinal Bacterial Overgrowth (SIBO)	0	0	0
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	0	0
Spasmodic Dysphonia	0	0	0
Spastic Diplegia	0	0	0
Spasticity	0	0	0
Speech Impairment	4	1	5
Spherocytosis	0	0	0
Sphincter of Oddi Dysfunction	0	0	0
Spina Bifida (SB)	5	0	5
Spinal Cancer	0	0	0
Spinal Cord	35	3	38
Spinal Muscular Atrophy (SMA)	2	4	6
Sprengel Deformity	1	0	1
Stickler Syndrome	0	0	0
Stiff Person Syndrome (SPS)	0	0	0
Stomach (Gastric) Cancer	4	3	7
Stomach Ulcer	17	2	19
Stroke	31	29	60
Subcortical Band Heterotopia	0	0	0
Subglottic Stenosis (SGS)	0	0	0
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	0	0	0
Syncope	0	0	0
Synesthesia	1	0	1
Syringomyelia	6	0	6
Tardive Dyskinesia (TD)	0	1	1
Tarlov Cysts	1	0	1
Tay Sachs (TSD)	0	0	0
Temporomandibular joint (TMJ)	4	0	4
Tendonitis	21	5	26
Tenosynovial Giant Cell Tumor (TGCT)	0	0	0
Testicular Cancer	1	0	1
Thalassemia	3	1	4
Thoracic Outlet Syndrome (TOS)	2	0	2
Throat Cancer	2	4	6
Thrombocytopenia (TCP)	1	0	1
Thrombotic Thrombocytopenic Purpura (TTP)	1	1	2
Thyroid Cancer	5	0	5
Thyroid Eye Disease (TED)	0	1	1
Thyroid Nodule	10	1	11
Thyroidectomy	4	0	4
Tics	2	0	2
Tongue Cancer	0	0	0
Tooth Agenesis (Anodontia)	0	0	0
Torticollis (Wry Neck)	0	0	0
Tourette Syndrome (TS)	0	0	0
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	0	0	0
Tracheomalacia	0	1	1
Transient Global Amnesia (TGA)	1	0	1
Traumatic Brain Injury (TBI)	0	1	1
Treacher Collins syndrome (TCS)	0	0	0
Trichotillomania (TTM)	0	0	0
Trigger Finger (Stenosing Tenosynovitis)	0	0	0
Trisomy 13 (Patau Syndrome)	0	0	0
Trisomy 18 (Edwards Syndrome)	0	0	0
Trisomy X (XXX)	0	0	0
Tuberculosis	3	0	3
Ulcerative Colitis (UC)	8	1	9
Undifferentiated Connective Tissue Disease (UCTD)	1	0	1
Urea Cycle Disorder (UCD)	0	0	0
Urethral Prolapse	0	0	0
Urinary Tract Infection (UTI)	3	0	3
Urticaria (Hives)	4	0	4
Usher Syndrome	0	0	0
Uterine Cancer	8	3	11
Uterine Fibroids	5	1	6
Uterine Leiomyosarcoma	0	0	0
Uterine Polyps	1	1	2
Uveitis	4	2	6
VACTERL Syndrome	1	0	1
Vaginismus	2	0	2
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	9	1	10
Vasculitis	3	0	3
Velopharyngeal Insufficiency (VPI)	0	0	0
Vertebral Artery Dissection (VAD)	1	0	1
Vertigo	2	1	3
VEXAS Syndrome	0	0	0
Vision Impairment	47	16	63
Vitamin B12 Deficiency	2	0	2
Vitamin D Deficiency	3	0	3
Vitiligo	10	1	11
Vocal Cord Dysfunction (VCD)	0	0	0
Von Hippel-Lindau Syndrome	0	0	0
Von Willebrand Disease (VWD)	2	0	2
Vulvar Cancer	0	0	0
Vulvodynia	2	0	2
Waldenstrom s Macroglobulinemia(WM	1	0	1
Wegener's Granulomatosis with Polyangiitis (GPA)	1	0	1
Wheelchair	33	33	66
Williams Syndrome (WS)	0	0	0
Wilson's Disease (hepatolenticular degeneration)	0	1	1
Wolf-Hirschhorn Syndrome (WHS)	0	0	0
Wolff-Parkinson-White (WPW) Syndrome	0	1	1
X-Linked Hypophosphatemia (XLH)	0	0	0
Zoon vulvitis	0	0	0

Germany


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	1	0	1
Acne	12	1	13
Acoustic Neuroma (Vestibula Schwannoma)	2	0	2
Acromegaly	0	0	0
Adams-Oliver Syndrome (AOS)	1	0	1
Addiction	18	3	21
Addison's Disease (Adrenal insufficiency)	5	1	6
Adenomyosis	6	0	6
Adhesive Capsulitis (Frozen Shoulder)	5	2	7
Adrenal Cortical Carcinoma (ACC)	0	0	0
Agenesis of the Corpus Callosum (ACC)	1	0	1
Aicardi Syndrome	1	0	1
Alagille Syndrome (AS)	0	0	0
Albinism	0	0	0
Alice in Wonderland Syndrome (AWS)	0	0	0
Alkaptonuria	0	0	0
Allergies	82	10	92
Alopecia	7	2	9
Alpha 1 Antitrypsin Deficiency (A1AD)	1	0	1
Alpha-Mannosidosis	0	0	0
Alternating Hemiplegia of Childhood (AHC)	0	0	0
Alzheimer's Disease (AD)	5	60	65
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	2	0	2
Amputation	6	1	7
Amyloidosis	0	1	1
Amyotrophic Lateral Sclerosis (ALS)	1	3	4
Anal Cancer	3	0	3
Anemia	16	4	20
Aneurysm	5	3	8
Anhidrosis (Hypohydrosis)	0	0	0
Ankylosing Spondylitis (AS)	9	1	10
Anosmia (loss of smell)	1	0	1
Anoxic Brain Injury	1	1	2
Antiphospholipid Syndrome (APS)	0	0	0
Antisynthetase Syndrome	1	0	1
Anxiety	136	14	150
Aortic Disease	5	3	8
Aphantasia	0	0	0
Aphasia	1	1	2
Aplastic Anemia (AA)	0	0	0
Appendix Cancer	0	0	0
Apraxia	0	1	1
Arachnoid Cyst	2	1	3
Arachnoiditis	2	0	2
Arteriovenous Malformation (AVM)	1	1	2
Arthrogryposis Multiplex Congenita (AMC)	1	0	1
Aspirin-like defect (ALD)	0	0	0
Asthma	124	15	139
Ataxia	1	0	1
Atrial Fibrillation (AFIB)	7	4	11
Atrophic Vaginitis	0	0	0
Attention Deficit Hyperactivity Disorder (ADHD	266	13	279
Atypical Hemolytic Uremic Syndrome (aHUS)	0	0	0
Auditory Processing Disorder (APD)	0	0	0
Autism Spectrum Disorder (ASD)	55	14	69
Autoimmune	86	8	94
Autoimmune Encephalitis (AE)	0	0	0
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	2	1	3
Bardet Biedl Syndrome (BBS)	0	0	0
Barrett's Esophagus	1	0	1
Barth Syndrome (BTHS)	0	0	0
Bartonella	0	0	0
Batten Disease	0	0	0
Beckwith-Wiedemann Syndrome (BWS)	1	0	1
Behcet's Disease (BD)	2	0	2
Bell's Palsy	0	0	0
Benign Prostatic Hyperplasia (BPH	8	1	9
Beta Thalassemia (Cooley s Anemia)	2	0	2
Bile Acid Malabsorption (BAD)	1	0	1
Bile Duct Cancer (Cholangiocarcinoma)	0	0	0
Bipolar	31	2	33
Bladder Cancer	5	1	6
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	6	0	6
Blood Clot	0	0	0
Blood Clotting Disorder	5	0	5
Blount's Disease	0	0	0
Bone Cancer	2	0	2
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	0	0	0
Borderline Personality Disorder (BPD)	45	3	48
Brain Aneurysm	3	1	4
Brain Cancer	0	0	0
Brain Damage	1	0	1
Brain Tumor	4	1	5
BRCA Mutation	3	0	3
Breast Cancer (BC)	17	4	21
Breast Cancer in Men	0	0	0
Breast Implant Illness	0	0	0
Bronchiectasis	0	0	0
Bronchitis	9	1	10
Bronchopulmonary Dysplasia (BPD)	0	0	0
Bulging Disc	23	6	29
Bursitis	3	0	3
Calcinosis	0	0	0
Calciphylaxis	0	0	0
Campomelic Dysplasia	1	0	1
Cancer	73	21	94
Candidiasis (Yeast Infection)	2	0	2
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	1	1	2
Cardiofaciocutaneous Syndrome (CFC syndrome)	1	0	1
Carnitine Deficiency	0	0	0
Caroli Disease	0	0	0
Carpal Tunnel Syndrome (CTS)	5	0	5
Castleman Disease (CD)	3	1	4
Catheter	2	1	3
Cauda Equina Syndrome	0	0	0
Celiac Disease (CCD)	6	0	6
Cellulitis	1	1	2
Central Pain Syndrome (CPS)	3	0	3
Cerebellar Atrophy	0	0	0
Cerebral Amyloid Angiopathy	0	0	0
Cerebral Cavernous Malformations (CCMs)	0	0	0
Cerebral Palsy (CP)	0	2	2
Cervical Cancer	3	0	3
Cervical Dystonia	0	0	0
Charge Syndrome	1	0	1
Chiari Malformation (CM)	1	0	1
Chilblains (Pernio)	0	0	0
Chronic cough	0	0	0
Chronic Fatigue Syndrome (CFS	50	4	54
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	13	6	19
Chronic Intestinal Pseudo-obstruction (CIPO)	3	0	3
Chronic obstructive pulmonary disease (COPD)	84	25	109
Chronic Pain	128	36	164
Chronic Venous Insufficiency (CVI)	4	2	6
Cleft	0	0	0
Clostridium difficile (C Diff)	1	0	1
Clubfoot	2	1	3
Cluster Headache	4	3	7
Coffin-Lowry Syndrome (CLS)	0	0	0
Cognitive Impairment (CI)	0	3	3
Colon Polyps	0	0	0
Colonic Inertia	0	0	0
Color Blind	0	0	0
Colorectal (Colon) Cancer	8	4	12
Complex Regional Pain Syndrome (CRPS	9	1	10
Congenital Adrenal Hyperplasia (CAH)	3	0	3
Congenital Central Hypoventilation Syndrome (CCHS)	1	0	1
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	1	0	1
Congenital Sucrase-Isomaltase Deficiency (CSID)	1	0	1
Constipation	5	1	6
Conversion Disorder (CD)	0	0	0
Coronavirus (COVID-19)	20	1	21
Cortical Dysplasia	0	0	0
Costochondritis	0	0	0
Cowden Syndrome (CS)	0	0	0
Craniocervical Instability (CCI)	2	0	2
Craniosynostosis	1	0	1
Crohn's Disease (CD)	22	1	23
Cushing's Syndrome (Hypercortisolism)	4	1	5
Cyclic Vomiting Syndrome (CVS)	0	0	0
Cystic Fibrosis (CF)	3	0	3
Cystic Hygroma	0	0	0
Cystinosis	0	0	0
Cytomegalovirus (CMV)	1	0	1
Dandy Walker Syndrome (DWS)	0	0	0
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	0	0	0
Deep Vein Thrombosis (DVT)	8	0	8
Degenerative Disc Disease (DDD)	23	6	29
Deletion Duplication Syndrome	0	0	0
Delta-Storage Pool Deficiency	0	0	0
Depression	344	39	383
Dercum's Disease (adiposis dolorosa)	0	0	0
Dermatomyositis (DM)	1	0	1
Desmoid Tumor	0	0	0
Developmental Delay (DD)	1	6	7
Diabetes (DM)	171	73	244
Disabled	1	1	2
Disruptive Mood Dysregulation Disorder (DMDD)	2	0	2
Dissociative Identity Disorder (DID	17	2	19
Diverticulitis	3	0	3
Down Syndrome (DS)	1	0	1
Dry Mouth	0	0	0
Duodenitis	1	0	1
Dupuytren's Contracture	0	0	0
Dwarfism	0	0	0
Dysarthria (Slurred Speech)	0	0	0
Dysautonomia	25	0	25
Dyskeratosis Congenita	0	0	0
Dyslexia	5	0	5
Dysmenorrhea (Painful Menstruation)	6	0	6
Dysphagia (Difficulty Swallowing)	3	1	4
Dystonia	2	0	2
Ear Cancer	0	0	0
Eating Disorder	26	0	26
Eczema (Atopic Dermatitis)	37	2	39
Edema	2	5	7
Ehlers-Danlos Syndrome (EDS)	24	0	24
Elephantiasis (Lymphatic Filariasis)	2	0	2
Empty Sella Syndrome (ESS)	0	0	0
Encephalitis	2	1	3
Encephalocele	1	0	1
Endometrial Cancer	1	2	3
Endometriosis	31	0	31
Enlarged Spleen (Splenomegaly)	1	0	1
Enteric Hyperoxaluria	1	0	1
Eosinophilic Colitis (EC)	2	0	2
Eosinophilic Esophagitis (EOE)	2	0	2
Eosinophilic Gasteroenteritis (EG)	1	0	1
Epicondylitis (Tennis Elbow)	1	0	1
Epidermolysis Bullosa (EB)	2	0	2
Epilepsy	32	26	58
Epithelial Basement Membrane Dystrophy	1	0	1
Epstein Barr Syndrome (EBV)	3	0	3
Erb's Palsy	2	0	2
Erectile Dysfunction (ED)	4	0	4
Erythema Nodosum	0	0	0
Erythromelalgia	0	0	0
Esophageal Atresia (EA)	0	0	0
Esophageal Cancer	0	1	1
Esophageal Varices	0	0	0
Essential Thrombocythemia	1	0	1
Essential Tremor	4	2	6
Ewing's Sarcoma	0	0	0
Exocrine Pancreatic Insufficiency (EPI)	3	0	3
Eye Cancer	1	1	2
Fabry disease	1	0	1
Factor V Leiden	0	0	0
Failure to Thrive (FTT)	0	1	1
Familial Adenomatous Polyposis (FAP)	0	0	0
Familial Chylomicronemia Syndrome (FCS)	0	0	0
Familial Hypercholesterolemia (FH)	5	0	5
Familial Mediterranean Fever (FMF)	0	0	0
Fatty Oxidation Disorder (FAOD)	0	0	0
Feeding Tube	1	1	2
Fetal Alcohol Syndrome (FAS)	1	3	4
Fibrocystic Breasts	0	0	0
Fibrodysplasia Ossificans Progressiva (FOP)	3	0	3
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	1	0	1
Fibromyalgia (FM)	87	10	97
Fibrosing Mediastinitis	0	0	0
Fibrous Dysplasia	1	0	1
Fistula	1	0	1
Foot Drop	0	0	0
FOXG1 Syndrome	0	0	0
Fragile X Syndrome (FXS)	0	1	1
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	0	0	0
Friedreich's Ataxia (FA)	0	0	0
Functional Neurological Disorder (FND)	6	1	7
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	0	0	0
Galactosemia	1	0	1
Gall Stones	9	1	10
Ganglioneuroblastoma	1	0	1
Gastric Bypass	7	0	7
Gastric Dysmotility	2	0	2
Gastritis	29	4	33
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	23	2	25
Gastrointestinal Stromal Tumor (GIST)	1	0	1
Gastroparesis (GP)	9	0	9
Gastroschisis	1	0	1
Gaucher Disease (GD)	1	0	1
Gender Dysphoria	4	0	4
Giant Cell Arteritis (GCA)	0	0	0
Glucose Transporter Deficiency (GLUT1DS)	0	0	0
Gluten Intolerance	1	0	1
Glycogen Storage Disease (GSD)	0	0	0
Goiter	0	0	0
Goldenhar Syndrome	0	0	0
Gout	18	1	19
Graft Versus Host Disease (GVHD)	0	0	0
Granular Cell Tumors	0	0	0
Granuloma Annulare (GA)	0	0	0
Grave's Disease (GD)	7	0	7
Guillain-Barre Syndrome (GBS)	4	0	4
Hansen's Disease (Leprosy)	0	0	0
Hashimoto's Disease (HT)	52	5	57
Head and Neck Cancer	1	0	1
Headache	43	6	49
Hearing Aid	8	0	8
Hearing Loss	26	3	29
Heart Disease	97	59	156
HELLP Syndrome	0	0	0
Hemangioma	2	1	3
Hemihyperplasia	0	0	0
Hemochromatosis (Iron Overload)	4	0	4
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	4	1	5
Hemorrhoids	6	0	6
Hepatitis	10	1	11
Hereditary alpha-tryptasemia (H?T)	1	0	1
Hereditary Angioedema (HAE)	0	1	1
Hereditary hemorrhagic telangiectasia (HHT)	1	0	1
Hereditary Spastic Paraparesis (HSP)	4	2	6
Hereditary Spastic Paraplegia (HSP)	3	1	4
Hernia	11	1	12
Herpes (HSV)	5	0	5
Hidradenitis Suppurativa (HS)	7	0	7
High Blood Pressure (Hypertension	184	57	241
High Cholesterol (Hyperlipidemia)	29	9	38
Hip Dysplasia	4	2	6
Hip Replacement	6	3	9
Hirschsprung's Disease (HD	0	0	0
Hirsutism	2	0	2
HIV	8	4	12
Hodgkins Lymphoma	1	1	2
Holoprosencephaly (HPE)	0	0	0
Homocystinuria (HCU)	0	0	0
Horner Syndrome	0	0	0
Human Growth Hormone Deficiency (GHD)	0	0	0
Human Papillomavirus (Human Papillomavirus (HPV)	3	0	3
Huntington's Disease (HD)	0	0	0
Hydrocephalus	0	0	0
Hyper-IgA Syndrome	0	0	0
Hyperaldosteronism	1	0	1
Hyperemesis Gravidarum (HG	1	0	1
Hypereosinophilic Syndrome (HES)	0	0	0
Hyperhidrosis	6	1	7
Hyperkalemia	3	0	3
Hypermobility Syndrome	13	0	13
Hyperoxaluria	0	0	0
Hyperparathyroidism	0	1	1
Hypersomnia	6	0	6
Hyperthyroidism	2	0	2
Hypocalcemia	0	0	0
Hypoglycemia (Low Blood Sugar)	2	0	2
Hypogonadism (Low Testosterone)	1	0	1
Hypohidrotic Ectodermal Dysplasia (HED)	1	0	1
Hypokalemia	1	1	2
Hypokalemic Periodic Paralysis	0	0	0
Hyponatremia	0	1	1
Hypoparathyroidism	2	1	3
Hypophosphatasia (HPP)	0	1	1
Hypoplasia of the Corpus Callosum	0	0	0
Hypothyroidism	73	5	78
Hypotonia	8	1	9
Hypoxic Ischemic Encephalopathy (HIE)	0	1	1
Hysterectomy	0	0	0
Ichthyosis	0	0	0
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	0	0	0
Immune Thrombocytopenic Purpura (ITP)	2	1	3
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	0	1	1
Incontinence	22	15	37
Incontinentia Pigmenti (IP)	0	0	0
Infertility	0	0	0
Insomnia	24	3	27
Intellectual Disability	0	2	2
Intermittent Explosive Disorder (IED)	0	0	0
Interstitial Cystitis (IC)	1	0	1
Interstitial Lung Disease (ILD)	0	0	0
Intracranial Hemorrhage (Brain Bleeds)	1	2	3
Intracranial Hypertension (IH	2	0	2
intracranial Pressure (ICP)	0	0	0
Iritis	0	0	0
Irritable Bowel Syndrome (IBS)	42	4	46
Ischemic Colitis	0	0	0
Jansen's Metaphyseal Chondrodysplasia	0	0	0
Juvenile Arthritis (JA)	1	0	1
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	1	0	1
Kawasaki Disease	1	1	2
Keratosis Pilaris (follicular keratosis)	1	0	1
Kidney Disease	32	11	43
Klinefelter Syndrome (XXY Syndrome)	1	0	1
Klippel-Feil Syndrome (KFS)	0	0	0
Klippel-Trenaunay Syndrome (KTS)	0	0	0
Knee Replacement	6	5	11
Lactose Intolerance	11	1	12
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	1	0	1
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	0	0	0
Larsen syndrome	0	0	0
Laryngeal Cancer	2	0	2
Laryngomalacia	2	0	2
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	0	0	0
Learning Disability	0	0	0
Legg-Calve-Perthes Disease (LCPD)	0	0	0
Leiomyosarcoma	0	0	0
LEOPARD Syndrome	0	0	0
Leukemia	3	3	6
Leukocytosis	2	0	2
Leukodystrophy	0	0	0
Leukopenia	0	0	0
Lichen Planus	1	0	1
Lichen Sclerosus (LS)	2	0	2
Lipedema	24	3	27
Lipodystrophy	0	0	0
Liposarcoma	1	0	1
Lissencephaly	0	0	0
Livedo Reticularis (LR)	0	0	0
Liver Cancer	1	4	5
Liver Disease (not hepatitis)	14	2	16
Loeys Dietz Syndrome	0	0	0
Loin Pain Hematuria Syndrome (LPHS)	2	0	2
Loss of Mobility	4	2	6
Low Blood Pressure (Hypotension)	4	0	4
Low Testosterone	2	0	2
Lung Cancer	3	9	12
Lung Disease	7	2	9
Lupus	20	1	21
Lyme Disease	2	0	2
Lymphatic Malformation (LM)	0	0	0
Lymphedema	20	4	24
Lymphocytic Colitis	1	0	1
Lymphoma	2	0	2
Lymphoproliferative Disease (LPD)	0	1	1
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	0	0	0
Macular Degeneration	5	1	6
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	0	0	0
Malabsorption	1	0	1
Malignant Hyperthermia (MH)	1	0	1
Maple Syrup Urine Disease (MSUD)	0	0	0
Marfan Syndrome (MFS)	2	0	2
Mastocytosis (Mast Cell Activating Disease	7	0	7
May Thurner Syndrome	2	0	2
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	0	0	0
McCune-Albright Syndrome (MAS)	1	0	1
Median arcuate ligament syndrome (MALS)	1	0	1
Memory Loss	1	3	4
Meniere's Disease (MD)	2	1	3
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	8	0	8
Menorrhagia (Heavy Menstrual Bleeding	3	0	3
Mental Illness	17	7	24
Mesothelioma	1	0	1
Metabolic Syndrome	0	0	0
Metatarsalgia	0	0	0
Methicillin-Resistant Staphylococcus Aureus (MRSA)	0	0	0
Microcephaly	0	1	1
Microscopic Colitis	1	0	1
Microtia	0	0	0
Migraine	119	6	125
Misophonia	1	0	1
Mitochondrial Disease	0	0	0
Mixed Connective Tissue Disease (MCTD)	1	0	1
Moebius Syndrome	2	0	2
Monoclonal gammopathy of undetermined significance (MGUS)	1	0	1
Mood Disorder	2	0	2
Morgellons Disease (MD)	0	0	0
Moyamoya Disease	0	0	0
MTHFR	0	0	0
Mucopolysaccharidoses (MPS)	0	0	0
Multiple Endocrine Neoplasia (MEN)	0	1	1
Multiple Myeloma (MM)	1	1	2
Multiple Sclerosis (MS)	46	13	59
Multiple System Atrophy (MSA)	0	0	0
Muscle Spasms	4	1	5
Muscle Tension Dysphonia (MTD)	0	0	0
Muscular Dystrophy (MD)	3	3	6
Myasthenia Gravis (MG)	6	3	9
Mycobacterium Avium Complex (MAC)	0	0	0
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	2	0	2
Myelodysplastic syndrome (MDS)	1	0	1
Myelofibrosis	0	0	0
Myeloproliferative Neoplasms	1	0	1
Myopathy	1	0	1
Myositis	4	0	4
Narcolepsy	5	0	5
Nasal Polyps	1	0	1
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	0	0	0
Neck Surgery	0	1	1
Netherton Syndrome (NS)	0	0	0
Neuralgia	6	0	6
Neuroblastoma	0	0	0
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	0	0	0
Neurofibromatosis (NF)	1	0	1
Neurogenic Bladder	3	0	3
Neurogenic Bowel	2	0	2
Neuromyelitis optica (NMO)	0	0	0
Neuropathy	34	10	44
Neurotrophic Keratitis	0	0	0
Neutropenia	1	0	1
Niemann-Pick Disease	0	0	0
Non-Hodgkin's Lymphoma (NHL)	1	0	1
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	0	0	0
Nonspecific Interstitial Pneumonia (NSIP)	0	0	0
Nontuberculous Mycobacterial (NTM)	0	0	0
Noonan Syndrome (NS)	0	0	0
Obesity	75	16	91
Obsessive Compulsive Disorder (OCD)	11	2	13
Oppositional Defiant Disorder (ODD)	0	0	0
Oral Cancer	2	1	3
Organ Transplant	4	1	5
Organic Acidemia (OA)	0	0	0
Osteoarthritis (OA)	109	27	136
Osteogenesis Imperfecta (OI)	0	0	0
Osteomyelitis (OM)	2	1	3
Osteopenia	7	0	7
Osteoporosis	23	15	38
Ostomy	0	0	0
Other	89	34	123
Ovarian Cancer	3	1	4
Ovarian Cyst	1	0	1
Overactive Bladder (OAB)	11	1	12
Paget's	0	0	0
Palmoplantar Pustulosis	0	0	0
Pancreatic Cancer	3	1	4
Pancreatitis	10	2	12
Paraganglioma	0	0	0
Paralysis	17	9	26
Paraneoplastic Syndrome	0	0	0
Parkinson's Disease (PD)	4	18	22
Paroxysmal Nocturnal Hemoglobinuria (PNH)	1	0	1
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	3	0	3
Pelvic Congestion Syndrome (PCS)	1	0	1
Pelvic Floor Dysfunction	1	0	1
Pelvic Inflammatory Disease (PID)	0	0	0
Pemphigus / Pemphigoid	0	1	1
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	1	0	1
Periodontitis (Gum Disease)	8	1	9
Perivascular Epithelioid Cell Tumour (PEComas)	0	0	0
Periventricular Leukomalacia (PVL)	2	0	2
Persistent Genital Arousal Disorder	1	0	1
Personality Disorder	7	2	9
Peyronie's Disease (Penile Fibrosis)	0	0	0
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	0	0	0
Pheochromocytoma (PCC)	0	0	0
Pierre Robin Sequence (PRS)	0	0	0
Pituitary Tumor	0	0	0
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	3	0	3
Pneumonia	2	1	3
Poland Syndrome	0	0	0
Polio	1	0	1
Polychondritis	0	1	1
Polycystic Ovarian Syndrome (PCOS)	17	1	18
Polycythemia Vera (PV)	1	0	1
Polymicrogyria (PMG)	0	0	0
Polymyalgia Rheumatica (PMR)	3	0	3
Polymyositis (PM)	0	0	0
Pompe Disease	0	0	0
Popliteal Artery Entrapment Syndrome (PAES)	0	0	0
Porphyria	1	0	1
Post-Polio Syndrome (PPS)	0	0	0
Posttraumatic Stress Disorder (PTSD)	110	12	122
Pre-exposure Prophylaxis (PrEP)	0	0	0
Precocious Puberty	0	0	0
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	0	0	0
Premenstrual Dysphoric Disorder (PMDD)	5	0	5
Primary Ciliary Dyskinesia (PCD)	3	0	3
Primary Hyperoxaluria (PH)	1	0	1
Primary Immunodeficiency (PIDD)	3	0	3
Primary Peritoneal	0	0	0
Progressive Multifocal Leukoencephalopathy (PML)	0	0	0
Progressive Supranuclear Palsy (PSP)	1	2	3
Prolactinoma	3	0	3
Prostate Cancer	2	5	7
Protein Deficiency	1	0	1
Proteinuria (Protein in Urine)	0	0	0
Prurigo Nodularis (PN)	1	0	1
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	37	1	38
Psoriatic Arthritis (PsA)	7	0	7
Ptosis (Drooping eye	1	0	1
Pulmonary Arterial Hypertension (PAH)	6	0	6
Pulmonary Embolism (PE)	13	1	14
Pulmonary Fibrosis (PF)	1	0	1
Pyloric Stenosis (Gastric Outlet Obstruction)	1	0	1
Pyoderma Gangrenosum (PG)	1	0	1
Pyruvate Kinase Deficiency (PKD)	0	0	0
Raynaud's Syndrome	6	1	7
Rectal Cancer (CRC)	0	1	1
Rectocele	0	0	0
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	1	2	3
Respiratory Disease	191	37	228
Respiratory Syncytial Virus (RSV) Infection	0	0	0
Restless Leg Syndrome (RLS)	21	2	23
Retroperitoneal Fibrosis	0	0	0
Rheumatoid Arthritis (RA)	47	19	66
Rickets (Osteomalacia)	1	0	1
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	6	0	6
Rubella- German Measles	0	0	0
Sacroiliac Joint Disease (SI)	0	0	0
Sarcoidosis	5	1	6
Sarcoma	0	0	0
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	1	0	1
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	1	0	1
Schizophrenia	12	4	16
Sciatica	4	1	5
Scleroderma	6	1	7
Sclerosing Peritonitis (SP)	0	0	0
Scoliosis	36	4	40
Secondary Adrenal insufficiency	11	2	13
Secondary Immune Deficiency (SID)	0	0	0
Sensory Processing Disorder (SPD)	1	0	1
Sepsis	0	1	1
Sexually Transmitted Disease (STD)	0	0	0
Shaken Baby Syndrome (SBS)	0	0	0
Shingles (Herpes Zoster)	5	0	5
Short Bowel Syndrome (SBS	2	0	2
Shoulder Replacement	0	0	0
Sickle Cell Disease (SCD)	2	0	2
Sickle Cell Trait (SCT)	2	0	2
Sinusitis	10	0	10
Sjogren's Syndrome (SjS	5	0	5
Skin Cancer	9	3	12
Sleep Apnea (OSA)	21	3	24
Sleep Disorder	41	3	44
Small for Gestational Age SGA)	0	0	0
Small Intestinal Bacterial Overgrowth (SIBO)	2	0	2
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	0	0
Spasmodic Dysphonia	0	0	0
Spastic Diplegia	0	0	0
Spasticity	5	2	7
Speech Impairment	2	1	3
Spherocytosis	0	0	0
Sphincter of Oddi Dysfunction	1	0	1
Spina Bifida (SB)	2	0	2
Spinal Cancer	0	0	0
Spinal Cord	51	9	60
Spinal Muscular Atrophy (SMA)	1	2	3
Sprengel Deformity	1	0	1
Stickler Syndrome	0	0	0
Stiff Person Syndrome (SPS)	1	0	1
Stomach (Gastric) Cancer	0	4	4
Stomach Ulcer	1	1	2
Stroke	31	35	66
Subcortical Band Heterotopia	0	0	0
Subglottic Stenosis (SGS)	1	0	1
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	0	0	0
Syncope	2	0	2
Synesthesia	1	0	1
Syringomyelia	2	0	2
Tardive Dyskinesia (TD)	0	0	0
Tarlov Cysts	2	0	2
Tay Sachs (TSD)	0	0	0
Temporomandibular joint (TMJ)	7	0	7
Tendonitis	1	0	1
Tenosynovial Giant Cell Tumor (TGCT)	0	0	0
Testicular Cancer	0	0	0
Thalassemia	1	0	1
Thoracic Outlet Syndrome (TOS)	0	0	0
Throat Cancer	1	0	1
Thrombocytopenia (TCP)	1	0	1
Thrombotic Thrombocytopenic Purpura (TTP)	1	0	1
Thyroid Cancer	1	0	1
Thyroid Eye Disease (TED)	0	0	0
Thyroid Nodule	10	0	10
Thyroidectomy	0	0	0
Tics	2	0	2
Tongue Cancer	0	0	0
Tooth Agenesis (Anodontia)	0	0	0
Torticollis (Wry Neck)	0	0	0
Tourette Syndrome (TS)	3	0	3
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	0	0	0
Tracheomalacia	0	0	0
Transient Global Amnesia (TGA)	0	0	0
Traumatic Brain Injury (TBI)	1	0	1
Treacher Collins syndrome (TCS)	1	0	1
Trichotillomania (TTM)	2	0	2
Trigger Finger (Stenosing Tenosynovitis)	0	0	0
Trisomy 13 (Patau Syndrome)	0	0	0
Trisomy 18 (Edwards Syndrome)	0	0	0
Trisomy X (XXX)	0	1	1
Tuberculosis	4	0	4
Ulcerative Colitis (UC)	15	3	18
Undifferentiated Connective Tissue Disease (UCTD)	2	0	2
Urea Cycle Disorder (UCD)	0	0	0
Urethral Prolapse	0	0	0
Urinary Tract Infection (UTI)	5	0	5
Urticaria (Hives)	11	0	11
Usher Syndrome	1	0	1
Uterine Cancer	3	0	3
Uterine Fibroids	1	0	1
Uterine Leiomyosarcoma	0	0	0
Uterine Polyps	1	0	1
Uveitis	3	0	3
VACTERL Syndrome	0	0	0
Vaginismus	0	0	0
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	2	3	5
Vasculitis	2	1	3
Velopharyngeal Insufficiency (VPI)	0	0	0
Vertebral Artery Dissection (VAD)	0	0	0
Vertigo	9	7	16
VEXAS Syndrome	0	0	0
Vision Impairment	39	12	51
Vitamin B12 Deficiency	9	1	10
Vitamin D Deficiency	6	1	7
Vitiligo	3	1	4
Vocal Cord Dysfunction (VCD)	2	0	2
Von Hippel-Lindau Syndrome	0	0	0
Von Willebrand Disease (VWD)	2	0	2
Vulvar Cancer	0	0	0
Vulvodynia	0	0	0
Waldenstrom s Macroglobulinemia(WM	0	0	0
Wegener's Granulomatosis with Polyangiitis (GPA)	1	0	1
Wheelchair	13	6	19
Williams Syndrome (WS)	0	0	0
Wilson's Disease (hepatolenticular degeneration)	1	0	1
Wolf-Hirschhorn Syndrome (WHS)	1	0	1
Wolff-Parkinson-White (WPW) Syndrome	1	0	1
X-Linked Hypophosphatemia (XLH)	1	0	1
Zoon vulvitis	0	0	0

Italy


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	4	1	5
Acne	19	4	23
Acoustic Neuroma (Vestibula Schwannoma)	2	0	2
Acromegaly	4	1	5
Adams-Oliver Syndrome (AOS)	0	0	0
Addiction	28	10	38
Addison's Disease (Adrenal insufficiency)	11	2	13
Adenomyosis	33	2	35
Adhesive Capsulitis (Frozen Shoulder)	7	1	8
Adrenal Cortical Carcinoma (ACC)	1	2	3
Agenesis of the Corpus Callosum (ACC)	0	1	1
Aicardi Syndrome	0	0	0
Alagille Syndrome (AS)	0	0	0
Albinism	0	0	0
Alice in Wonderland Syndrome (AWS)	0	0	0
Alkaptonuria	0	0	0
Allergies	319	63	382
Alopecia	34	9	43
Alpha 1 Antitrypsin Deficiency (A1AD)	2	0	2
Alpha-Mannosidosis	0	0	0
Alternating Hemiplegia of Childhood (AHC)	1	0	1
Alzheimer's Disease (AD)	10	227	237
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	8	1	9
Amputation	2	6	8
Amyloidosis	1	2	3
Amyotrophic Lateral Sclerosis (ALS)	2	19	21
Anal Cancer	0	2	2
Anemia	125	30	155
Aneurysm	24	8	32
Anhidrosis (Hypohydrosis)	0	0	0
Ankylosing Spondylitis (AS)	42	6	48
Anosmia (loss of smell)	3	2	5
Anoxic Brain Injury	0	0	0
Antiphospholipid Syndrome (APS)	13	2	15
Antisynthetase Syndrome	1	0	1
Anxiety	457	85	542
Aortic Disease	20	15	35
Aphantasia	0	0	0
Aphasia	1	3	4
Aplastic Anemia (AA)	2	0	2
Appendix Cancer	1	0	1
Apraxia	0	1	1
Arachnoid Cyst	0	0	0
Arachnoiditis	2	1	3
Arteriovenous Malformation (AVM)	5	1	6
Arthrogryposis Multiplex Congenita (AMC)	1	1	2
Aspirin-like defect (ALD)	0	0	0
Asthma	313	59	372
Ataxia	3	4	7
Atrial Fibrillation (AFIB)	41	31	72
Atrophic Vaginitis	1	0	1
Attention Deficit Hyperactivity Disorder (ADHD	101	25	126
Atypical Hemolytic Uremic Syndrome (aHUS)	1	0	1
Auditory Processing Disorder (APD)	2	0	2
Autism Spectrum Disorder (ASD)	30	52	82
Autoimmune	354	77	431
Autoimmune Encephalitis (AE)	0	2	2
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	8	2	10
Bardet Biedl Syndrome (BBS)	0	0	0
Barrett's Esophagus	3	0	3
Barth Syndrome (BTHS)	0	0	0
Bartonella	0	0	0
Batten Disease	0	0	0
Beckwith-Wiedemann Syndrome (BWS)	0	0	0
Behcet's Disease (BD)	10	4	14
Bell's Palsy	0	0	0
Benign Prostatic Hyperplasia (BPH	38	6	44
Beta Thalassemia (Cooley s Anemia)	9	4	13
Bile Acid Malabsorption (BAD)	0	0	0
Bile Duct Cancer (Cholangiocarcinoma)	1	2	3
Bipolar	147	45	192
Bladder Cancer	10	5	15
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	22	14	36
Blood Clot	14	6	20
Blood Clotting Disorder	13	5	18
Blount's Disease	0	0	0
Bone Cancer	5	3	8
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	1	0	1
Borderline Personality Disorder (BPD)	74	12	86
Brain Aneurysm	20	4	24
Brain Cancer	3	1	4
Brain Damage	3	2	5
Brain Tumor	18	5	23
BRCA Mutation	3	1	4
Breast Cancer (BC)	132	27	159
Breast Cancer in Men	1	0	1
Breast Implant Illness	0	0	0
Bronchiectasis	8	0	8
Bronchitis	34	8	42
Bronchopulmonary Dysplasia (BPD)	2	0	2
Bulging Disc	30	7	37
Bursitis	7	0	7
Calcinosis	0	0	0
Calciphylaxis	0	0	0
Campomelic Dysplasia	1	0	1
Cancer	270	94	364
Candidiasis (Yeast Infection)	17	3	20
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	37	10	47
Cardiofaciocutaneous Syndrome (CFC syndrome)	1	0	1
Carnitine Deficiency	1	1	2
Caroli Disease	0	0	0
Carpal Tunnel Syndrome (CTS)	37	7	44
Castleman Disease (CD)	0	4	4
Catheter	2	2	4
Cauda Equina Syndrome	4	0	4
Celiac Disease (CCD)	80	20	100
Cellulitis	3	0	3
Central Pain Syndrome (CPS)	3	0	3
Cerebellar Atrophy	0	0	0
Cerebral Amyloid Angiopathy	0	0	0
Cerebral Cavernous Malformations (CCMs)	2	0	2
Cerebral Palsy (CP)	0	5	5
Cervical Cancer	6	3	9
Cervical Dystonia	8	0	8
Charge Syndrome	0	1	1
Chiari Malformation (CM)	16	6	22
Chilblains (Pernio)	0	0	0
Chronic cough	0	1	1
Chronic Fatigue Syndrome (CFS	74	10	84
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	12	5	17
Chronic Intestinal Pseudo-obstruction (CIPO)	2	0	2
Chronic obstructive pulmonary disease (COPD)	78	38	116
Chronic Pain	176	39	215
Chronic Venous Insufficiency (CVI)	35	9	44
Cleft	3	0	3
Clostridium difficile (C Diff)	0	0	0
Clubfoot	3	3	6
Cluster Headache	35	6	41
Coffin-Lowry Syndrome (CLS)	0	0	0
Cognitive Impairment (CI)	2	5	7
Colon Polyps	3	1	4
Colonic Inertia	2	0	2
Color Blind	4	1	5
Colorectal (Colon) Cancer	23	8	31
Complex Regional Pain Syndrome (CRPS	3	0	3
Congenital Adrenal Hyperplasia (CAH)	4	0	4
Congenital Central Hypoventilation Syndrome (CCHS)	0	0	0
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	6	0	6
Congenital Sucrase-Isomaltase Deficiency (CSID)	0	1	1
Constipation	25	6	31
Conversion Disorder (CD)	4	1	5
Coronavirus (COVID-19)	19	6	25
Cortical Dysplasia	0	0	0
Costochondritis	2	0	2
Cowden Syndrome (CS)	2	0	2
Craniocervical Instability (CCI)	12	3	15
Craniosynostosis	0	0	0
Crohn's Disease (CD)	49	15	64
Cushing's Syndrome (Hypercortisolism)	6	1	7
Cyclic Vomiting Syndrome (CVS)	3	1	4
Cystic Fibrosis (CF)	6	6	12
Cystic Hygroma	0	0	0
Cystinosis	1	1	2
Cytomegalovirus (CMV)	1	0	1
Dandy Walker Syndrome (DWS)	1	0	1
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	1	1	2
Deep Vein Thrombosis (DVT)	32	8	40
Degenerative Disc Disease (DDD)	35	4	39
Deletion Duplication Syndrome	2	4	6
Delta-Storage Pool Deficiency	0	0	0
Depression	484	106	590
Dercum's Disease (adiposis dolorosa)	2	0	2
Dermatomyositis (DM)	7	0	7
Desmoid Tumor	1	1	2
Developmental Delay (DD)	0	3	3
Diabetes (DM)	641	279	920
Disabled	8	8	16
Disruptive Mood Dysregulation Disorder (DMDD)	2	2	4
Dissociative Identity Disorder (DID	5	0	5
Diverticulitis	53	14	67
Down Syndrome (DS)	0	8	8
Dry Mouth	1	0	1
Duodenitis	3	0	3
Dupuytren's Contracture	2	1	3
Dwarfism	2	1	3
Dysarthria (Slurred Speech)	0	1	1
Dysautonomia	11	3	14
Dyskeratosis Congenita	0	0	0
Dyslexia	6	3	9
Dysmenorrhea (Painful Menstruation)	30	4	34
Dysphagia (Difficulty Swallowing)	17	14	31
Dystonia	4	1	5
Ear Cancer	0	0	0
Eating Disorder	85	22	107
Eczema (Atopic Dermatitis)	95	11	106
Edema	3	0	3
Ehlers-Danlos Syndrome (EDS)	12	2	14
Elephantiasis (Lymphatic Filariasis)	1	0	1
Empty Sella Syndrome (ESS)	1	1	2
Encephalitis	1	0	1
Encephalocele	0	0	0
Endometrial Cancer	1	3	4
Endometriosis	178	24	202
Enlarged Spleen (Splenomegaly)	4	1	5
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	2	0	2
Eosinophilic Esophagitis (EOE)	7	2	9
Eosinophilic Gasteroenteritis (EG)	5	1	6
Epicondylitis (Tennis Elbow)	9	1	10
Epidermolysis Bullosa (EB)	4	1	5
Epilepsy	161	83	244
Epithelial Basement Membrane Dystrophy	0	0	0
Epstein Barr Syndrome (EBV)	3	0	3
Erb's Palsy	0	0	0
Erectile Dysfunction (ED)	12	1	13
Erythema Nodosum	2	0	2
Erythromelalgia	1	0	1
Esophageal Atresia (EA)	0	0	0
Esophageal Cancer	0	3	3
Esophageal Varices	3	0	3
Essential Thrombocythemia	5	1	6
Essential Tremor	10	5	15
Ewing's Sarcoma	2	1	3
Exocrine Pancreatic Insufficiency (EPI)	2	1	3
Eye Cancer	0	0	0
Fabry disease	0	0	0
Factor V Leiden	0	0	0
Failure to Thrive (FTT)	0	0	0
Familial Adenomatous Polyposis (FAP)	3	2	5
Familial Chylomicronemia Syndrome (FCS)	0	0	0
Familial Hypercholesterolemia (FH)	68	11	79
Familial Mediterranean Fever (FMF)	1	2	3
Fatty Oxidation Disorder (FAOD)	0	0	0
Feeding Tube	1	0	1
Fetal Alcohol Syndrome (FAS)	1	1	2
Fibrocystic Breasts	9	5	14
Fibrodysplasia Ossificans Progressiva (FOP)	3	0	3
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	0	0	0
Fibromyalgia (FM)	536	85	621
Fibrosing Mediastinitis	1	0	1
Fibrous Dysplasia	3	0	3
Fistula	6	2	8
Foot Drop	0	0	0
FOXG1 Syndrome	0	0	0
Fragile X Syndrome (FXS)	1	1	2
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	0	0	0
Friedreich's Ataxia (FA)	2	1	3
Functional Neurological Disorder (FND)	6	1	7
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	5	0	5
Galactosemia	0	0	0
Gall Stones	26	8	34
Ganglioneuroblastoma	0	1	1
Gastric Bypass	13	1	14
Gastric Dysmotility	2	1	3
Gastritis	132	34	166
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	209	41	250
Gastrointestinal Stromal Tumor (GIST)	3	2	5
Gastroparesis (GP)	2	1	3
Gastroschisis	0	0	0
Gaucher Disease (GD)	1	0	1
Gender Dysphoria	6	0	6
Giant Cell Arteritis (GCA)	0	1	1
Glucose Transporter Deficiency (GLUT1DS)	0	1	1
Gluten Intolerance	24	7	31
Glycogen Storage Disease (GSD)	0	1	1
Goiter	6	1	7
Goldenhar Syndrome	0	0	0
Gout	7	4	11
Graft Versus Host Disease (GVHD)	1	1	2
Granular Cell Tumors	0	1	1
Granuloma Annulare (GA)	1	0	1
Grave's Disease (GD)	18	2	20
Guillain-Barre Syndrome (GBS)	2	2	4
Hansen's Disease (Leprosy)	0	0	0
Hashimoto's Disease (HT)	331	53	384
Head and Neck Cancer	1	2	3
Headache	134	24	158
Hearing Aid	10	7	17
Hearing Loss	95	44	139
Heart Disease	397	174	571
HELLP Syndrome	0	0	0
Hemangioma	1	1	2
Hemihyperplasia	0	0	0
Hemochromatosis (Iron Overload)	3	1	4
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	26	4	30
Hemorrhoids	48	7	55
Hepatitis	51	10	61
Hereditary alpha-tryptasemia (H?T)	0	0	0
Hereditary Angioedema (HAE)	5	0	5
Hereditary hemorrhagic telangiectasia (HHT)	0	0	0
Hereditary Spastic Paraparesis (HSP)	3	5	8
Hereditary Spastic Paraplegia (HSP)	2	3	5
Hernia	207	35	242
Herpes (HSV)	12	1	13
Hidradenitis Suppurativa (HS)	20	2	22
High Blood Pressure (Hypertension	745	234	979
High Cholesterol (Hyperlipidemia)	215	47	262
Hip Dysplasia	3	0	3
Hip Replacement	6	2	8
Hirschsprung's Disease (HD	1	0	1
Hirsutism	9	1	10
HIV	39	9	48
Hodgkins Lymphoma	11	4	15
Holoprosencephaly (HPE)	0	1	1
Homocystinuria (HCU)	1	0	1
Horner Syndrome	0	0	0
Human Growth Hormone Deficiency (GHD)	13	5	18
Human Papillomavirus (Human Papillomavirus (HPV)	20	3	23
Huntington's Disease (HD)	1	3	4
Hydrocephalus	8	2	10
Hyper-IgA Syndrome	0	0	0
Hyperaldosteronism	2	0	2
Hyperemesis Gravidarum (HG	4	1	5
Hypereosinophilic Syndrome (HES)	0	0	0
Hyperhidrosis	12	2	14
Hyperkalemia	0	1	1
Hypermobility Syndrome	1	0	1
Hyperoxaluria	0	0	0
Hyperparathyroidism	11	3	14
Hypersomnia	7	0	7
Hyperthyroidism	66	11	77
Hypocalcemia	3	0	3
Hypoglycemia (Low Blood Sugar)	12	3	15
Hypogonadism (Low Testosterone)	0	0	0
Hypohidrotic Ectodermal Dysplasia (HED)	3	0	3
Hypokalemia	4	1	5
Hypokalemic Periodic Paralysis	1	0	1
Hyponatremia	0	1	1
Hypoparathyroidism	10	0	10
Hypophosphatasia (HPP)	1	0	1
Hypoplasia of the Corpus Callosum	0	1	1
Hypothyroidism	412	73	485
Hypotonia	5	2	7
Hypoxic Ischemic Encephalopathy (HIE)	1	1	2
Hysterectomy	8	2	10
Ichthyosis	2	2	4
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	0	0	0
Immune Thrombocytopenic Purpura (ITP)	7	2	9
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	4	0	4
Incontinence	30	16	46
Incontinentia Pigmenti (IP)	1	0	1
Infertility	17	3	20
Insomnia	103	16	119
Intellectual Disability	1	17	18
Intermittent Explosive Disorder (IED)	0	0	0
Interstitial Cystitis (IC)	31	6	37
Interstitial Lung Disease (ILD)	3	1	4
Intracranial Hemorrhage (Brain Bleeds)	1	2	3
Intracranial Hypertension (IH	6	2	8
intracranial Pressure (ICP)	0	0	0
Iritis	0	0	0
Irritable Bowel Syndrome (IBS)	160	28	188
Ischemic Colitis	1	0	1
Jansen's Metaphyseal Chondrodysplasia	0	0	0
Juvenile Arthritis (JA)	20	5	25
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	1	2	3
Kawasaki Disease	0	0	0
Keratosis Pilaris (follicular keratosis)	0	2	2
Kidney Disease	128	53	181
Klinefelter Syndrome (XXY Syndrome)	4	1	5
Klippel-Feil Syndrome (KFS)	0	0	0
Klippel-Trenaunay Syndrome (KTS)	1	0	1
Knee Replacement	12	6	18
Lactose Intolerance	61	7	68
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	0	0	0
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	0	0	0
Larsen syndrome	1	1	2
Laryngeal Cancer	1	0	1
Laryngomalacia	0	0	0
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	0	0	0
Learning Disability	2	5	7
Legg-Calve-Perthes Disease (LCPD)	1	0	1
Leiomyosarcoma	2	0	2
LEOPARD Syndrome	0	0	0
Leukemia	17	13	30
Leukocytosis	0	0	0
Leukodystrophy	0	0	0
Leukopenia	1	0	1
Lichen Planus	9	3	12
Lichen Sclerosus (LS)	11	2	13
Lipedema	11	1	12
Lipodystrophy	1	0	1
Liposarcoma	2	1	3
Lissencephaly	0	0	0
Livedo Reticularis (LR)	1	0	1
Liver Cancer	3	8	11
Liver Disease (not hepatitis)	59	20	79
Loeys Dietz Syndrome	0	0	0
Loin Pain Hematuria Syndrome (LPHS)	2	0	2
Loss of Mobility	12	8	20
Low Blood Pressure (Hypotension)	61	8	69
Low Testosterone	1	0	1
Lung Cancer	17	9	26
Lung Disease	37	19	56
Lupus	72	9	81
Lyme Disease	5	0	5
Lymphatic Malformation (LM)	0	0	0
Lymphedema	22	2	24
Lymphocytic Colitis	3	0	3
Lymphoma	3	1	4
Lymphoproliferative Disease (LPD)	0	0	0
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	2	1	3
Macular Degeneration	14	8	22
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	0	0	0
Malabsorption	9	4	13
Malignant Hyperthermia (MH)	0	0	0
Maple Syrup Urine Disease (MSUD)	0	0	0
Marfan Syndrome (MFS)	2	0	2
Mastocytosis (Mast Cell Activating Disease	6	3	9
May Thurner Syndrome	0	0	0
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	0	0	0
McCune-Albright Syndrome (MAS)	0	0	0
Median arcuate ligament syndrome (MALS)	0	0	0
Memory Loss	6	10	16
Meniere's Disease (MD)	9	5	14
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	47	3	50
Menorrhagia (Heavy Menstrual Bleeding	5	1	6
Mental Illness	10	8	18
Mesothelioma	0	1	1
Metabolic Syndrome	46	6	52
Metatarsalgia	1	0	1
Methicillin-Resistant Staphylococcus Aureus (MRSA)	0	0	0
Microcephaly	0	1	1
Microscopic Colitis	5	3	8
Microtia	0	0	0
Migraine	282	46	328
Misophonia	0	0	0
Mitochondrial Disease	2	1	3
Mixed Connective Tissue Disease (MCTD)	7	2	9
Moebius Syndrome	1	0	1
Monoclonal gammopathy of undetermined significance (MGUS)	10	0	10
Mood Disorder	70	9	79
Morgellons Disease (MD)	0	0	0
Moyamoya Disease	0	0	0
MTHFR	20	4	24
Mucopolysaccharidoses (MPS)	0	0	0
Multiple Endocrine Neoplasia (MEN)	4	1	5
Multiple Myeloma (MM)	10	4	14
Multiple Sclerosis (MS)	186	47	233
Multiple System Atrophy (MSA)	1	0	1
Muscle Spasms	13	3	16
Muscle Tension Dysphonia (MTD)	0	0	0
Muscular Dystrophy (MD)	14	7	21
Myasthenia Gravis (MG)	31	8	39
Mycobacterium Avium Complex (MAC)	1	0	1
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	0	0	0
Myelodysplastic syndrome (MDS)	3	2	5
Myelofibrosis	1	0	1
Myeloproliferative Neoplasms	0	0	0
Myopathy	11	4	15
Myositis	4	0	4
Narcolepsy	8	1	9
Nasal Polyps	14	2	16
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	1	0	1
Neck Surgery	1	0	1
Netherton Syndrome (NS)	0	0	0
Neuralgia	19	4	23
Neuroblastoma	1	0	1
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	4	1	5
Neurofibromatosis (NF)	10	4	14
Neurogenic Bladder	20	3	23
Neurogenic Bowel	3	0	3
Neuromyelitis optica (NMO)	3	0	3
Neuropathy	108	28	136
Neurotrophic Keratitis	0	0	0
Neutropenia	2	2	4
Niemann-Pick Disease	0	0	0
Non-Hodgkin's Lymphoma (NHL)	18	5	23
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	20	5	25
Nonspecific Interstitial Pneumonia (NSIP)	1	0	1
Nontuberculous Mycobacterial (NTM)	0	0	0
Noonan Syndrome (NS)	0	0	0
Obesity	246	43	289
Obsessive Compulsive Disorder (OCD)	47	14	61
Oppositional Defiant Disorder (ODD)	0	6	6
Oral Cancer	0	0	0
Organ Transplant	25	4	29
Organic Acidemia (OA)	0	0	0
Osteoarthritis (OA)	221	74	295
Osteogenesis Imperfecta (OI)	2	1	3
Osteomyelitis (OM)	4	1	5
Osteopenia	26	2	28
Osteoporosis	117	31	148
Ostomy	3	2	5
Other	298	62	360
Ovarian Cancer	9	0	9
Ovarian Cyst	22	2	24
Overactive Bladder (OAB)	12	2	14
Paget's	2	1	3
Palmoplantar Pustulosis	1	0	1
Pancreatic Cancer	7	5	12
Pancreatitis	13	3	16
Paraganglioma	1	1	2
Paralysis	16	13	29
Paraneoplastic Syndrome	0	0	0
Parkinson's Disease (PD)	32	59	91
Paroxysmal Nocturnal Hemoglobinuria (PNH)	2	0	2
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	0	0	0
Pelvic Congestion Syndrome (PCS)	2	1	3
Pelvic Floor Dysfunction	5	0	5
Pelvic Inflammatory Disease (PID)	4	0	4
Pemphigus / Pemphigoid	5	1	6
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	4	3	7
Periodontitis (Gum Disease)	17	5	22
Perivascular Epithelioid Cell Tumour (PEComas)	0	0	0
Periventricular Leukomalacia (PVL)	0	0	0
Persistent Genital Arousal Disorder	0	0	0
Personality Disorder	20	3	23
Peyronie's Disease (Penile Fibrosis)	0	0	0
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	1	1	2
Pheochromocytoma (PCC)	2	0	2
Pierre Robin Sequence (PRS)	0	0	0
Pituitary Tumor	16	2	18
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	7	1	8
Pneumonia	13	2	15
Poland Syndrome	1	0	1
Polio	4	4	8
Polychondritis	0	0	0
Polycystic Ovarian Syndrome (PCOS)	124	27	151
Polycythemia Vera (PV)	12	0	12
Polymicrogyria (PMG)	0	0	0
Polymyalgia Rheumatica (PMR)	6	1	7
Polymyositis (PM)	5	1	6
Pompe Disease	0	1	1
Popliteal Artery Entrapment Syndrome (PAES)	1	0	1
Porphyria	1	1	2
Post-Polio Syndrome (PPS)	2	0	2
Posttraumatic Stress Disorder (PTSD)	42	9	51
Pre-exposure Prophylaxis (PrEP)	2	0	2
Precocious Puberty	1	1	2
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	2	0	2
Premenstrual Dysphoric Disorder (PMDD)	8	0	8
Primary Ciliary Dyskinesia (PCD)	0	0	0
Primary Hyperoxaluria (PH)	0	0	0
Primary Immunodeficiency (PIDD)	8	2	10
Primary Peritoneal	1	0	1
Progressive Multifocal Leukoencephalopathy (PML)	3	2	5
Progressive Supranuclear Palsy (PSP)	0	3	3
Prolactinoma	3	0	3
Prostate Cancer	11	6	17
Protein Deficiency	3	1	4
Proteinuria (Protein in Urine)	1	0	1
Prurigo Nodularis (PN)	4	0	4
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	233	49	282
Psoriatic Arthritis (PsA)	52	7	59
Ptosis (Drooping eye	0	0	0
Pulmonary Arterial Hypertension (PAH)	13	3	16
Pulmonary Embolism (PE)	26	9	35
Pulmonary Fibrosis (PF)	12	3	15
Pyloric Stenosis (Gastric Outlet Obstruction)	4	0	4
Pyoderma Gangrenosum (PG)	1	1	2
Pyruvate Kinase Deficiency (PKD)	0	0	0
Raynaud's Syndrome	36	7	43
Rectal Cancer (CRC)	2	2	4
Rectocele	7	0	7
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	13	2	15
Respiratory Disease	398	100	498
Respiratory Syncytial Virus (RSV) Infection	0	0	0
Restless Leg Syndrome (RLS)	26	8	34
Retroperitoneal Fibrosis	0	1	1
Rheumatoid Arthritis (RA)	178	53	231
Rickets (Osteomalacia)	2	0	2
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	8	2	10
Rubella- German Measles	0	0	0
Sacroiliac Joint Disease (SI)	5	4	9
Sarcoidosis	15	0	15
Sarcoma	2	0	2
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	5	1	6
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	0	1	1
Schizophrenia	22	24	46
Sciatica	28	6	34
Scleroderma	23	4	27
Sclerosing Peritonitis (SP)	0	0	0
Scoliosis	75	24	99
Secondary Adrenal insufficiency	1	1	2
Secondary Immune Deficiency (SID)	0	0	0
Sensory Processing Disorder (SPD)	1	0	1
Sepsis	1	3	4
Sexually Transmitted Disease (STD)	0	0	0
Shaken Baby Syndrome (SBS)	0	0	0
Shingles (Herpes Zoster)	11	1	12
Short Bowel Syndrome (SBS	1	2	3
Shoulder Replacement	1	1	2
Sickle Cell Disease (SCD)	5	2	7
Sickle Cell Trait (SCT)	0	0	0
Sinusitis	52	8	60
Sjogren's Syndrome (SjS	46	4	50
Skin Cancer	41	14	55
Sleep Apnea (OSA)	72	16	88
Sleep Disorder	55	16	71
Small for Gestational Age SGA)	0	0	0
Small Intestinal Bacterial Overgrowth (SIBO)	5	2	7
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	0	0
Spasmodic Dysphonia	0	0	0
Spastic Diplegia	0	1	1
Spasticity	0	2	2
Speech Impairment	1	2	3
Spherocytosis	0	0	0
Sphincter of Oddi Dysfunction	1	1	2
Spina Bifida (SB)	8	3	11
Spinal Cancer	0	1	1
Spinal Cord	143	31	174
Spinal Muscular Atrophy (SMA)	2	3	5
Sprengel Deformity	0	0	0
Stickler Syndrome	0	0	0
Stiff Person Syndrome (SPS)	0	0	0
Stomach (Gastric) Cancer	2	3	5
Stomach Ulcer	23	10	33
Stroke	38	38	76
Subcortical Band Heterotopia	0	0	0
Subglottic Stenosis (SGS)	2	1	3
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	0	0	0
Syncope	2	1	3
Synesthesia	0	0	0
Syringomyelia	12	3	15
Tardive Dyskinesia (TD)	0	0	0
Tarlov Cysts	5	3	8
Tay Sachs (TSD)	0	1	1
Temporomandibular joint (TMJ)	7	2	9
Tendonitis	34	5	39
Tenosynovial Giant Cell Tumor (TGCT)	0	1	1
Testicular Cancer	1	1	2
Thalassemia	21	7	28
Thoracic Outlet Syndrome (TOS)	4	1	5
Throat Cancer	1	1	2
Thrombocytopenia (TCP)	14	5	19
Thrombotic Thrombocytopenic Purpura (TTP)	0	0	0
Thyroid Cancer	28	3	31
Thyroid Eye Disease (TED)	5	1	6
Thyroid Nodule	76	18	94
Thyroidectomy	13	1	14
Tics	0	0	0
Tongue Cancer	0	1	1
Tooth Agenesis (Anodontia)	0	0	0
Torticollis (Wry Neck)	0	0	0
Tourette Syndrome (TS)	3	4	7
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	0	0	0
Tracheomalacia	0	0	0
Transient Global Amnesia (TGA)	3	2	5
Traumatic Brain Injury (TBI)	4	3	7
Treacher Collins syndrome (TCS)	0	0	0
Trichotillomania (TTM)	5	2	7
Trigger Finger (Stenosing Tenosynovitis)	6	1	7
Trisomy 13 (Patau Syndrome)	0	0	0
Trisomy 18 (Edwards Syndrome)	0	0	0
Trisomy X (XXX)	0	0	0
Tuberculosis	2	1	3
Ulcerative Colitis (UC)	54	13	67
Undifferentiated Connective Tissue Disease (UCTD)	32	2	34
Urea Cycle Disorder (UCD)	0	1	1
Urethral Prolapse	1	0	1
Urinary Tract Infection (UTI)	11	0	11
Urticaria (Hives)	29	8	37
Usher Syndrome	0	0	0
Uterine Cancer	8	2	10
Uterine Fibroids	57	10	67
Uterine Leiomyosarcoma	0	0	0
Uterine Polyps	9	2	11
Uveitis	3	0	3
VACTERL Syndrome	0	1	1
Vaginismus	2	0	2
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	23	8	31
Vasculitis	28	7	35
Velopharyngeal Insufficiency (VPI)	1	0	1
Vertebral Artery Dissection (VAD)	0	0	0
Vertigo	24	3	27
VEXAS Syndrome	0	0	0
Vision Impairment	216	72	288
Vitamin B12 Deficiency	10	1	11
Vitamin D Deficiency	31	6	37
Vitiligo	26	5	31
Vocal Cord Dysfunction (VCD)	2	1	3
Von Hippel-Lindau Syndrome	0	0	0
Von Willebrand Disease (VWD)	2	2	4
Vulvar Cancer	4	0	4
Vulvodynia	26	1	27
Waldenstrom s Macroglobulinemia(WM	1	0	1
Wegener's Granulomatosis with Polyangiitis (GPA)	5	1	6
Wheelchair	41	46	87
Williams Syndrome (WS)	0	0	0
Wilson's Disease (hepatolenticular degeneration)	0	0	0
Wolf-Hirschhorn Syndrome (WHS)	0	0	0
Wolff-Parkinson-White (WPW) Syndrome	4	3	7
X-Linked Hypophosphatemia (XLH)	0	0	0
Zoon vulvitis	0	0	0

Spain


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	0	0	0
Acne	22	3	25
Acoustic Neuroma (Vestibula Schwannoma)	1	0	1
Acromegaly	1	2	3
Adams-Oliver Syndrome (AOS)	0	0	0
Addiction	29	11	40
Addison's Disease (Adrenal insufficiency)	8	0	8
Adenomyosis	5	0	5
Adhesive Capsulitis (Frozen Shoulder)	5	2	7
Adrenal Cortical Carcinoma (ACC)	0	0	0
Agenesis of the Corpus Callosum (ACC)	0	1	1
Aicardi Syndrome	0	0	0
Alagille Syndrome (AS)	0	0	0
Albinism	0	1	1
Alice in Wonderland Syndrome (AWS)	0	0	0
Alkaptonuria	0	0	0
Allergies	240	60	300
Alopecia	11	2	13
Alpha 1 Antitrypsin Deficiency (A1AD)	3	0	3
Alpha-Mannosidosis	0	0	0
Alternating Hemiplegia of Childhood (AHC)	0	0	0
Alzheimer's Disease (AD)	13	324	337
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	3	1	4
Amputation	6	8	14
Amyloidosis	1	0	1
Amyotrophic Lateral Sclerosis (ALS)	1	13	14
Anal Cancer	2	1	3
Anemia	84	30	114
Aneurysm	6	3	9
Anhidrosis (Hypohydrosis)	1	1	2
Ankylosing Spondylitis (AS)	28	7	35
Anosmia (loss of smell)	1	0	1
Anoxic Brain Injury	0	0	0
Antiphospholipid Syndrome (APS)	16	3	19
Antisynthetase Syndrome	0	0	0
Anxiety	528	155	683
Aortic Disease	4	3	7
Aphantasia	0	0	0
Aphasia	0	2	2
Aplastic Anemia (AA)	2	2	4
Appendix Cancer	0	0	0
Apraxia	0	0	0
Arachnoid Cyst	5	0	5
Arachnoiditis	0	0	0
Arteriovenous Malformation (AVM)	2	1	3
Arthrogryposis Multiplex Congenita (AMC)	1	2	3
Aspirin-like defect (ALD)	0	0	0
Asthma	267	93	360
Ataxia	2	3	5
Atrial Fibrillation (AFIB)	10	3	13
Atrophic Vaginitis	1	1	2
Attention Deficit Hyperactivity Disorder (ADHD	124	45	169
Atypical Hemolytic Uremic Syndrome (aHUS)	1	0	1
Auditory Processing Disorder (APD)	2	1	3
Autism Spectrum Disorder (ASD)	31	50	81
Autoimmune	314	119	433
Autoimmune Encephalitis (AE)	1	1	2
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	6	1	7
Bardet Biedl Syndrome (BBS)	0	0	0
Barrett's Esophagus	4	2	6
Barth Syndrome (BTHS)	0	0	0
Bartonella	0	0	0
Batten Disease	0	0	0
Beckwith-Wiedemann Syndrome (BWS)	0	0	0
Behcet's Disease (BD)	9	3	12
Bell's Palsy	0	0	0
Benign Prostatic Hyperplasia (BPH	12	5	17
Beta Thalassemia (Cooley s Anemia)	3	2	5
Bile Acid Malabsorption (BAD)	2	1	3
Bile Duct Cancer (Cholangiocarcinoma)	0	0	0
Bipolar	79	26	105
Bladder Cancer	4	6	10
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	17	9	26
Blood Clot	3	3	6
Blood Clotting Disorder	5	2	7
Blount's Disease	0	0	0
Bone Cancer	4	3	7
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	0	0	0
Borderline Personality Disorder (BPD)	115	20	135
Brain Aneurysm	9	6	15
Brain Cancer	2	3	5
Brain Damage	4	3	7
Brain Tumor	5	9	14
BRCA Mutation	2	1	3
Breast Cancer (BC)	72	27	99
Breast Cancer in Men	2	6	8
Breast Implant Illness	0	0	0
Bronchiectasis	4	0	4
Bronchitis	42	18	60
Bronchopulmonary Dysplasia (BPD)	0	1	1
Bulging Disc	10	1	11
Bursitis	11	2	13
Calcinosis	1	1	2
Calciphylaxis	0	0	0
Campomelic Dysplasia	0	0	0
Cancer	171	123	294
Candidiasis (Yeast Infection)	10	2	12
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	4	2	6
Cardiofaciocutaneous Syndrome (CFC syndrome)	0	1	1
Carnitine Deficiency	0	0	0
Caroli Disease	0	0	0
Carpal Tunnel Syndrome (CTS)	36	5	41
Castleman Disease (CD)	0	0	0
Catheter	0	1	1
Cauda Equina Syndrome	0	0	0
Celiac Disease (CCD)	28	7	35
Cellulitis	2	0	2
Central Pain Syndrome (CPS)	2	1	3
Cerebellar Atrophy	1	0	1
Cerebral Amyloid Angiopathy	0	0	0
Cerebral Cavernous Malformations (CCMs)	2	1	3
Cerebral Palsy (CP)	5	9	14
Cervical Cancer	7	0	7
Cervical Dystonia	4	1	5
Charge Syndrome	0	0	0
Chiari Malformation (CM)	6	4	10
Chilblains (Pernio)	0	0	0
Chronic cough	0	0	0
Chronic Fatigue Syndrome (CFS	128	25	153
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	2	0	2
Chronic Intestinal Pseudo-obstruction (CIPO)	1	1	2
Chronic obstructive pulmonary disease (COPD)	55	32	87
Chronic Pain	190	63	253
Chronic Venous Insufficiency (CVI)	11	12	23
Cleft	1	0	1
Clostridium difficile (C Diff)	0	0	0
Clubfoot	1	0	1
Cluster Headache	7	0	7
Coffin-Lowry Syndrome (CLS)	0	0	0
Cognitive Impairment (CI)	3	11	14
Colon Polyps	10	4	14
Colonic Inertia	0	0	0
Color Blind	1	0	1
Colorectal (Colon) Cancer	13	20	33
Complex Regional Pain Syndrome (CRPS	10	2	12
Congenital Adrenal Hyperplasia (CAH)	4	1	5
Congenital Central Hypoventilation Syndrome (CCHS)	0	0	0
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	0	0	0
Congenital Sucrase-Isomaltase Deficiency (CSID)	0	0	0
Constipation	14	6	20
Conversion Disorder (CD)	1	0	1
Coronavirus (COVID-19)	37	11	48
Cortical Dysplasia	0	0	0
Costochondritis	3	0	3
Cowden Syndrome (CS)	0	0	0
Craniocervical Instability (CCI)	5	0	5
Craniosynostosis	0	0	0
Crohn's Disease (CD)	39	11	50
Cushing's Syndrome (Hypercortisolism)	5	1	6
Cyclic Vomiting Syndrome (CVS)	0	0	0
Cystic Fibrosis (CF)	4	2	6
Cystic Hygroma	0	0	0
Cystinosis	0	0	0
Cytomegalovirus (CMV)	4	1	5
Dandy Walker Syndrome (DWS)	0	0	0
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	0	0	0
Deep Vein Thrombosis (DVT)	17	11	28
Degenerative Disc Disease (DDD)	23	6	29
Deletion Duplication Syndrome	0	4	4
Delta-Storage Pool Deficiency	0	0	0
Depression	573	193	766
Dercum's Disease (adiposis dolorosa)	2	1	3
Dermatomyositis (DM)	3	2	5
Desmoid Tumor	0	0	0
Developmental Delay (DD)	0	16	16
Diabetes (DM)	360	302	662
Disabled	6	9	15
Disruptive Mood Dysregulation Disorder (DMDD)	2	1	3
Dissociative Identity Disorder (DID	10	3	13
Diverticulitis	14	5	19
Down Syndrome (DS)	0	6	6
Dry Mouth	1	0	1
Duodenitis	0	0	0
Dupuytren's Contracture	3	0	3
Dwarfism	1	0	1
Dysarthria (Slurred Speech)	1	2	3
Dysautonomia	15	2	17
Dyskeratosis Congenita	0	0	0
Dyslexia	5	3	8
Dysmenorrhea (Painful Menstruation)	17	1	18
Dysphagia (Difficulty Swallowing)	7	10	17
Dystonia	0	2	2
Ear Cancer	0	0	0
Eating Disorder	71	18	89
Eczema (Atopic Dermatitis)	89	29	118
Edema	3	3	6
Ehlers-Danlos Syndrome (EDS)	17	2	19
Elephantiasis (Lymphatic Filariasis)	0	1	1
Empty Sella Syndrome (ESS)	2	0	2
Encephalitis	0	0	0
Encephalocele	1	0	1
Endometrial Cancer	2	2	4
Endometriosis	68	11	79
Enlarged Spleen (Splenomegaly)	1	0	1
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	0	1	1
Eosinophilic Esophagitis (EOE)	6	0	6
Eosinophilic Gasteroenteritis (EG)	1	1	2
Epicondylitis (Tennis Elbow)	8	3	11
Epidermolysis Bullosa (EB)	1	1	2
Epilepsy	89	102	191
Epithelial Basement Membrane Dystrophy	0	0	0
Epstein Barr Syndrome (EBV)	0	0	0
Erb's Palsy	0	0	0
Erectile Dysfunction (ED)	3	0	3
Erythema Nodosum	1	1	2
Erythromelalgia	0	0	0
Esophageal Atresia (EA)	0	0	0
Esophageal Cancer	0	0	0
Esophageal Varices	2	0	2
Essential Thrombocythemia	0	1	1
Essential Tremor	3	1	4
Ewing's Sarcoma	0	0	0
Exocrine Pancreatic Insufficiency (EPI)	0	0	0
Eye Cancer	0	0	0
Fabry disease	0	0	0
Factor V Leiden	0	0	0
Failure to Thrive (FTT)	0	1	1
Familial Adenomatous Polyposis (FAP)	0	0	0
Familial Chylomicronemia Syndrome (FCS)	0	0	0
Familial Hypercholesterolemia (FH)	27	11	38
Familial Mediterranean Fever (FMF)	1	1	2
Fatty Oxidation Disorder (FAOD)	0	0	0
Feeding Tube	0	3	3
Fetal Alcohol Syndrome (FAS)	0	0	0
Fibrocystic Breasts	6	0	6
Fibrodysplasia Ossificans Progressiva (FOP)	1	1	2
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	3	0	3
Fibromyalgia (FM)	469	120	589
Fibrosing Mediastinitis	0	0	0
Fibrous Dysplasia	2	0	2
Fistula	9	2	11
Foot Drop	1	0	1
FOXG1 Syndrome	0	1	1
Fragile X Syndrome (FXS)	0	0	0
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	0	0	0
Friedreich's Ataxia (FA)	1	2	3
Functional Neurological Disorder (FND)	3	1	4
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	0	0	0
Galactosemia	0	0	0
Gall Stones	6	1	7
Ganglioneuroblastoma	0	0	0
Gastric Bypass	3	1	4
Gastric Dysmotility	1	0	1
Gastritis	56	12	68
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	33	9	42
Gastrointestinal Stromal Tumor (GIST)	1	1	2
Gastroparesis (GP)	4	0	4
Gastroschisis	0	0	0
Gaucher Disease (GD)	1	0	1
Gender Dysphoria	2	0	2
Giant Cell Arteritis (GCA)	0	0	0
Glucose Transporter Deficiency (GLUT1DS)	1	1	2
Gluten Intolerance	14	3	17
Glycogen Storage Disease (GSD)	0	2	2
Goiter	1	0	1
Goldenhar Syndrome	0	0	0
Gout	8	3	11
Graft Versus Host Disease (GVHD)	0	0	0
Granular Cell Tumors	0	0	0
Granuloma Annulare (GA)	0	0	0
Grave's Disease (GD)	4	0	4
Guillain-Barre Syndrome (GBS)	4	1	5
Hansen's Disease (Leprosy)	1	0	1
Hashimoto's Disease (HT)	39	6	45
Head and Neck Cancer	0	1	1
Headache	70	20	90
Hearing Aid	3	1	4
Hearing Loss	49	21	70
Heart Disease	131	125	256
HELLP Syndrome	0	0	0
Hemangioma	3	1	4
Hemihyperplasia	0	0	0
Hemochromatosis (Iron Overload)	4	1	5
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	8	3	11
Hemorrhoids	6	1	7
Hepatitis	21	8	29
Hereditary alpha-tryptasemia (H?T)	0	0	0
Hereditary Angioedema (HAE)	3	1	4
Hereditary hemorrhagic telangiectasia (HHT)	0	0	0
Hereditary Spastic Paraparesis (HSP)	2	1	3
Hereditary Spastic Paraplegia (HSP)	0	1	1
Hernia	143	41	184
Herpes (HSV)	8	5	13
Hidradenitis Suppurativa (HS)	12	3	15
High Blood Pressure (Hypertension	372	234	606
High Cholesterol (Hyperlipidemia)	133	83	216
Hip Dysplasia	6	5	11
Hip Replacement	5	7	12
Hirschsprung's Disease (HD	0	0	0
Hirsutism	6	1	7
HIV	66	13	79
Hodgkins Lymphoma	3	0	3
Holoprosencephaly (HPE)	1	0	1
Homocystinuria (HCU)	0	0	0
Horner Syndrome	0	0	0
Human Growth Hormone Deficiency (GHD)	5	0	5
Human Papillomavirus (Human Papillomavirus (HPV)	23	5	28
Huntington's Disease (HD)	1	2	3
Hydrocephalus	3	7	10
Hyper-IgA Syndrome	0	0	0
Hyperaldosteronism	1	0	1
Hyperemesis Gravidarum (HG	0	0	0
Hypereosinophilic Syndrome (HES)	0	1	1
Hyperhidrosis	12	1	13
Hyperkalemia	0	0	0
Hypermobility Syndrome	9	2	11
Hyperoxaluria	0	0	0
Hyperparathyroidism	13	5	18
Hypersomnia	6	2	8
Hyperthyroidism	53	15	68
Hypocalcemia	4	1	5
Hypoglycemia (Low Blood Sugar)	10	5	15
Hypogonadism (Low Testosterone)	1	0	1
Hypohidrotic Ectodermal Dysplasia (HED)	0	0	0
Hypokalemia	1	1	2
Hypokalemic Periodic Paralysis	0	0	0
Hyponatremia	0	1	1
Hypoparathyroidism	4	1	5
Hypophosphatasia (HPP)	0	0	0
Hypoplasia of the Corpus Callosum	0	0	0
Hypothyroidism	262	68	330
Hypotonia	0	7	7
Hypoxic Ischemic Encephalopathy (HIE)	2	0	2
Hysterectomy	7	2	9
Ichthyosis	0	1	1
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	0	0	0
Immune Thrombocytopenic Purpura (ITP)	1	2	3
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	1	0	1
Incontinence	18	15	33
Incontinentia Pigmenti (IP)	0	0	0
Infertility	4	1	5
Insomnia	92	19	111
Intellectual Disability	1	13	14
Intermittent Explosive Disorder (IED)	0	0	0
Interstitial Cystitis (IC)	7	0	7
Interstitial Lung Disease (ILD)	1	3	4
Intracranial Hemorrhage (Brain Bleeds)	0	3	3
Intracranial Hypertension (IH	8	3	11
intracranial Pressure (ICP)	0	0	0
Iritis	0	0	0
Irritable Bowel Syndrome (IBS)	112	25	137
Ischemic Colitis	0	0	0
Jansen's Metaphyseal Chondrodysplasia	0	0	0
Juvenile Arthritis (JA)	8	1	9
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	0	0	0
Kawasaki Disease	0	0	0
Keratosis Pilaris (follicular keratosis)	1	1	2
Kidney Disease	59	44	103
Klinefelter Syndrome (XXY Syndrome)	0	0	0
Klippel-Feil Syndrome (KFS)	0	0	0
Klippel-Trenaunay Syndrome (KTS)	0	0	0
Knee Replacement	12	15	27
Lactose Intolerance	26	6	32
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	2	0	2
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	2	0	2
Larsen syndrome	0	0	0
Laryngeal Cancer	0	0	0
Laryngomalacia	0	0	0
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	0	0	0
Learning Disability	2	3	5
Legg-Calve-Perthes Disease (LCPD)	1	1	2
Leiomyosarcoma	0	0	0
LEOPARD Syndrome	0	0	0
Leukemia	10	8	18
Leukocytosis	2	1	3
Leukodystrophy	0	1	1
Leukopenia	2	0	2
Lichen Planus	6	1	7
Lichen Sclerosus (LS)	2	0	2
Lipedema	2	0	2
Lipodystrophy	2	0	2
Liposarcoma	0	0	0
Lissencephaly	0	1	1
Livedo Reticularis (LR)	1	0	1
Liver Cancer	3	2	5
Liver Disease (not hepatitis)	45	15	60
Loeys Dietz Syndrome	0	0	0
Loin Pain Hematuria Syndrome (LPHS)	14	2	16
Loss of Mobility	13	29	42
Low Blood Pressure (Hypotension)	12	3	15
Low Testosterone	2	1	3
Lung Cancer	12	12	24
Lung Disease	28	16	44
Lupus	60	13	73
Lyme Disease	3	0	3
Lymphatic Malformation (LM)	0	0	0
Lymphedema	10	3	13
Lymphocytic Colitis	2	1	3
Lymphoma	6	3	9
Lymphoproliferative Disease (LPD)	0	0	0
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	6	10	16
Macular Degeneration	3	4	7
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	0	0	0
Malabsorption	0	0	0
Malignant Hyperthermia (MH)	0	0	0
Maple Syrup Urine Disease (MSUD)	0	0	0
Marfan Syndrome (MFS)	0	0	0
Mastocytosis (Mast Cell Activating Disease	9	1	10
May Thurner Syndrome	2	0	2
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	0	0	0
McCune-Albright Syndrome (MAS)	0	0	0
Median arcuate ligament syndrome (MALS)	1	1	2
Memory Loss	11	22	33
Meniere's Disease (MD)	8	1	9
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	25	6	31
Menorrhagia (Heavy Menstrual Bleeding	4	0	4
Mental Illness	15	13	28
Mesothelioma	1	1	2
Metabolic Syndrome	4	0	4
Metatarsalgia	1	0	1
Methicillin-Resistant Staphylococcus Aureus (MRSA)	0	0	0
Microcephaly	0	1	1
Microscopic Colitis	0	0	0
Microtia	0	0	0
Migraine	326	97	423
Misophonia	0	0	0
Mitochondrial Disease	1	0	1
Mixed Connective Tissue Disease (MCTD)	1	0	1
Moebius Syndrome	0	1	1
Monoclonal gammopathy of undetermined significance (MGUS)	1	2	3
Mood Disorder	27	10	37
Morgellons Disease (MD)	0	0	0
Moyamoya Disease	0	0	0
MTHFR	0	0	0
Mucopolysaccharidoses (MPS)	0	1	1
Multiple Endocrine Neoplasia (MEN)	1	0	1
Multiple Myeloma (MM)	4	5	9
Multiple Sclerosis (MS)	90	30	120
Multiple System Atrophy (MSA)	0	0	0
Muscle Spasms	5	2	7
Muscle Tension Dysphonia (MTD)	0	0	0
Muscular Dystrophy (MD)	11	7	18
Myasthenia Gravis (MG)	8	3	11
Mycobacterium Avium Complex (MAC)	0	0	0
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	0	1	1
Myelodysplastic syndrome (MDS)	2	0	2
Myelofibrosis	2	0	2
Myeloproliferative Neoplasms	0	0	0
Myopathy	5	1	6
Myositis	1	0	1
Narcolepsy	7	2	9
Nasal Polyps	1	0	1
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	1	1	2
Neck Surgery	0	0	0
Netherton Syndrome (NS)	0	0	0
Neuralgia	28	9	37
Neuroblastoma	0	0	0
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	2	0	2
Neurofibromatosis (NF)	10	3	13
Neurogenic Bladder	6	4	10
Neurogenic Bowel	0	0	0
Neuromyelitis optica (NMO)	0	0	0
Neuropathy	39	11	50
Neurotrophic Keratitis	0	0	0
Neutropenia	1	1	2
Niemann-Pick Disease	0	0	0
Non-Hodgkin's Lymphoma (NHL)	5	2	7
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	1	2	3
Nonspecific Interstitial Pneumonia (NSIP)	1	0	1
Nontuberculous Mycobacterial (NTM)	0	0	0
Noonan Syndrome (NS)	0	0	0
Obesity	147	56	203
Obsessive Compulsive Disorder (OCD)	43	18	61
Oppositional Defiant Disorder (ODD)	1	2	3
Oral Cancer	2	1	3
Organ Transplant	9	6	15
Organic Acidemia (OA)	0	0	0
Osteoarthritis (OA)	268	124	392
Osteogenesis Imperfecta (OI)	0	1	1
Osteomyelitis (OM)	1	0	1
Osteopenia	11	2	13
Osteoporosis	59	31	90
Ostomy	0	1	1
Other	125	56	181
Ovarian Cancer	9	4	13
Ovarian Cyst	13	6	19
Overactive Bladder (OAB)	10	2	12
Paget's	2	0	2
Palmoplantar Pustulosis	1	0	1
Pancreatic Cancer	4	2	6
Pancreatitis	11	0	11
Paraganglioma	0	0	0
Paralysis	7	24	31
Paraneoplastic Syndrome	0	0	0
Parkinson's Disease (PD)	21	80	101
Paroxysmal Nocturnal Hemoglobinuria (PNH)	2	1	3
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	1	0	1
Pelvic Congestion Syndrome (PCS)	1	0	1
Pelvic Floor Dysfunction	1	0	1
Pelvic Inflammatory Disease (PID)	2	2	4
Pemphigus / Pemphigoid	2	1	3
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	2	1	3
Periodontitis (Gum Disease)	5	3	8
Perivascular Epithelioid Cell Tumour (PEComas)	0	0	0
Periventricular Leukomalacia (PVL)	1	0	1
Persistent Genital Arousal Disorder	1	0	1
Personality Disorder	27	15	42
Peyronie's Disease (Penile Fibrosis)	0	0	0
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	0	0	0
Pheochromocytoma (PCC)	0	0	0
Pierre Robin Sequence (PRS)	0	0	0
Pituitary Tumor	4	1	5
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	17	3	20
Pneumonia	9	7	16
Poland Syndrome	0	0	0
Polio	4	1	5
Polychondritis	0	0	0
Polycystic Ovarian Syndrome (PCOS)	51	7	58
Polycythemia Vera (PV)	0	1	1
Polymicrogyria (PMG)	0	0	0
Polymyalgia Rheumatica (PMR)	4	3	7
Polymyositis (PM)	0	0	0
Pompe Disease	0	0	0
Popliteal Artery Entrapment Syndrome (PAES)	0	0	0
Porphyria	0	0	0
Post-Polio Syndrome (PPS)	3	1	4
Posttraumatic Stress Disorder (PTSD)	33	7	40
Pre-exposure Prophylaxis (PrEP)	1	1	2
Precocious Puberty	1	1	2
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	0	0	0
Premenstrual Dysphoric Disorder (PMDD)	9	1	10
Primary Ciliary Dyskinesia (PCD)	0	0	0
Primary Hyperoxaluria (PH)	0	0	0
Primary Immunodeficiency (PIDD)	1	3	4
Primary Peritoneal	0	0	0
Progressive Multifocal Leukoencephalopathy (PML)	1	0	1
Progressive Supranuclear Palsy (PSP)	0	1	1
Prolactinoma	1	1	2
Prostate Cancer	13	9	22
Protein Deficiency	1	0	1
Proteinuria (Protein in Urine)	0	1	1
Prurigo Nodularis (PN)	2	0	2
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	89	33	122
Psoriatic Arthritis (PsA)	19	8	27
Ptosis (Drooping eye	3	1	4
Pulmonary Arterial Hypertension (PAH)	11	7	18
Pulmonary Embolism (PE)	6	5	11
Pulmonary Fibrosis (PF)	10	3	13
Pyloric Stenosis (Gastric Outlet Obstruction)	0	0	0
Pyoderma Gangrenosum (PG)	0	0	0
Pyruvate Kinase Deficiency (PKD)	0	0	0
Raynaud's Syndrome	32	8	40
Rectal Cancer (CRC)	1	2	3
Rectocele	1	0	1
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	4	1	5
Respiratory Disease	323	129	452
Respiratory Syncytial Virus (RSV) Infection	1	1	2
Restless Leg Syndrome (RLS)	26	4	30
Retroperitoneal Fibrosis	1	0	1
Rheumatoid Arthritis (RA)	168	70	238
Rickets (Osteomalacia)	0	0	0
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	8	1	9
Rubella- German Measles	0	0	0
Sacroiliac Joint Disease (SI)	4	1	5
Sarcoidosis	9	1	10
Sarcoma	1	0	1
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	5	2	7
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	0	0	0
Schizophrenia	27	36	63
Sciatica	27	12	39
Scleroderma	11	2	13
Sclerosing Peritonitis (SP)	1	0	1
Scoliosis	96	30	126
Secondary Adrenal insufficiency	7	6	13
Secondary Immune Deficiency (SID)	0	0	0
Sensory Processing Disorder (SPD)	2	0	2
Sepsis	0	0	0
Sexually Transmitted Disease (STD)	0	0	0
Shaken Baby Syndrome (SBS)	0	0	0
Shingles (Herpes Zoster)	5	0	5
Short Bowel Syndrome (SBS	1	0	1
Shoulder Replacement	0	0	0
Sickle Cell Disease (SCD)	0	0	0
Sickle Cell Trait (SCT)	0	0	0
Sinusitis	18	6	24
Sjogren's Syndrome (SjS	20	3	23
Skin Cancer	13	8	21
Sleep Apnea (OSA)	60	14	74
Sleep Disorder	34	14	48
Small for Gestational Age SGA)	0	1	1
Small Intestinal Bacterial Overgrowth (SIBO)	6	1	7
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	0	0
Spasmodic Dysphonia	0	0	0
Spastic Diplegia	0	0	0
Spasticity	0	2	2
Speech Impairment	3	3	6
Spherocytosis	0	0	0
Sphincter of Oddi Dysfunction	0	1	1
Spina Bifida (SB)	11	3	14
Spinal Cancer	0	0	0
Spinal Cord	193	62	255
Spinal Muscular Atrophy (SMA)	5	4	9
Sprengel Deformity	0	0	0
Stickler Syndrome	0	0	0
Stiff Person Syndrome (SPS)	0	0	0
Stomach (Gastric) Cancer	1	4	5
Stomach Ulcer	7	4	11
Stroke	41	56	97
Subcortical Band Heterotopia	0	0	0
Subglottic Stenosis (SGS)	0	0	0
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	1	0	1
Syncope	2	3	5
Synesthesia	0	0	0
Syringomyelia	2	0	2
Tardive Dyskinesia (TD)	1	0	1
Tarlov Cysts	3	1	4
Tay Sachs (TSD)	0	0	0
Temporomandibular joint (TMJ)	10	4	14
Tendonitis	43	11	54
Tenosynovial Giant Cell Tumor (TGCT)	0	0	0
Testicular Cancer	0	0	0
Thalassemia	8	1	9
Thoracic Outlet Syndrome (TOS)	1	0	1
Throat Cancer	2	1	3
Thrombocytopenia (TCP)	4	0	4
Thrombotic Thrombocytopenic Purpura (TTP)	2	0	2
Thyroid Cancer	10	5	15
Thyroid Eye Disease (TED)	2	2	4
Thyroid Nodule	13	1	14
Thyroidectomy	1	0	1
Tics	1	1	2
Tongue Cancer	0	0	0
Tooth Agenesis (Anodontia)	0	0	0
Torticollis (Wry Neck)	2	0	2
Tourette Syndrome (TS)	2	1	3
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	0	2	2
Tracheomalacia	0	1	1
Transient Global Amnesia (TGA)	0	2	2
Traumatic Brain Injury (TBI)	1	1	2
Treacher Collins syndrome (TCS)	0	0	0
Trichotillomania (TTM)	2	1	3
Trigger Finger (Stenosing Tenosynovitis)	3	0	3
Trisomy 13 (Patau Syndrome)	0	0	0
Trisomy 18 (Edwards Syndrome)	0	0	0
Trisomy X (XXX)	0	0	0
Tuberculosis	3	1	4
Ulcerative Colitis (UC)	24	6	30
Undifferentiated Connective Tissue Disease (UCTD)	0	0	0
Urea Cycle Disorder (UCD)	0	0	0
Urethral Prolapse	1	1	2
Urinary Tract Infection (UTI)	7	8	15
Urticaria (Hives)	17	3	20
Usher Syndrome	2	1	3
Uterine Cancer	7	1	8
Uterine Fibroids	10	2	12
Uterine Leiomyosarcoma	0	0	0
Uterine Polyps	2	0	2
Uveitis	2	0	2
VACTERL Syndrome	0	0	0
Vaginismus	1	0	1
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	17	9	26
Vasculitis	4	1	5
Velopharyngeal Insufficiency (VPI)	1	1	2
Vertebral Artery Dissection (VAD)	0	0	0
Vertigo	25	11	36
VEXAS Syndrome	0	0	0
Vision Impairment	104	56	160
Vitamin B12 Deficiency	6	2	8
Vitamin D Deficiency	14	3	17
Vitiligo	5	2	7
Vocal Cord Dysfunction (VCD)	3	0	3
Von Hippel-Lindau Syndrome	0	0	0
Von Willebrand Disease (VWD)	4	1	5
Vulvar Cancer	0	0	0
Vulvodynia	2	0	2
Waldenstrom s Macroglobulinemia(WM	0	0	0
Wegener's Granulomatosis with Polyangiitis (GPA)	1	0	1
Wheelchair	16	40	56
Williams Syndrome (WS)	0	0	0
Wilson's Disease (hepatolenticular degeneration)	1	0	1
Wolf-Hirschhorn Syndrome (WHS)	0	0	0
Wolff-Parkinson-White (WPW) Syndrome	1	4	5
X-Linked Hypophosphatemia (XLH)	0	0	0
Zoon vulvitis	0	0	0


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	12	1	13
Acne	57	9	66
Acoustic Neuroma (Vestibula Schwannoma)	9	0	9
Acromegaly	5	0	5
Adams-Oliver Syndrome (AOS)	0	0	0
Addiction	35	20	55
Addison's Disease (Adrenal insufficiency)	51	10	61
Adenomyosis	71	4	75
Adhesive Capsulitis (Frozen Shoulder)	13	6	19
Adrenal Cortical Carcinoma (ACC)	0	0	0
Agenesis of the Corpus Callosum (ACC)	0	2	2
Aicardi Syndrome	0	2	2
Alagille Syndrome (AS)	0	1	1
Albinism	0	1	1
Alice in Wonderland Syndrome (AWS)	0	0	0
Alkaptonuria	1	0	1
Allergies	273	68	341
Alopecia	29	7	36
Alpha 1 Antitrypsin Deficiency (A1AD)	5	3	8
Alpha-Mannosidosis	1	0	1
Alternating Hemiplegia of Childhood (AHC)	1	1	2
Alzheimer's Disease (AD)	8	224	232
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	9	3	12
Amputation	23	18	41
Amyloidosis	6	4	10
Amyotrophic Lateral Sclerosis (ALS)	1	4	5
Anal Cancer	3	0	3
Anemia	185	32	217
Aneurysm	9	7	16
Anhidrosis (Hypohydrosis)	1	0	1
Ankylosing Spondylitis (AS)	108	25	133
Anosmia (loss of smell)	4	1	5
Anoxic Brain Injury	2	0	2
Antiphospholipid Syndrome (APS)	26	6	32
Antisynthetase Syndrome	1	0	1
Anxiety	1925	315	2240
Aortic Disease	31	13	44
Aphantasia	5	0	5
Aphasia	6	8	14
Aplastic Anemia (AA)	2	2	4
Appendix Cancer	1	1	2
Apraxia	1	2	3
Arachnoid Cyst	5	0	5
Arachnoiditis	5	0	5
Arteriovenous Malformation (AVM)	4	1	5
Arthrogryposis Multiplex Congenita (AMC)	7	4	11
Aspirin-like defect (ALD)	1	0	1
Asthma	1215	260	1475
Ataxia	19	11	30
Atrial Fibrillation (AFIB)	68	23	91
Atrophic Vaginitis	2	0	2
Attention Deficit Hyperactivity Disorder (ADHD	1911	213	2124
Atypical Hemolytic Uremic Syndrome (aHUS)	3	0	3
Auditory Processing Disorder (APD)	13	7	20
Autism Spectrum Disorder (ASD)	648	454	1102
Autoimmune	1061	247	1308
Autoimmune Encephalitis (AE)	2	1	3
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	18	3	21
Bardet Biedl Syndrome (BBS)	0	0	0
Barrett's Esophagus	31	6	37
Barth Syndrome (BTHS)	0	0	0
Bartonella	2	0	2
Batten Disease	0	0	0
Beckwith-Wiedemann Syndrome (BWS)	0	1	1
Behcet's Disease (BD)	19	1	20
Bell's Palsy	4	2	6
Benign Prostatic Hyperplasia (BPH	20	5	25
Beta Thalassemia (Cooley s Anemia)	4	1	5
Bile Acid Malabsorption (BAD)	41	7	48
Bile Duct Cancer (Cholangiocarcinoma)	3	1	4
Bipolar	191	58	249
Bladder Cancer	27	8	35
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	53	26	79
Blood Clot	33	9	42
Blood Clotting Disorder	15	3	18
Blount's Disease	0	0	0
Bone Cancer	8	8	16
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	2	1	3
Borderline Personality Disorder (BPD)	303	48	351
Brain Aneurysm	16	5	21
Brain Cancer	5	9	14
Brain Damage	11	14	25
Brain Tumor	33	16	49
BRCA Mutation	6	0	6
Breast Cancer (BC)	130	32	162
Breast Cancer in Men	5	1	6
Breast Implant Illness	0	0	0
Bronchiectasis	46	11	57
Bronchitis	9	4	13
Bronchopulmonary Dysplasia (BPD)	0	1	1
Bulging Disc	61	5	66
Bursitis	31	11	42
Calcinosis	1	0	1
Calciphylaxis	0	0	0
Campomelic Dysplasia	0	0	0
Cancer	360	149	509
Candidiasis (Yeast Infection)	8	0	8
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	5	2	7
Cardiofaciocutaneous Syndrome (CFC syndrome)	1	1	2
Carnitine Deficiency	0	0	0
Caroli Disease	1	0	1
Carpal Tunnel Syndrome (CTS)	67	13	80
Castleman Disease (CD)	0	1	1
Catheter	25	1	26
Cauda Equina Syndrome	22	4	26
Celiac Disease (CCD)	89	14	103
Cellulitis	14	8	22
Central Pain Syndrome (CPS)	2	0	2
Cerebellar Atrophy	0	1	1
Cerebral Amyloid Angiopathy	0	0	0
Cerebral Cavernous Malformations (CCMs)	3	0	3
Cerebral Palsy (CP)	35	54	89
Cervical Cancer	12	4	16
Cervical Dystonia	2	1	3
Charge Syndrome	0	2	2
Chiari Malformation (CM)	29	7	36
Chilblains (Pernio)	3	0	3
Chronic cough	3	0	3
Chronic Fatigue Syndrome (CFS	603	62	665
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	13	3	16
Chronic Intestinal Pseudo-obstruction (CIPO)	7	3	10
Chronic obstructive pulmonary disease (COPD)	364	200	564
Chronic Pain	542	97	639
Chronic Venous Insufficiency (CVI)	1	1	2
Cleft	1	1	2
Clostridium difficile (C Diff)	2	0	2
Clubfoot	5	0	5
Cluster Headache	44	7	51
Coffin-Lowry Syndrome (CLS)	0	2	2
Cognitive Impairment (CI)	4	5	9
Colon Polyps	2	1	3
Colonic Inertia	3	0	3
Color Blind	2	2	4
Colorectal (Colon) Cancer	30	17	47
Complex Regional Pain Syndrome (CRPS	54	5	59
Congenital Adrenal Hyperplasia (CAH)	6	3	9
Congenital Central Hypoventilation Syndrome (CCHS)	1	0	1
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	2	0	2
Congenital Sucrase-Isomaltase Deficiency (CSID)	0	0	0
Constipation	36	16	52
Conversion Disorder (CD)	2	1	3
Coronavirus (COVID-19)	105	13	118
Cortical Dysplasia	1	1	2
Costochondritis	41	7	48
Cowden Syndrome (CS)	9	0	9
Craniocervical Instability (CCI)	5	0	5
Craniosynostosis	0	3	3
Crohn's Disease (CD)	233	22	255
Cushing's Syndrome (Hypercortisolism)	15	3	18
Cyclic Vomiting Syndrome (CVS)	23	6	29
Cystic Fibrosis (CF)	13	12	25
Cystic Hygroma	0	0	0
Cystinosis	2	2	4
Cytomegalovirus (CMV)	0	0	0
Dandy Walker Syndrome (DWS)	1	1	2
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	1	0	1
Deep Vein Thrombosis (DVT)	27	10	37
Degenerative Disc Disease (DDD)	165	33	198
Deletion Duplication Syndrome	1	12	13
Delta-Storage Pool Deficiency	1	0	1
Depression	2013	340	2353
Dercum's Disease (adiposis dolorosa)	4	0	4
Dermatomyositis (DM)	6	4	10
Desmoid Tumor	2	0	2
Developmental Delay (DD)	11	58	69
Diabetes (DM)	1023	445	1468
Disabled	19	11	30
Disruptive Mood Dysregulation Disorder (DMDD)	1	0	1
Dissociative Identity Disorder (DID	18	10	28
Diverticulitis	126	31	157
Down Syndrome (DS)	0	17	17
Dry Mouth	4	0	4
Duodenitis	0	0	0
Dupuytren's Contracture	9	2	11
Dwarfism	7	2	9
Dysarthria (Slurred Speech)	2	1	3
Dysautonomia	294	19	313
Dyskeratosis Congenita	2	0	2
Dyslexia	153	21	174
Dysmenorrhea (Painful Menstruation)	39	3	42
Dysphagia (Difficulty Swallowing)	18	11	29
Dystonia	17	11	28
Ear Cancer	0	1	1
Eating Disorder	129	23	152
Eczema (Atopic Dermatitis)	250	38	288
Edema	3	2	5
Ehlers-Danlos Syndrome (EDS)	426	52	478
Elephantiasis (Lymphatic Filariasis)	1	0	1
Empty Sella Syndrome (ESS)	3	0	3
Encephalitis	3	1	4
Encephalocele	0	0	0
Endometrial Cancer	13	5	18
Endometriosis	353	31	384
Enlarged Spleen (Splenomegaly)	6	1	7
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	1	0	1
Eosinophilic Esophagitis (EOE)	16	1	17
Eosinophilic Gasteroenteritis (EG)	4	1	5
Epicondylitis (Tennis Elbow)	5	1	6
Epidermolysis Bullosa (EB)	6	1	7
Epilepsy	261	248	509
Epithelial Basement Membrane Dystrophy	0	1	1
Epstein Barr Syndrome (EBV)	3	0	3
Erb's Palsy	0	0	0
Erectile Dysfunction (ED)	19	4	23
Erythema Nodosum	1	1	2
Erythromelalgia	17	4	21
Esophageal Atresia (EA)	2	0	2
Esophageal Cancer	2	2	4
Esophageal Varices	0	1	1
Essential Thrombocythemia	9	3	12
Essential Tremor	18	2	20
Ewing's Sarcoma	0	0	0
Exocrine Pancreatic Insufficiency (EPI)	13	3	16
Eye Cancer	1	1	2
Fabry disease	2	1	3
Factor V Leiden	0	0	0
Failure to Thrive (FTT)	1	1	2
Familial Adenomatous Polyposis (FAP)	1	0	1
Familial Chylomicronemia Syndrome (FCS)	3	0	3
Familial Hypercholesterolemia (FH)	18	2	20
Familial Mediterranean Fever (FMF)	3	1	4
Fatty Oxidation Disorder (FAOD)	0	2	2
Feeding Tube	22	9	31
Fetal Alcohol Syndrome (FAS)	1	6	7
Fibrocystic Breasts	8	2	10
Fibrodysplasia Ossificans Progressiva (FOP)	1	3	4
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	6	0	6
Fibromyalgia (FM)	1294	214	1508
Fibrosing Mediastinitis	0	0	0
Fibrous Dysplasia	7	1	8
Fistula	9	5	14
Foot Drop	9	1	10
FOXG1 Syndrome	0	0	0
Fragile X Syndrome (FXS)	0	4	4
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	0	0	0
Friedreich's Ataxia (FA)	0	0	0
Functional Neurological Disorder (FND)	147	17	164
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	0	0	0
Galactosemia	0	0	0
Gall Stones	50	5	55
Ganglioneuroblastoma	1	2	3
Gastric Bypass	10	2	12
Gastric Dysmotility	29	5	34
Gastritis	39	9	48
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	247	60	307
Gastrointestinal Stromal Tumor (GIST)	1	1	2
Gastroparesis (GP)	93	11	104
Gastroschisis	4	2	6
Gaucher Disease (GD)	2	2	4
Gender Dysphoria	12	1	13
Giant Cell Arteritis (GCA)	7	0	7
Glucose Transporter Deficiency (GLUT1DS)	0	0	0
Gluten Intolerance	18	0	18
Glycogen Storage Disease (GSD)	0	2	2
Goiter	4	2	6
Goldenhar Syndrome	2	0	2
Gout	39	12	51
Graft Versus Host Disease (GVHD)	1	1	2
Granular Cell Tumors	1	0	1
Granuloma Annulare (GA)	1	0	1
Grave's Disease (GD)	51	6	57
Guillain-Barre Syndrome (GBS)	15	3	18
Hansen's Disease (Leprosy)	0	0	0
Hashimoto's Disease (HT)	89	10	99
Head and Neck Cancer	8	5	13
Headache	80	16	96
Hearing Aid	73	20	93
Hearing Loss	186	72	258
Heart Disease	448	258	706
HELLP Syndrome	1	0	1
Hemangioma	3	0	3
Hemihyperplasia	1	0	1
Hemochromatosis (Iron Overload)	26	5	31
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	17	7	24
Hemorrhoids	10	1	11
Hepatitis	25	7	32
Hereditary alpha-tryptasemia (H?T)	2	0	2
Hereditary Angioedema (HAE)	18	3	21
Hereditary hemorrhagic telangiectasia (HHT)	2	1	3
Hereditary Spastic Paraparesis (HSP)	9	0	9
Hereditary Spastic Paraplegia (HSP)	2	1	3
Hernia	153	35	188
Herpes (HSV)	24	0	24
Hidradenitis Suppurativa (HS)	136	16	152
High Blood Pressure (Hypertension	702	233	935
High Cholesterol (Hyperlipidemia)	283	96	379
Hip Dysplasia	21	7	28
Hip Replacement	46	13	59
Hirschsprung's Disease (HD	4	4	8
Hirsutism	6	1	7
HIV	27	8	35
Hodgkins Lymphoma	13	4	17
Holoprosencephaly (HPE)	0	0	0
Homocystinuria (HCU)	0	0	0
Horner Syndrome	3	1	4
Human Growth Hormone Deficiency (GHD)	16	10	26
Human Papillomavirus (Human Papillomavirus (HPV)	6	0	6
Huntington's Disease (HD)	9	10	19
Hydrocephalus	10	18	28
Hyper-IgA Syndrome	0	1	1
Hyperaldosteronism	2	0	2
Hyperemesis Gravidarum (HG	1	0	1
Hypereosinophilic Syndrome (HES)	0	0	0
Hyperhidrosis	24	5	29
Hyperkalemia	2	2	4
Hypermobility Syndrome	324	56	380
Hyperoxaluria	0	0	0
Hyperparathyroidism	28	8	36
Hypersomnia	7	1	8
Hyperthyroidism	58	15	73
Hypocalcemia	4	1	5
Hypoglycemia (Low Blood Sugar)	28	4	32
Hypogonadism (Low Testosterone)	0	0	0
Hypohidrotic Ectodermal Dysplasia (HED)	0	0	0
Hypokalemia	4	1	5
Hypokalemic Periodic Paralysis	1	1	2
Hyponatremia	1	0	1
Hypoparathyroidism	19	4	23
Hypophosphatasia (HPP)	1	0	1
Hypoplasia of the Corpus Callosum	0	0	0
Hypothyroidism	516	86	602
Hypotonia	0	6	6
Hypoxic Ischemic Encephalopathy (HIE)	0	4	4
Hysterectomy	26	0	26
Ichthyosis	0	0	0
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	1	0	1
Immune Thrombocytopenic Purpura (ITP)	15	2	17
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	1	0	1
Incontinence	75	34	109
Incontinentia Pigmenti (IP)	0	0	0
Infertility	14	2	16
Insomnia	114	15	129
Intellectual Disability	4	19	23
Intermittent Explosive Disorder (IED)	1	0	1
Interstitial Cystitis (IC)	35	2	37
Interstitial Lung Disease (ILD)	16	2	18
Intracranial Hemorrhage (Brain Bleeds)	7	7	14
Intracranial Hypertension (IH	43	4	47
intracranial Pressure (ICP)	5	0	5
Iritis	3	1	4
Irritable Bowel Syndrome (IBS)	618	105	723
Ischemic Colitis	1	0	1
Jansen's Metaphyseal Chondrodysplasia	1	0	1
Juvenile Arthritis (JA)	17	4	21
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	0	0	0
Kawasaki Disease	0	0	0
Keratosis Pilaris (follicular keratosis)	5	1	6
Kidney Disease	183	77	260
Klinefelter Syndrome (XXY Syndrome)	2	3	5
Klippel-Feil Syndrome (KFS)	4	2	6
Klippel-Trenaunay Syndrome (KTS)	0	0	0
Knee Replacement	39	6	45
Lactose Intolerance	22	2	24
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	0	0	0
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	3	0	3
Larsen syndrome	0	0	0
Laryngeal Cancer	1	2	3
Laryngomalacia	0	0	0
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	0	1	1
Learning Disability	35	96	131
Legg-Calve-Perthes Disease (LCPD)	1	0	1
Leiomyosarcoma	2	0	2
LEOPARD Syndrome	0	0	0
Leukemia	29	15	44
Leukocytosis	0	0	0
Leukodystrophy	3	4	7
Leukopenia	1	0	1
Lichen Planus	14	1	15
Lichen Sclerosus (LS)	34	3	37
Lipedema	18	2	20
Lipodystrophy	1	0	1
Liposarcoma	3	1	4
Lissencephaly	0	0	0
Livedo Reticularis (LR)	0	0	0
Liver Cancer	6	13	19
Liver Disease (not hepatitis)	131	40	171
Loeys Dietz Syndrome	5	0	5
Loin Pain Hematuria Syndrome (LPHS)	2	0	2
Loss of Mobility	54	36	90
Low Blood Pressure (Hypotension)	87	15	102
Low Testosterone	6	3	9
Lung Cancer	35	26	61
Lung Disease	65	24	89
Lupus	175	21	196
Lyme Disease	18	0	18
Lymphatic Malformation (LM)	0	0	0
Lymphedema	50	16	66
Lymphocytic Colitis	4	0	4
Lymphoma	7	3	10
Lymphoproliferative Disease (LPD)	0	1	1
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	6	0	6
Macular Degeneration	22	22	44
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	4	0	4
Malabsorption	6	2	8
Malignant Hyperthermia (MH)	1	0	1
Maple Syrup Urine Disease (MSUD)	0	0	0
Marfan Syndrome (MFS)	3	1	4
Mastocytosis (Mast Cell Activating Disease	71	2	73
May Thurner Syndrome	2	0	2
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	0	0	0
McCune-Albright Syndrome (MAS)	0	0	0
Median arcuate ligament syndrome (MALS)	0	0	0
Memory Loss	13	30	43
Meniere's Disease (MD)	41	9	50
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	83	12	95
Menorrhagia (Heavy Menstrual Bleeding	27	3	30
Mental Illness	154	96	250
Mesothelioma	0	0	0
Metabolic Syndrome	5	2	7
Metatarsalgia	1	0	1
Methicillin-Resistant Staphylococcus Aureus (MRSA)	1	0	1
Microcephaly	1	11	12
Microscopic Colitis	5	4	9
Microtia	2	0	2
Migraine	668	96	764
Misophonia	5	1	6
Mitochondrial Disease	5	5	10
Mixed Connective Tissue Disease (MCTD)	21	0	21
Moebius Syndrome	2	0	2
Monoclonal gammopathy of undetermined significance (MGUS)	13	1	14
Mood Disorder	24	3	27
Morgellons Disease (MD)	1	0	1
Moyamoya Disease	4	1	5
MTHFR	1	1	2
Mucopolysaccharidoses (MPS)	1	1	2
Multiple Endocrine Neoplasia (MEN)	0	0	0
Multiple Myeloma (MM)	19	13	32
Multiple Sclerosis (MS)	679	65	744
Multiple System Atrophy (MSA)	0	4	4
Muscle Spasms	17	2	19
Muscle Tension Dysphonia (MTD)	1	0	1
Muscular Dystrophy (MD)	39	21	60
Myasthenia Gravis (MG)	33	4	37
Mycobacterium Avium Complex (MAC)	0	0	0
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	4	2	6
Myelodysplastic syndrome (MDS)	1	1	2
Myelofibrosis	3	2	5
Myeloproliferative Neoplasms	1	0	1
Myopathy	4	1	5
Myositis	2	0	2
Narcolepsy	42	6	48
Nasal Polyps	7	2	9
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	1	1	2
Neck Surgery	3	0	3
Netherton Syndrome (NS)	0	0	0
Neuralgia	68	10	78
Neuroblastoma	0	0	0
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	10	1	11
Neurofibromatosis (NF)	20	5	25
Neurogenic Bladder	17	4	21
Neurogenic Bowel	5	3	8
Neuromyelitis optica (NMO)	7	4	11
Neuropathy	195	38	233
Neurotrophic Keratitis	0	0	0
Neutropenia	8	2	10
Niemann-Pick Disease	0	2	2
Non-Hodgkin's Lymphoma (NHL)	24	11	35
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	15	3	18
Nonspecific Interstitial Pneumonia (NSIP)	0	0	0
Nontuberculous Mycobacterial (NTM)	1	1	2
Noonan Syndrome (NS)	0	2	2
Obesity	112	32	144
Obsessive Compulsive Disorder (OCD)	206	40	246
Oppositional Defiant Disorder (ODD)	5	13	18
Oral Cancer	1	2	3
Organ Transplant	41	5	46
Organic Acidemia (OA)	0	1	1
Osteoarthritis (OA)	1001	276	1277
Osteogenesis Imperfecta (OI)	6	0	6
Osteomyelitis (OM)	5	4	9
Osteopenia	66	10	76
Osteoporosis	169	41	210
Ostomy	13	2	15
Other	259	71	330
Ovarian Cancer	16	8	24
Ovarian Cyst	23	3	26
Overactive Bladder (OAB)	54	8	62
Paget's	0	0	0
Palmoplantar Pustulosis	2	0	2
Pancreatic Cancer	8	7	15
Pancreatitis	30	9	39
Paraganglioma	1	0	1
Paralysis	24	19	43
Paraneoplastic Syndrome	2	1	3
Parkinson's Disease (PD)	23	58	81
Paroxysmal Nocturnal Hemoglobinuria (PNH)	5	1	6
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	3	2	5
Pelvic Congestion Syndrome (PCS)	6	1	7
Pelvic Floor Dysfunction	15	0	15
Pelvic Inflammatory Disease (PID)	4	0	4
Pemphigus / Pemphigoid	7	1	8
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	7	2	9
Periodontitis (Gum Disease)	10	1	11
Perivascular Epithelioid Cell Tumour (PEComas)	0	0	0
Periventricular Leukomalacia (PVL)	0	2	2
Persistent Genital Arousal Disorder	0	0	0
Personality Disorder	32	8	40
Peyronie's Disease (Penile Fibrosis)	0	0	0
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	1	3	4
Pheochromocytoma (PCC)	2	0	2
Pierre Robin Sequence (PRS)	0	0	0
Pituitary Tumor	17	2	19
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	49	7	56
Pneumonia	17	1	18
Poland Syndrome	2	1	3
Polio	3	4	7
Polychondritis	0	0	0
Polycystic Ovarian Syndrome (PCOS)	309	30	339
Polycythemia Vera (PV)	6	0	6
Polymicrogyria (PMG)	1	3	4
Polymyalgia Rheumatica (PMR)	33	6	39
Polymyositis (PM)	0	0	0
Pompe Disease	8	2	10
Popliteal Artery Entrapment Syndrome (PAES)	0	0	0
Porphyria	2	0	2
Post-Polio Syndrome (PPS)	5	4	9
Posttraumatic Stress Disorder (PTSD)	574	106	680
Pre-exposure Prophylaxis (PrEP)	3	0	3
Precocious Puberty	0	2	2
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	8	1	9
Premenstrual Dysphoric Disorder (PMDD)	71	2	73
Primary Ciliary Dyskinesia (PCD)	0	0	0
Primary Hyperoxaluria (PH)	1	0	1
Primary Immunodeficiency (PIDD)	13	4	17
Primary Peritoneal	0	0	0
Progressive Multifocal Leukoencephalopathy (PML)	0	1	1
Progressive Supranuclear Palsy (PSP)	0	3	3
Prolactinoma	4	0	4
Prostate Cancer	16	16	32
Protein Deficiency	4	0	4
Proteinuria (Protein in Urine)	2	0	2
Prurigo Nodularis (PN)	8	0	8
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	223	43	266
Psoriatic Arthritis (PsA)	114	10	124
Ptosis (Drooping eye	0	1	1
Pulmonary Arterial Hypertension (PAH)	19	8	27
Pulmonary Embolism (PE)	32	4	36
Pulmonary Fibrosis (PF)	22	4	26
Pyloric Stenosis (Gastric Outlet Obstruction)	2	1	3
Pyoderma Gangrenosum (PG)	4	1	5
Pyruvate Kinase Deficiency (PKD)	0	1	1
Raynaud's Syndrome	179	30	209
Rectal Cancer (CRC)	2	1	3
Rectocele	8	2	10
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	15	5	20
Respiratory Disease	1481	437	1918
Respiratory Syncytial Virus (RSV) Infection	0	0	0
Restless Leg Syndrome (RLS)	70	14	84
Retroperitoneal Fibrosis	0	0	0
Rheumatoid Arthritis (RA)	472	149	621
Rickets (Osteomalacia)	2	1	3
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	18	1	19
Rubella- German Measles	0	1	1
Sacroiliac Joint Disease (SI)	8	3	11
Sarcoidosis	33	7	40
Sarcoma	9	0	9
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	16	4	20
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	0	0	0
Schizophrenia	41	49	90
Sciatica	122	26	148
Scleroderma	22	4	26
Sclerosing Peritonitis (SP)	0	0	0
Scoliosis	129	25	154
Secondary Adrenal insufficiency	24	0	24
Secondary Immune Deficiency (SID)	1	0	1
Sensory Processing Disorder (SPD)	30	47	77
Sepsis	16	4	20
Sexually Transmitted Disease (STD)	2	0	2
Shaken Baby Syndrome (SBS)	0	0	0
Shingles (Herpes Zoster)	8	4	12
Short Bowel Syndrome (SBS	12	1	13
Shoulder Replacement	0	0	0
Sickle Cell Disease (SCD)	22	13	35
Sickle Cell Trait (SCT)	8	1	9
Sinusitis	39	9	48
Sjogren's Syndrome (SjS	80	5	85
Skin Cancer	29	11	40
Sleep Apnea (OSA)	167	42	209
Sleep Disorder	52	18	70
Small for Gestational Age SGA)	1	1	2
Small Intestinal Bacterial Overgrowth (SIBO)	8	1	9
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	0	0
Spasmodic Dysphonia	0	0	0
Spastic Diplegia	2	0	2
Spasticity	3	1	4
Speech Impairment	2	13	15
Spherocytosis	6	0	6
Sphincter of Oddi Dysfunction	10	2	12
Spina Bifida (SB)	21	15	36
Spinal Cancer	0	1	1
Spinal Cord	214	59	273
Spinal Muscular Atrophy (SMA)	16	10	26
Sprengel Deformity	1	0	1
Stickler Syndrome	2	0	2
Stiff Person Syndrome (SPS)	4	2	6
Stomach (Gastric) Cancer	4	7	11
Stomach Ulcer	20	6	26
Stroke	127	123	250
Subcortical Band Heterotopia	0	1	1
Subglottic Stenosis (SGS)	2	1	3
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	4	0	4
Syncope	20	3	23
Synesthesia	3	0	3
Syringomyelia	9	1	10
Tardive Dyskinesia (TD)	2	1	3
Tarlov Cysts	5	1	6
Tay Sachs (TSD)	0	2	2
Temporomandibular joint (TMJ)	75	5	80
Tendonitis	29	4	33
Tenosynovial Giant Cell Tumor (TGCT)	1	0	1
Testicular Cancer	8	4	12
Thalassemia	6	0	6
Thoracic Outlet Syndrome (TOS)	7	1	8
Throat Cancer	1	3	4
Thrombocytopenia (TCP)	10	3	13
Thrombotic Thrombocytopenic Purpura (TTP)	3	0	3
Thyroid Cancer	18	2	20
Thyroid Eye Disease (TED)	17	1	18
Thyroid Nodule	5	1	6
Thyroidectomy	8	0	8
Tics	7	4	11
Tongue Cancer	0	0	0
Tooth Agenesis (Anodontia)	0	1	1
Torticollis (Wry Neck)	4	0	4
Tourette Syndrome (TS)	13	9	22
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	3	2	5
Tracheomalacia	1	2	3
Transient Global Amnesia (TGA)	1	0	1
Traumatic Brain Injury (TBI)	18	13	31
Treacher Collins syndrome (TCS)	1	0	1
Trichotillomania (TTM)	12	0	12
Trigger Finger (Stenosing Tenosynovitis)	8	2	10
Trisomy 13 (Patau Syndrome)	0	0	0
Trisomy 18 (Edwards Syndrome)	0	0	0
Trisomy X (XXX)	1	0	1
Tuberculosis	5	1	6
Ulcerative Colitis (UC)	188	24	212
Undifferentiated Connective Tissue Disease (UCTD)	23	0	23
Urea Cycle Disorder (UCD)	0	0	0
Urethral Prolapse	0	1	1
Urinary Tract Infection (UTI)	33	7	40
Urticaria (Hives)	66	8	74
Usher Syndrome	0	0	0
Uterine Cancer	4	0	4
Uterine Fibroids	56	3	59
Uterine Leiomyosarcoma	1	0	1
Uterine Polyps	5	0	5
Uveitis	18	4	22
VACTERL Syndrome	0	0	0
Vaginismus	11	0	11
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	14	5	19
Vasculitis	28	6	34
Velopharyngeal Insufficiency (VPI)	0	0	0
Vertebral Artery Dissection (VAD)	2	0	2
Vertigo	56	15	71
VEXAS Syndrome	0	0	0
Vision Impairment	201	89	290
Vitamin B12 Deficiency	85	14	99
Vitamin D Deficiency	52	7	59
Vitiligo	19	2	21
Vocal Cord Dysfunction (VCD)	8	0	8
Von Hippel-Lindau Syndrome	0	0	0
Von Willebrand Disease (VWD)	8	2	10
Vulvar Cancer	6	2	8
Vulvodynia	4	0	4
Waldenstrom s Macroglobulinemia(WM	2	0	2
Wegener's Granulomatosis with Polyangiitis (GPA)	4	0	4
Wheelchair	336	156	492
Williams Syndrome (WS)	1	1	2
Wilson's Disease (hepatolenticular degeneration)	3	0	3
Wolf-Hirschhorn Syndrome (WHS)	0	0	0
Wolff-Parkinson-White (WPW) Syndrome	4	2	6
X-Linked Hypophosphatemia (XLH)	3	0	3
Zoon vulvitis	0	0	0

Australia


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	1	0	1
Acne	10	0	10
Acoustic Neuroma (Vestibula Schwannoma)	0	0	0
Acromegaly	0	0	0
Adams-Oliver Syndrome (AOS)	0	0	0
Addiction	6	2	8
Addison's Disease (Adrenal insufficiency)	6	0	6
Adenomyosis	40	0	40
Adhesive Capsulitis (Frozen Shoulder)	0	0	0
Adrenal Cortical Carcinoma (ACC)	0	0	0
Agenesis of the Corpus Callosum (ACC)	0	0	0
Aicardi Syndrome	0	0	0
Alagille Syndrome (AS)	0	0	0
Albinism	0	1	1
Alice in Wonderland Syndrome (AWS)	0	0	0
Alkaptonuria	0	0	0
Allergies	41	3	44
Alopecia	8	1	9
Alpha 1 Antitrypsin Deficiency (A1AD)	0	0	0
Alpha-Mannosidosis	0	0	0
Alternating Hemiplegia of Childhood (AHC)	0	0	0
Alzheimer's Disease (AD)	0	4	4
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	0	0	0
Amputation	1	2	3
Amyloidosis	3	1	4
Amyotrophic Lateral Sclerosis (ALS)	0	1	1
Anal Cancer	2	1	3
Anemia	31	2	33
Aneurysm	3	0	3
Anhidrosis (Hypohydrosis)	0	0	0
Ankylosing Spondylitis (AS)	14	0	14
Anosmia (loss of smell)	0	0	0
Anoxic Brain Injury	1	0	1
Antiphospholipid Syndrome (APS)	2	0	2
Antisynthetase Syndrome	0	0	0
Anxiety	442	22	464
Aortic Disease	2	1	3
Aphantasia	0	0	0
Aphasia	0	0	0
Aplastic Anemia (AA)	0	0	0
Appendix Cancer	0	0	0
Apraxia	0	1	1
Arachnoid Cyst	1	1	2
Arachnoiditis	1	0	1
Arteriovenous Malformation (AVM)	1	0	1
Arthrogryposis Multiplex Congenita (AMC)	0	0	0
Aspirin-like defect (ALD)	0	0	0
Asthma	116	15	131
Ataxia	5	0	5
Atrial Fibrillation (AFIB)	3	1	4
Atrophic Vaginitis	0	0	0
Attention Deficit Hyperactivity Disorder (ADHD	578	32	610
Atypical Hemolytic Uremic Syndrome (aHUS)	2	0	2
Auditory Processing Disorder (APD)	6	0	6
Autism Spectrum Disorder (ASD)	189	40	229
Autoimmune	98	2	100
Autoimmune Encephalitis (AE)	0	0	0
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	1	0	1
Bardet Biedl Syndrome (BBS)	0	1	1
Barrett's Esophagus	2	0	2
Barth Syndrome (BTHS)	0	0	0
Bartonella	0	0	0
Batten Disease	0	0	0
Beckwith-Wiedemann Syndrome (BWS)	1	0	1
Behcet's Disease (BD)	2	0	2
Bell's Palsy	2	0	2
Benign Prostatic Hyperplasia (BPH	2	0	2
Beta Thalassemia (Cooley s Anemia)	0	0	0
Bile Acid Malabsorption (BAD)	0	0	0
Bile Duct Cancer (Cholangiocarcinoma)	0	0	0
Bipolar	45	1	46
Bladder Cancer	1	0	1
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	3	4	7
Blood Clot	3	1	4
Blood Clotting Disorder	5	0	5
Blount's Disease	0	0	0
Bone Cancer	0	0	0
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	0	0	0
Borderline Personality Disorder (BPD)	50	0	50
Brain Aneurysm	2	0	2
Brain Cancer	0	4	4
Brain Damage	1	3	4
Brain Tumor	2	2	4
BRCA Mutation	1	0	1
Breast Cancer (BC)	22	1	23
Breast Cancer in Men	1	0	1
Breast Implant Illness	0	0	0
Bronchiectasis	3	0	3
Bronchitis	2	0	2
Bronchopulmonary Dysplasia (BPD)	0	0	0
Bulging Disc	9	0	9
Bursitis	11	0	11
Calcinosis	0	0	0
Calciphylaxis	0	0	0
Campomelic Dysplasia	0	0	0
Cancer	46	15	61
Candidiasis (Yeast Infection)	1	0	1
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	0	0	0
Cardiofaciocutaneous Syndrome (CFC syndrome)	1	0	1
Carnitine Deficiency	0	0	0
Caroli Disease	0	0	0
Carpal Tunnel Syndrome (CTS)	6	0	6
Castleman Disease (CD)	0	0	0
Catheter	4	0	4
Cauda Equina Syndrome	0	0	0
Celiac Disease (CCD)	26	1	27
Cellulitis	2	0	2
Central Pain Syndrome (CPS)	1	0	1
Cerebellar Atrophy	0	0	0
Cerebral Amyloid Angiopathy	0	0	0
Cerebral Cavernous Malformations (CCMs)	0	0	0
Cerebral Palsy (CP)	3	4	7
Cervical Cancer	2	0	2
Cervical Dystonia	1	0	1
Charge Syndrome	0	0	0
Chiari Malformation (CM)	9	1	10
Chilblains (Pernio)	0	0	0
Chronic cough	2	0	2
Chronic Fatigue Syndrome (CFS	102	7	109
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	6	1	7
Chronic Intestinal Pseudo-obstruction (CIPO)	2	1	3
Chronic obstructive pulmonary disease (COPD)	3	2	5
Chronic Pain	98	4	102
Chronic Venous Insufficiency (CVI)	1	0	1
Cleft	1	1	2
Clostridium difficile (C Diff)	0	0	0
Clubfoot	1	0	1
Cluster Headache	3	0	3
Coffin-Lowry Syndrome (CLS)	0	0	0
Cognitive Impairment (CI)	0	0	0
Colon Polyps	4	0	4
Colonic Inertia	2	0	2
Color Blind	1	0	1
Colorectal (Colon) Cancer	2	0	2
Complex Regional Pain Syndrome (CRPS	21	0	21
Congenital Adrenal Hyperplasia (CAH)	0	1	1
Congenital Central Hypoventilation Syndrome (CCHS)	0	0	0
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	0	0	0
Congenital Sucrase-Isomaltase Deficiency (CSID)	1	0	1
Constipation	8	0	8
Conversion Disorder (CD)	0	0	0
Coronavirus (COVID-19)	13	2	15
Cortical Dysplasia	1	0	1
Costochondritis	3	0	3
Cowden Syndrome (CS)	0	0	0
Craniocervical Instability (CCI)	6	0	6
Craniosynostosis	0	0	0
Crohn's Disease (CD)	26	0	26
Cushing's Syndrome (Hypercortisolism)	8	0	8
Cyclic Vomiting Syndrome (CVS)	7	2	9
Cystic Fibrosis (CF)	7	1	8
Cystic Hygroma	0	0	0
Cystinosis	0	0	0
Cytomegalovirus (CMV)	0	0	0
Dandy Walker Syndrome (DWS)	0	0	0
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	0	0	0
Deep Vein Thrombosis (DVT)	1	0	1
Degenerative Disc Disease (DDD)	9	1	10
Deletion Duplication Syndrome	0	2	2
Delta-Storage Pool Deficiency	0	0	0
Depression	369	15	384
Dercum's Disease (adiposis dolorosa)	0	0	0
Dermatomyositis (DM)	0	0	0
Desmoid Tumor	1	0	1
Developmental Delay (DD)	2	8	10
Diabetes (DM)	47	12	59
Disabled	1	1	2
Disruptive Mood Dysregulation Disorder (DMDD)	0	0	0
Dissociative Identity Disorder (DID	4	0	4
Diverticulitis	6	0	6
Down Syndrome (DS)	0	2	2
Dry Mouth	0	0	0
Duodenitis	1	0	1
Dupuytren's Contracture	0	0	0
Dwarfism	2	1	3
Dysarthria (Slurred Speech)	0	0	0
Dysautonomia	167	6	173
Dyskeratosis Congenita	0	0	0
Dyslexia	14	0	14
Dysmenorrhea (Painful Menstruation)	7	0	7
Dysphagia (Difficulty Swallowing)	3	2	5
Dystonia	5	2	7
Ear Cancer	0	0	0
Eating Disorder	43	0	43
Eczema (Atopic Dermatitis)	46	1	47
Edema	1	0	1
Ehlers-Danlos Syndrome (EDS)	123	5	128
Elephantiasis (Lymphatic Filariasis)	0	0	0
Empty Sella Syndrome (ESS)	1	0	1
Encephalitis	0	0	0
Encephalocele	0	0	0
Endometrial Cancer	1	0	1
Endometriosis	121	1	122
Enlarged Spleen (Splenomegaly)	1	0	1
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	0	0	0
Eosinophilic Esophagitis (EOE)	3	5	8
Eosinophilic Gasteroenteritis (EG)	0	0	0
Epicondylitis (Tennis Elbow)	1	0	1
Epidermolysis Bullosa (EB)	3	1	4
Epilepsy	20	12	32
Epithelial Basement Membrane Dystrophy	0	0	0
Epstein Barr Syndrome (EBV)	3	0	3
Erb's Palsy	1	0	1
Erectile Dysfunction (ED)	1	0	1
Erythema Nodosum	0	0	0
Erythromelalgia	0	0	0
Esophageal Atresia (EA)	0	0	0
Esophageal Cancer	0	0	0
Esophageal Varices	0	0	0
Essential Thrombocythemia	0	0	0
Essential Tremor	3	0	3
Ewing's Sarcoma	1	0	1
Exocrine Pancreatic Insufficiency (EPI)	4	0	4
Eye Cancer	0	0	0
Fabry disease	1	0	1
Factor V Leiden	0	0	0
Failure to Thrive (FTT)	0	2	2
Familial Adenomatous Polyposis (FAP)	1	1	2
Familial Chylomicronemia Syndrome (FCS)	1	0	1
Familial Hypercholesterolemia (FH)	1	0	1
Familial Mediterranean Fever (FMF)	0	0	0
Fatty Oxidation Disorder (FAOD)	0	0	0
Feeding Tube	7	7	14
Fetal Alcohol Syndrome (FAS)	1	0	1
Fibrocystic Breasts	4	1	5
Fibrodysplasia Ossificans Progressiva (FOP)	0	0	0
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	1	0	1
Fibromyalgia (FM)	127	7	134
Fibrosing Mediastinitis	0	0	0
Fibrous Dysplasia	0	0	0
Fistula	0	0	0
Foot Drop	0	0	0
FOXG1 Syndrome	0	0	0
Fragile X Syndrome (FXS)	0	0	0
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	0	0	0
Friedreich's Ataxia (FA)	1	0	1
Functional Neurological Disorder (FND)	25	2	27
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	0	0	0
Galactosemia	0	0	0
Gall Stones	4	0	4
Ganglioneuroblastoma	1	0	1
Gastric Bypass	1	0	1
Gastric Dysmotility	8	1	9
Gastritis	8	0	8
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	59	6	65
Gastrointestinal Stromal Tumor (GIST)	2	1	3
Gastroparesis (GP)	48	2	50
Gastroschisis	1	0	1
Gaucher Disease (GD)	0	0	0
Gender Dysphoria	6	1	7
Giant Cell Arteritis (GCA)	0	0	0
Glucose Transporter Deficiency (GLUT1DS)	0	0	0
Gluten Intolerance	13	0	13
Glycogen Storage Disease (GSD)	0	0	0
Goiter	1	0	1
Goldenhar Syndrome	0	0	0
Gout	3	3	6
Graft Versus Host Disease (GVHD)	1	0	1
Granular Cell Tumors	0	0	0
Granuloma Annulare (GA)	0	0	0
Grave's Disease (GD)	9	0	9
Guillain-Barre Syndrome (GBS)	3	1	4
Hansen's Disease (Leprosy)	0	0	0
Hashimoto's Disease (HT)	33	1	34
Head and Neck Cancer	0	0	0
Headache	9	0	9
Hearing Aid	5	2	7
Hearing Loss	11	4	15
Heart Disease	43	5	48
HELLP Syndrome	0	0	0
Hemangioma	1	0	1
Hemihyperplasia	0	0	0
Hemochromatosis (Iron Overload)	3	0	3
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	5	3	8
Hemorrhoids	3	0	3
Hepatitis	5	1	6
Hereditary alpha-tryptasemia (H?T)	1	0	1
Hereditary Angioedema (HAE)	2	0	2
Hereditary hemorrhagic telangiectasia (HHT)	1	0	1
Hereditary Spastic Paraparesis (HSP)	2	0	2
Hereditary Spastic Paraplegia (HSP)	2	0	2
Hernia	3	0	3
Herpes (HSV)	8	0	8
Hidradenitis Suppurativa (HS)	31	1	32
High Blood Pressure (Hypertension	28	9	37
High Cholesterol (Hyperlipidemia)	9	4	13
Hip Dysplasia	8	1	9
Hip Replacement	1	0	1
Hirschsprung's Disease (HD	0	1	1
Hirsutism	1	0	1
HIV	1	0	1
Hodgkins Lymphoma	1	1	2
Holoprosencephaly (HPE)	0	0	0
Homocystinuria (HCU)	0	0	0
Horner Syndrome	0	0	0
Human Growth Hormone Deficiency (GHD)	0	1	1
Human Papillomavirus (Human Papillomavirus (HPV)	5	0	5
Huntington's Disease (HD)	0	0	0
Hydrocephalus	4	1	5
Hyper-IgA Syndrome	0	0	0
Hyperaldosteronism	0	0	0
Hyperemesis Gravidarum (HG	1	0	1
Hypereosinophilic Syndrome (HES)	0	0	0
Hyperhidrosis	4	0	4
Hyperkalemia	0	0	0
Hypermobility Syndrome	62	2	64
Hyperoxaluria	0	0	0
Hyperparathyroidism	0	1	1
Hypersomnia	6	0	6
Hyperthyroidism	4	0	4
Hypocalcemia	0	0	0
Hypoglycemia (Low Blood Sugar)	13	1	14
Hypogonadism (Low Testosterone)	0	0	0
Hypohidrotic Ectodermal Dysplasia (HED)	0	0	0
Hypokalemia	1	0	1
Hypokalemic Periodic Paralysis	0	0	0
Hyponatremia	0	0	0
Hypoparathyroidism	1	1	2
Hypophosphatasia (HPP)	1	1	2
Hypoplasia of the Corpus Callosum	0	0	0
Hypothyroidism	30	2	32
Hypotonia	1	3	4
Hypoxic Ischemic Encephalopathy (HIE)	0	0	0
Hysterectomy	3	0	3
Ichthyosis	0	0	0
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	1	0	1
Immune Thrombocytopenic Purpura (ITP)	4	0	4
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	0	0	0
Incontinence	5	1	6
Incontinentia Pigmenti (IP)	0	0	0
Infertility	2	0	2
Insomnia	27	0	27
Intellectual Disability	0	9	9
Intermittent Explosive Disorder (IED)	1	0	1
Interstitial Cystitis (IC)	8	0	8
Interstitial Lung Disease (ILD)	2	0	2
Intracranial Hemorrhage (Brain Bleeds)	1	1	2
Intracranial Hypertension (IH	7	0	7
intracranial Pressure (ICP)	1	0	1
Iritis	0	0	0
Irritable Bowel Syndrome (IBS)	81	3	84
Ischemic Colitis	0	0	0
Jansen's Metaphyseal Chondrodysplasia	0	0	0
Juvenile Arthritis (JA)	7	0	7
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	0	0	0
Kawasaki Disease	0	0	0
Keratosis Pilaris (follicular keratosis)	1	0	1
Kidney Disease	23	3	26
Klinefelter Syndrome (XXY Syndrome)	0	0	0
Klippel-Feil Syndrome (KFS)	0	1	1
Klippel-Trenaunay Syndrome (KTS)	0	0	0
Knee Replacement	1	0	1
Lactose Intolerance	5	0	5
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	0	0	0
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	0	0	0
Larsen syndrome	0	0	0
Laryngeal Cancer	0	0	0
Laryngomalacia	0	2	2
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	1	0	1
Learning Disability	5	3	8
Legg-Calve-Perthes Disease (LCPD)	1	0	1
Leiomyosarcoma	0	0	0
LEOPARD Syndrome	0	0	0
Leukemia	1	4	5
Leukocytosis	0	0	0
Leukodystrophy	0	0	0
Leukopenia	0	0	0
Lichen Planus	1	0	1
Lichen Sclerosus (LS)	1	0	1
Lipedema	5	0	5
Lipodystrophy	0	0	0
Liposarcoma	0	0	0
Lissencephaly	0	0	0
Livedo Reticularis (LR)	1	0	1
Liver Cancer	0	2	2
Liver Disease (not hepatitis)	7	1	8
Loeys Dietz Syndrome	1	0	1
Loin Pain Hematuria Syndrome (LPHS)	0	0	0
Loss of Mobility	3	2	5
Low Blood Pressure (Hypotension)	35	1	36
Low Testosterone	1	0	1
Lung Cancer	4	2	6
Lung Disease	6	0	6
Lupus	19	3	22
Lyme Disease	1	0	1
Lymphatic Malformation (LM)	0	0	0
Lymphedema	6	1	7
Lymphocytic Colitis	0	0	0
Lymphoma	3	1	4
Lymphoproliferative Disease (LPD)	0	0	0
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	1	0	1
Macular Degeneration	4	1	5
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	1	0	1
Malabsorption	3	0	3
Malignant Hyperthermia (MH)	0	0	0
Maple Syrup Urine Disease (MSUD)	0	0	0
Marfan Syndrome (MFS)	2	1	3
Mastocytosis (Mast Cell Activating Disease	35	4	39
May Thurner Syndrome	4	0	4
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	1	0	1
McCune-Albright Syndrome (MAS)	0	0	0
Median arcuate ligament syndrome (MALS)	11	1	12
Memory Loss	1	0	1
Meniere's Disease (MD)	1	0	1
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	5	0	5
Menorrhagia (Heavy Menstrual Bleeding	8	0	8
Mental Illness	19	2	21
Mesothelioma	0	0	0
Metabolic Syndrome	0	0	0
Metatarsalgia	0	0	0
Methicillin-Resistant Staphylococcus Aureus (MRSA)	1	0	1
Microcephaly	0	1	1
Microscopic Colitis	2	0	2
Microtia	0	0	0
Migraine	107	4	111
Misophonia	4	0	4
Mitochondrial Disease	1	0	1
Mixed Connective Tissue Disease (MCTD)	2	0	2
Moebius Syndrome	0	0	0
Monoclonal gammopathy of undetermined significance (MGUS)	0	0	0
Mood Disorder	5	0	5
Morgellons Disease (MD)	1	0	1
Moyamoya Disease	0	0	0
MTHFR	6	0	6
Mucopolysaccharidoses (MPS)	0	0	0
Multiple Endocrine Neoplasia (MEN)	0	0	0
Multiple Myeloma (MM)	1	0	1
Multiple Sclerosis (MS)	23	1	24
Multiple System Atrophy (MSA)	0	0	0
Muscle Spasms	1	0	1
Muscle Tension Dysphonia (MTD)	0	0	0
Muscular Dystrophy (MD)	4	4	8
Myasthenia Gravis (MG)	12	0	12
Mycobacterium Avium Complex (MAC)	0	0	0
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	4	1	5
Myelodysplastic syndrome (MDS)	1	0	1
Myelofibrosis	1	0	1
Myeloproliferative Neoplasms	1	0	1
Myopathy	2	1	3
Myositis	1	0	1
Narcolepsy	16	0	16
Nasal Polyps	1	0	1
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	0	0	0
Neck Surgery	0	0	0
Netherton Syndrome (NS)	0	0	0
Neuralgia	9	1	10
Neuroblastoma	0	0	0
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	1	0	1
Neurofibromatosis (NF)	1	0	1
Neurogenic Bladder	8	1	9
Neurogenic Bowel	3	1	4
Neuromyelitis optica (NMO)	8	0	8
Neuropathy	14	2	16
Neurotrophic Keratitis	0	0	0
Neutropenia	3	0	3
Niemann-Pick Disease	0	0	0
Non-Hodgkin's Lymphoma (NHL)	4	1	5
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	4	0	4
Nonspecific Interstitial Pneumonia (NSIP)	0	0	0
Nontuberculous Mycobacterial (NTM)	1	0	1
Noonan Syndrome (NS)	1	1	2
Obesity	20	1	21
Obsessive Compulsive Disorder (OCD)	67	3	70
Oppositional Defiant Disorder (ODD)	1	2	3
Oral Cancer	0	0	0
Organ Transplant	2	0	2
Organic Acidemia (OA)	0	2	2
Osteoarthritis (OA)	43	5	48
Osteogenesis Imperfecta (OI)	2	0	2
Osteomyelitis (OM)	0	0	0
Osteopenia	8	1	9
Osteoporosis	9	1	10
Ostomy	0	0	0
Other	83	8	91
Ovarian Cancer	3	2	5
Ovarian Cyst	9	0	9
Overactive Bladder (OAB)	2	0	2
Paget's	0	0	0
Palmoplantar Pustulosis	0	0	0
Pancreatic Cancer	1	0	1
Pancreatitis	6	1	7
Paraganglioma	0	0	0
Paralysis	3	0	3
Paraneoplastic Syndrome	0	0	0
Parkinson's Disease (PD)	1	1	2
Paroxysmal Nocturnal Hemoglobinuria (PNH)	3	0	3
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	1	1	2
Pelvic Congestion Syndrome (PCS)	5	0	5
Pelvic Floor Dysfunction	8	1	9
Pelvic Inflammatory Disease (PID)	3	0	3
Pemphigus / Pemphigoid	3	0	3
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	1	0	1
Periodontitis (Gum Disease)	4	0	4
Perivascular Epithelioid Cell Tumour (PEComas)	0	1	1
Periventricular Leukomalacia (PVL)	0	0	0
Persistent Genital Arousal Disorder	0	0	0
Personality Disorder	1	0	1
Peyronie's Disease (Penile Fibrosis)	0	0	0
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	2	1	3
Pheochromocytoma (PCC)	0	0	0
Pierre Robin Sequence (PRS)	0	0	0
Pituitary Tumor	5	0	5
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	6	0	6
Pneumonia	1	0	1
Poland Syndrome	0	0	0
Polio	0	0	0
Polychondritis	0	0	0
Polycystic Ovarian Syndrome (PCOS)	95	2	97
Polycythemia Vera (PV)	0	0	0
Polymicrogyria (PMG)	0	0	0
Polymyalgia Rheumatica (PMR)	1	0	1
Polymyositis (PM)	0	0	0
Pompe Disease	0	0	0
Popliteal Artery Entrapment Syndrome (PAES)	0	0	0
Porphyria	0	0	0
Post-Polio Syndrome (PPS)	1	0	1
Posttraumatic Stress Disorder (PTSD)	168	8	176
Pre-exposure Prophylaxis (PrEP)	0	0	0
Precocious Puberty	0	0	0
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	1	0	1
Premenstrual Dysphoric Disorder (PMDD)	32	0	32
Primary Ciliary Dyskinesia (PCD)	0	0	0
Primary Hyperoxaluria (PH)	0	1	1
Primary Immunodeficiency (PIDD)	4	0	4
Primary Peritoneal	0	0	0
Progressive Multifocal Leukoencephalopathy (PML)	0	0	0
Progressive Supranuclear Palsy (PSP)	0	0	0
Prolactinoma	3	0	3
Prostate Cancer	2	0	2
Protein Deficiency	1	0	1
Proteinuria (Protein in Urine)	0	0	0
Prurigo Nodularis (PN)	0	0	0
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	36	1	37
Psoriatic Arthritis (PsA)	29	1	30
Ptosis (Drooping eye	0	0	0
Pulmonary Arterial Hypertension (PAH)	9	0	9
Pulmonary Embolism (PE)	2	0	2
Pulmonary Fibrosis (PF)	4	0	4
Pyloric Stenosis (Gastric Outlet Obstruction)	0	0	0
Pyoderma Gangrenosum (PG)	0	0	0
Pyruvate Kinase Deficiency (PKD)	0	0	0
Raynaud's Syndrome	21	1	22
Rectal Cancer (CRC)	0	1	1
Rectocele	0	0	0
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	2	0	2
Respiratory Disease	120	17	137
Respiratory Syncytial Virus (RSV) Infection	0	0	0
Restless Leg Syndrome (RLS)	8	0	8
Retroperitoneal Fibrosis	0	0	0
Rheumatoid Arthritis (RA)	43	8	51
Rickets (Osteomalacia)	0	0	0
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	9	0	9
Rubella- German Measles	0	0	0
Sacroiliac Joint Disease (SI)	4	0	4
Sarcoidosis	2	0	2
Sarcoma	0	0	0
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	1	0	1
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	0	0	0
Schizophrenia	13	3	16
Sciatica	7	0	7
Scleroderma	1	1	2
Sclerosing Peritonitis (SP)	0	0	0
Scoliosis	31	2	33
Secondary Adrenal insufficiency	3	1	4
Secondary Immune Deficiency (SID)	1	0	1
Sensory Processing Disorder (SPD)	20	3	23
Sepsis	0	0	0
Sexually Transmitted Disease (STD)	2	0	2
Shaken Baby Syndrome (SBS)	0	1	1
Shingles (Herpes Zoster)	1	0	1
Short Bowel Syndrome (SBS	2	0	2
Shoulder Replacement	0	0	0
Sickle Cell Disease (SCD)	3	2	5
Sickle Cell Trait (SCT)	0	0	0
Sinusitis	4	0	4
Sjogren's Syndrome (SjS	7	1	8
Skin Cancer	9	1	10
Sleep Apnea (OSA)	16	5	21
Sleep Disorder	12	0	12
Small for Gestational Age SGA)	0	0	0
Small Intestinal Bacterial Overgrowth (SIBO)	3	1	4
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	0	0
Spasmodic Dysphonia	0	0	0
Spastic Diplegia	0	0	0
Spasticity	0	1	1
Speech Impairment	1	3	4
Spherocytosis	1	0	1
Sphincter of Oddi Dysfunction	0	0	0
Spina Bifida (SB)	5	1	6
Spinal Cancer	0	0	0
Spinal Cord	16	1	17
Spinal Muscular Atrophy (SMA)	2	2	4
Sprengel Deformity	0	0	0
Stickler Syndrome	0	0	0
Stiff Person Syndrome (SPS)	1	0	1
Stomach (Gastric) Cancer	1	1	2
Stomach Ulcer	5	0	5
Stroke	2	0	2
Subcortical Band Heterotopia	0	0	0
Subglottic Stenosis (SGS)	3	0	3
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	6	1	7
Syncope	9	0	9
Synesthesia	1	0	1
Syringomyelia	2	0	2
Tardive Dyskinesia (TD)	1	0	1
Tarlov Cysts	1	0	1
Tay Sachs (TSD)	0	1	1
Temporomandibular joint (TMJ)	14	0	14
Tendonitis	3	0	3
Tenosynovial Giant Cell Tumor (TGCT)	0	0	0
Testicular Cancer	0	0	0
Thalassemia	3	0	3
Thoracic Outlet Syndrome (TOS)	8	0	8
Throat Cancer	0	0	0
Thrombocytopenia (TCP)	0	0	0
Thrombotic Thrombocytopenic Purpura (TTP)	0	0	0
Thyroid Cancer	4	1	5
Thyroid Eye Disease (TED)	2	0	2
Thyroid Nodule	2	0	2
Thyroidectomy	3	0	3
Tics	1	1	2
Tongue Cancer	0	0	0
Tooth Agenesis (Anodontia)	0	0	0
Torticollis (Wry Neck)	0	0	0
Tourette Syndrome (TS)	6	1	7
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	1	1	2
Tracheomalacia	0	0	0
Transient Global Amnesia (TGA)	1	0	1
Traumatic Brain Injury (TBI)	4	1	5
Treacher Collins syndrome (TCS)	0	0	0
Trichotillomania (TTM)	4	0	4
Trigger Finger (Stenosing Tenosynovitis)	0	1	1
Trisomy 13 (Patau Syndrome)	0	0	0
Trisomy 18 (Edwards Syndrome)	0	0	0
Trisomy X (XXX)	0	0	0
Tuberculosis	0	0	0
Ulcerative Colitis (UC)	14	1	15
Undifferentiated Connective Tissue Disease (UCTD)	1	0	1
Urea Cycle Disorder (UCD)	0	1	1
Urethral Prolapse	0	0	0
Urinary Tract Infection (UTI)	4	0	4
Urticaria (Hives)	21	1	22
Usher Syndrome	0	0	0
Uterine Cancer	0	1	1
Uterine Fibroids	4	0	4
Uterine Leiomyosarcoma	0	0	0
Uterine Polyps	1	0	1
Uveitis	2	0	2
VACTERL Syndrome	0	0	0
Vaginismus	5	0	5
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	3	1	4
Vasculitis	3	2	5
Velopharyngeal Insufficiency (VPI)	0	0	0
Vertebral Artery Dissection (VAD)	0	0	0
Vertigo	5	0	5
VEXAS Syndrome	0	0	0
Vision Impairment	16	3	19
Vitamin B12 Deficiency	5	0	5
Vitamin D Deficiency	6	0	6
Vitiligo	0	1	1
Vocal Cord Dysfunction (VCD)	4	0	4
Von Hippel-Lindau Syndrome	0	0	0
Von Willebrand Disease (VWD)	4	0	4
Vulvar Cancer	0	0	0
Vulvodynia	3	0	3
Waldenstrom s Macroglobulinemia(WM	0	0	0
Wegener's Granulomatosis with Polyangiitis (GPA)	0	0	0
Wheelchair	51	8	59
Williams Syndrome (WS)	0	0	0
Wilson's Disease (hepatolenticular degeneration)	0	0	0
Wolf-Hirschhorn Syndrome (WHS)	0	0	0
Wolff-Parkinson-White (WPW) Syndrome	2	0	2
X-Linked Hypophosphatemia (XLH)	0	0	0
Zoon vulvitis	0	0	0

New Zealand


Disease/Condition	Patients	Caregivers	Total
ABCD Syndrome	0	0	0
Achalasia	0	0	0
Acne	7	0	7
Acoustic Neuroma (Vestibula Schwannoma)	0	0	0
Acromegaly	0	0	0
Adams-Oliver Syndrome (AOS)	0	0	0
Addiction	1	1	2
Addison's Disease (Adrenal insufficiency)	1	0	1
Adenomyosis	4	0	4
Adhesive Capsulitis (Frozen Shoulder)	0	0	0
Adrenal Cortical Carcinoma (ACC)	0	0	0
Agenesis of the Corpus Callosum (ACC)	0	0	0
Aicardi Syndrome	0	0	0
Alagille Syndrome (AS)	0	0	0
Albinism	0	0	0
Alice in Wonderland Syndrome (AWS)	0	0	0
Alkaptonuria	0	0	0
Allergies	8	3	11
Alopecia	0	0	0
Alpha 1 Antitrypsin Deficiency (A1AD)	1	0	1
Alpha-Mannosidosis	0	0	0
Alternating Hemiplegia of Childhood (AHC)	0	0	0
Alzheimer's Disease (AD)	0	2	2
Amniotic Band Syndrome	0	0	0
Amplified Musculoskeletal Pain Syndrome	0	0	0
Amputation	2	0	2
Amyloidosis	0	0	0
Amyotrophic Lateral Sclerosis (ALS)	0	1	1
Anal Cancer	0	0	0
Anemia	2	0	2
Aneurysm	0	0	0
Anhidrosis (Hypohydrosis)	0	0	0
Ankylosing Spondylitis (AS)	2	0	2
Anosmia (loss of smell)	0	0	0
Anoxic Brain Injury	0	1	1
Antiphospholipid Syndrome (APS)	1	0	1
Antisynthetase Syndrome	0	0	0
Anxiety	88	2	90
Aortic Disease	0	0	0
Aphantasia	0	0	0
Aphasia	0	0	0
Aplastic Anemia (AA)	0	0	0
Appendix Cancer	0	0	0
Apraxia	0	0	0
Arachnoid Cyst	0	0	0
Arachnoiditis	0	0	0
Arteriovenous Malformation (AVM)	0	0	0
Arthrogryposis Multiplex Congenita (AMC)	0	0	0
Aspirin-like defect (ALD)	0	0	0
Asthma	33	1	34
Ataxia	3	0	3
Atrial Fibrillation (AFIB)	0	0	0
Atrophic Vaginitis	0	0	0
Attention Deficit Hyperactivity Disorder (ADHD	136	6	142
Atypical Hemolytic Uremic Syndrome (aHUS)	0	0	0
Auditory Processing Disorder (APD)	2	0	2
Autism Spectrum Disorder (ASD)	26	3	29
Autoimmune	26	0	26
Autoimmune Encephalitis (AE)	0	0	0
Autosomal Dominant Hypocalcemia Type 1 (ADH1)	0	0	0
Avascular Necrosis (AVN	1	0	1
Bardet Biedl Syndrome (BBS)	0	0	0
Barrett's Esophagus	0	0	0
Barth Syndrome (BTHS)	0	0	0
Bartonella	0	0	0
Batten Disease	0	0	0
Beckwith-Wiedemann Syndrome (BWS)	0	0	0
Behcet's Disease (BD)	0	0	0
Bell's Palsy	0	0	0
Benign Prostatic Hyperplasia (BPH	0	0	0
Beta Thalassemia (Cooley s Anemia)	0	0	0
Bile Acid Malabsorption (BAD)	0	0	0
Bile Duct Cancer (Cholangiocarcinoma)	0	0	0
Bipolar	4	0	4
Bladder Cancer	0	0	0
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)	0	0	0
Blood Cancer and or Cancer	1	0	1
Blood Clot	1	0	1
Blood Clotting Disorder	0	0	0
Blount's Disease	0	0	0
Bone Cancer	0	0	0
Bone Marrow Transplant (BMT) (Stem Cell Transplant)	0	0	0
Borderline Personality Disorder (BPD)	4	0	4
Brain Aneurysm	1	1	2
Brain Cancer	1	0	1
Brain Damage	1	0	1
Brain Tumor	1	0	1
BRCA Mutation	0	0	0
Breast Cancer (BC)	3	0	3
Breast Cancer in Men	0	0	0
Breast Implant Illness	0	0	0
Bronchiectasis	1	0	1
Bronchitis	0	0	0
Bronchopulmonary Dysplasia (BPD)	0	0	0
Bulging Disc	3	0	3
Bursitis	1	1	2
Calcinosis	0	0	0
Calciphylaxis	0	0	0
Campomelic Dysplasia	0	0	0
Cancer	11	1	12
Candidiasis (Yeast Infection)	0	0	0
Capillary Lymphatic Venous Malformations (CLVMs)	0	0	0
Carcinoma	1	0	1
Cardiofaciocutaneous Syndrome (CFC syndrome)	0	0	0
Carnitine Deficiency	0	0	0
Caroli Disease	0	0	0
Carpal Tunnel Syndrome (CTS)	0	0	0
Castleman Disease (CD)	0	0	0
Catheter	0	0	0
Cauda Equina Syndrome	0	0	0
Celiac Disease (CCD)	7	0	7
Cellulitis	0	0	0
Central Pain Syndrome (CPS)	2	0	2
Cerebellar Atrophy	0	0	0
Cerebral Amyloid Angiopathy	0	0	0
Cerebral Cavernous Malformations (CCMs)	0	0	0
Cerebral Palsy (CP)	0	0	0
Cervical Cancer	0	0	0
Cervical Dystonia	0	0	0
Charge Syndrome	0	0	0
Chiari Malformation (CM)	0	1	1
Chilblains (Pernio)	0	0	0
Chronic cough	0	0	0
Chronic Fatigue Syndrome (CFS	38	0	38
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)	0	0	0
Chronic Intestinal Pseudo-obstruction (CIPO)	0	0	0
Chronic obstructive pulmonary disease (COPD)	3	1	4
Chronic Pain	27	0	27
Chronic Venous Insufficiency (CVI)	0	0	0
Cleft	0	0	0
Clostridium difficile (C Diff)	0	0	0
Clubfoot	0	0	0
Cluster Headache	1	0	1
Coffin-Lowry Syndrome (CLS)	0	0	0
Cognitive Impairment (CI)	1	0	1
Colon Polyps	1	0	1
Colonic Inertia	0	0	0
Color Blind	0	0	0
Colorectal (Colon) Cancer	0	0	0
Complex Regional Pain Syndrome (CRPS	6	0	6
Congenital Adrenal Hyperplasia (CAH)	0	1	1
Congenital Central Hypoventilation Syndrome (CCHS)	0	0	0
Congenital Fibrinogen Deficiency (CFD)	0	0	0
Congenital Myopathy	0	0	0
Congenital Sucrase-Isomaltase Deficiency (CSID)	0	0	0
Constipation	2	1	3
Conversion Disorder (CD)	0	0	0
Coronavirus (COVID-19)	6	0	6
Cortical Dysplasia	0	0	0
Costochondritis	4	0	4
Cowden Syndrome (CS)	0	0	0
Craniocervical Instability (CCI)	0	0	0
Craniosynostosis	0	0	0
Crohn's Disease (CD)	7	0	7
Cushing's Syndrome (Hypercortisolism)	2	0	2
Cyclic Vomiting Syndrome (CVS)	1	0	1
Cystic Fibrosis (CF)	0	1	1
Cystic Hygroma	0	0	0
Cystinosis	0	0	0
Cytomegalovirus (CMV)	0	0	0
Dandy Walker Syndrome (DWS)	0	0	0
Danon Disease	0	0	0
Darier Disease (DD Keratosis Follicularis)	0	0	0
Deep Vein Thrombosis (DVT)	1	0	1
Degenerative Disc Disease (DDD)	2	0	2
Deletion Duplication Syndrome	0	0	0
Delta-Storage Pool Deficiency	0	0	0
Depression	84	2	86
Dercum's Disease (adiposis dolorosa)	0	0	0
Dermatomyositis (DM)	0	0	0
Desmoid Tumor	0	0	0
Developmental Delay (DD)	0	3	3
Diabetes (DM)	15	1	16
Disabled	1	0	1
Disruptive Mood Dysregulation Disorder (DMDD)	0	0	0
Dissociative Identity Disorder (DID	0	0	0
Diverticulitis	0	0	0
Down Syndrome (DS)	0	0	0
Dry Mouth	0	0	0
Duodenitis	0	0	0
Dupuytren's Contracture	0	0	0
Dwarfism	0	0	0
Dysarthria (Slurred Speech)	0	0	0
Dysautonomia	37	0	37
Dyskeratosis Congenita	0	0	0
Dyslexia	7	0	7
Dysmenorrhea (Painful Menstruation)	2	0	2
Dysphagia (Difficulty Swallowing)	1	2	3
Dystonia	0	0	0
Ear Cancer	0	0	0
Eating Disorder	6	1	7
Eczema (Atopic Dermatitis)	6	1	7
Edema	0	0	0
Ehlers-Danlos Syndrome (EDS)	30	1	31
Elephantiasis (Lymphatic Filariasis)	0	0	0
Empty Sella Syndrome (ESS)	0	0	0
Encephalitis	0	0	0
Encephalocele	0	0	0
Endometrial Cancer	0	0	0
Endometriosis	30	0	30
Enlarged Spleen (Splenomegaly)	0	0	0
Enteric Hyperoxaluria	0	0	0
Eosinophilic Colitis (EC)	0	0	0
Eosinophilic Esophagitis (EOE)	1	1	2
Eosinophilic Gasteroenteritis (EG)	0	0	0
Epicondylitis (Tennis Elbow)	0	0	0
Epidermolysis Bullosa (EB)	0	0	0
Epilepsy	3	4	7
Epithelial Basement Membrane Dystrophy	0	0	0
Epstein Barr Syndrome (EBV)	1	0	1
Erb's Palsy	0	0	0
Erectile Dysfunction (ED)	0	0	0
Erythema Nodosum	0	0	0
Erythromelalgia	0	0	0
Esophageal Atresia (EA)	0	0	0
Esophageal Cancer	0	0	0
Esophageal Varices	0	0	0
Essential Thrombocythemia	1	0	1
Essential Tremor	0	0	0
Ewing's Sarcoma	0	0	0
Exocrine Pancreatic Insufficiency (EPI)	1	0	1
Eye Cancer	0	0	0
Fabry disease	0	0	0
Factor V Leiden	0	0	0
Failure to Thrive (FTT)	0	0	0
Familial Adenomatous Polyposis (FAP)	0	0	0
Familial Chylomicronemia Syndrome (FCS)	0	0	0
Familial Hypercholesterolemia (FH)	0	0	0
Familial Mediterranean Fever (FMF)	0	0	0
Fatty Oxidation Disorder (FAOD)	0	0	0
Feeding Tube	4	1	5
Fetal Alcohol Syndrome (FAS)	0	0	0
Fibrocystic Breasts	0	0	0
Fibrodysplasia Ossificans Progressiva (FOP)	0	0	0
Fibromatosis	0	0	0
Fibromuscular Dysplasia (FMD)	0	0	0
Fibromyalgia (FM)	33	1	34
Fibrosing Mediastinitis	0	0	0
Fibrous Dysplasia	0	0	0
Fistula	0	0	0
Foot Drop	0	0	0
FOXG1 Syndrome	0	2	2
Fragile X Syndrome (FXS)	0	0	0
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)	0	0	0
Friedreich's Ataxia (FA)	0	0	0
Functional Neurological Disorder (FND)	7	0	7
G6PD deficiency (glucose-6-phosphate-dehydrogenase deficiency)	0	0	0
Galactosemia	0	0	0
Gall Stones	1	1	2
Ganglioneuroblastoma	0	0	0
Gastric Bypass	1	0	1
Gastric Dysmotility	2	0	2
Gastritis	0	1	1
Gastroesophageal Junction Cancer (GOJ) (Oesophago Gastric Junctional)	0	0	0
Gastroesophageal Reflux Disease (GERD)	12	2	14
Gastrointestinal Stromal Tumor (GIST)	0	0	0
Gastroparesis (GP)	10	1	11
Gastroschisis	0	0	0
Gaucher Disease (GD)	0	0	0
Gender Dysphoria	1	0	1
Giant Cell Arteritis (GCA)	0	0	0
Glucose Transporter Deficiency (GLUT1DS)	0	0	0
Gluten Intolerance	0	0	0
Glycogen Storage Disease (GSD)	0	0	0
Goiter	1	0	1
Goldenhar Syndrome	0	0	0
Gout	1	0	1
Graft Versus Host Disease (GVHD)	0	0	0
Granular Cell Tumors	0	0	0
Granuloma Annulare (GA)	0	0	0
Grave's Disease (GD)	6	0	6
Guillain-Barre Syndrome (GBS)	0	0	0
Hansen's Disease (Leprosy)	0	0	0
Hashimoto's Disease (HT)	7	0	7
Head and Neck Cancer	1	0	1
Headache	4	1	5
Hearing Aid	2	0	2
Hearing Loss	3	1	4
Heart Disease	9	2	11
HELLP Syndrome	0	0	0
Hemangioma	0	0	0
Hemihyperplasia	0	0	0
Hemochromatosis (Iron Overload)	1	0	1
Hemolytic Disease of the Fetus and Newborn (HDFN)	0	0	0
Hemophilia	0	0	0
Hemorrhoids	1	0	1
Hepatitis	0	0	0
Hereditary alpha-tryptasemia (H?T)	0	0	0
Hereditary Angioedema (HAE)	0	0	0
Hereditary hemorrhagic telangiectasia (HHT)	0	0	0
Hereditary Spastic Paraparesis (HSP)	1	0	1
Hereditary Spastic Paraplegia (HSP)	0	0	0
Hernia	1	0	1
Herpes (HSV)	4	0	4
Hidradenitis Suppurativa (HS)	6	0	6
High Blood Pressure (Hypertension	8	2	10
High Cholesterol (Hyperlipidemia)	7	1	8
Hip Dysplasia	2	0	2
Hip Replacement	1	0	1
Hirschsprung's Disease (HD	0	0	0
Hirsutism	1	0	1
HIV	0	0	0
Hodgkins Lymphoma	0	0	0
Holoprosencephaly (HPE)	0	0	0
Homocystinuria (HCU)	0	0	0
Horner Syndrome	0	0	0
Human Growth Hormone Deficiency (GHD)	1	0	1
Human Papillomavirus (Human Papillomavirus (HPV)	1	0	1
Huntington's Disease (HD)	0	0	0
Hydrocephalus	0	1	1
Hyper-IgA Syndrome	0	0	0
Hyperaldosteronism	0	0	0
Hyperemesis Gravidarum (HG	0	0	0
Hypereosinophilic Syndrome (HES)	1	0	1
Hyperhidrosis	0	0	0
Hyperkalemia	0	0	0
Hypermobility Syndrome	11	1	12
Hyperoxaluria	0	0	0
Hyperparathyroidism	0	0	0
Hypersomnia	0	0	0
Hyperthyroidism	1	0	1
Hypocalcemia	0	0	0
Hypoglycemia (Low Blood Sugar)	0	0	0
Hypogonadism (Low Testosterone)	0	0	0
Hypohidrotic Ectodermal Dysplasia (HED)	0	0	0
Hypokalemia	0	0	0
Hypokalemic Periodic Paralysis	0	0	0
Hyponatremia	0	0	0
Hypoparathyroidism	3	0	3
Hypophosphatasia (HPP)	0	0	0
Hypoplasia of the Corpus Callosum	0	1	1
Hypothyroidism	5	1	6
Hypotonia	0	0	0
Hypoxic Ischemic Encephalopathy (HIE)	0	0	0
Hysterectomy	0	1	1
Ichthyosis	0	0	0
Idiopathic Short Stature	0	0	0
IgG 4 related disease (IgG4-RD)	0	0	0
Immune Thrombocytopenic Purpura (ITP)	1	0	1
Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS)	0	0	0
Incontinence	0	0	0
Incontinentia Pigmenti (IP)	0	0	0
Infertility	0	0	0
Insomnia	14	0	14
Intellectual Disability	0	1	1
Intermittent Explosive Disorder (IED)	0	0	0
Interstitial Cystitis (IC)	1	0	1
Interstitial Lung Disease (ILD)	0	0	0
Intracranial Hemorrhage (Brain Bleeds)	0	0	0
Intracranial Hypertension (IH	2	0	2
intracranial Pressure (ICP)	0	0	0
Iritis	0	0	0
Irritable Bowel Syndrome (IBS)	28	2	30
Ischemic Colitis	0	0	0
Jansen's Metaphyseal Chondrodysplasia	0	0	0
Juvenile Arthritis (JA)	0	0	0
Kabuki Syndrome	0	0	0
Kaposi Sarcoma (KS)	0	0	0
Kawasaki Disease	0	0	0
Keratosis Pilaris (follicular keratosis)	0	0	0
Kidney Disease	3	1	4
Klinefelter Syndrome (XXY Syndrome)	0	0	0
Klippel-Feil Syndrome (KFS)	0	0	0
Klippel-Trenaunay Syndrome (KTS)	0	0	0
Knee Replacement	0	0	0
Lactose Intolerance	1	0	1
Lamb-Shaffer Syndrome	0	0	0
Lambert-Eaton myasthenic syndrome (LEMS)	0	0	0
Landau Kleffner Syndrome (LKS)	0	0	0
Langerhans Cell Histiocytosis (LCH)	0	0	0
Larsen syndrome	0	0	0
Laryngeal Cancer	0	0	0
Laryngomalacia	0	0	0
Laurence-Moon-Bardet-Biedl syndrome (LMBBS)	0	0	0
Learning Disability	1	0	1
Legg-Calve-Perthes Disease (LCPD)	0	0	0
Leiomyosarcoma	0	0	0
LEOPARD Syndrome	0	0	0
Leukemia	0	0	0
Leukocytosis	0	0	0
Leukodystrophy	0	0	0
Leukopenia	0	0	0
Lichen Planus	0	0	0
Lichen Sclerosus (LS)	0	0	0
Lipedema	2	0	2
Lipodystrophy	0	0	0
Liposarcoma	1	0	1
Lissencephaly	0	0	0
Livedo Reticularis (LR)	0	0	0
Liver Cancer	0	0	0
Liver Disease (not hepatitis)	2	1	3
Loeys Dietz Syndrome	0	0	0
Loin Pain Hematuria Syndrome (LPHS)	0	0	0
Loss of Mobility	0	0	0
Low Blood Pressure (Hypotension)	2	0	2
Low Testosterone	0	0	0
Lung Cancer	1	0	1
Lung Disease	0	0	0
Lupus	6	0	6
Lyme Disease	2	0	2
Lymphatic Malformation (LM)	0	0	0
Lymphedema	1	0	1
Lymphocytic Colitis	0	0	0
Lymphoma	0	0	0
Lymphoproliferative Disease (LPD)	0	0	0
Lynch Syndrome (Hereditary Nonpolyposis Colorectal Cancer HNPCC)	0	0	0
Macular Degeneration	0	0	0
Macular Telangiectasia (MacTel)	0	0	0
Mal de debarquement Syndrome (MdDS)	0	0	0
Malabsorption	0	0	0
Malignant Hyperthermia (MH)	0	0	0
Maple Syrup Urine Disease (MSUD)	0	0	0
Marfan Syndrome (MFS)	0	0	0
Mastocytosis (Mast Cell Activating Disease	8	1	9
May Thurner Syndrome	1	0	1
Mayer-Rokitansky-K ster-Hauser (MRKH) syndrome	0	0	0
McCune-Albright Syndrome (MAS)	0	0	0
Median arcuate ligament syndrome (MALS)	2	0	2
Memory Loss	0	2	2
Meniere's Disease (MD)	0	0	0
Menkes Disease (Kinky Hair Syndrome)	0	0	0
Menopause	4	1	5
Menorrhagia (Heavy Menstrual Bleeding	1	0	1
Mental Illness	0	0	0
Mesothelioma	0	0	0
Metabolic Syndrome	0	0	0
Metatarsalgia	0	0	0
Methicillin-Resistant Staphylococcus Aureus (MRSA)	0	0	0
Microcephaly	0	1	1
Microscopic Colitis	0	0	0
Microtia	0	0	0
Migraine	30	0	30
Misophonia	1	0	1
Mitochondrial Disease	0	0	0
Mixed Connective Tissue Disease (MCTD)	0	0	0
Moebius Syndrome	0	0	0
Monoclonal gammopathy of undetermined significance (MGUS)	0	0	0
Mood Disorder	1	0	1
Morgellons Disease (MD)	0	0	0
Moyamoya Disease	0	0	0
MTHFR	0	0	0
Mucopolysaccharidoses (MPS)	0	0	0
Multiple Endocrine Neoplasia (MEN)	0	0	0
Multiple Myeloma (MM)	0	0	0
Multiple Sclerosis (MS)	3	0	3
Multiple System Atrophy (MSA)	0	0	0
Muscle Spasms	1	1	2
Muscle Tension Dysphonia (MTD)	0	0	0
Muscular Dystrophy (MD)	0	1	1
Myasthenia Gravis (MG)	2	0	2
Mycobacterium Avium Complex (MAC)	0	0	0
Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)	0	0	0
Myelodysplastic syndrome (MDS)	0	0	0
Myelofibrosis	0	0	0
Myeloproliferative Neoplasms	0	0	0
Myopathy	0	0	0
Myositis	0	0	0
Narcolepsy	3	0	3
Nasal Polyps	0	0	0
Nasopharyngeal Carcinoma (NPC)	0	0	0
Neck Cancer	0	0	0
Neck Surgery	0	0	0
Netherton Syndrome (NS)	0	0	0
Neuralgia	3	0	3
Neuroblastoma	0	0	0
Neuroendocrine Cancer (NET) (Carcinoid Cancer)	0	0	0
Neurofibromatosis (NF)	0	0	0
Neurogenic Bladder	2	0	2
Neurogenic Bowel	0	0	0
Neuromyelitis optica (NMO)	0	0	0
Neuropathy	3	0	3
Neurotrophic Keratitis	0	0	0
Neutropenia	0	0	0
Niemann-Pick Disease	0	0	0
Non-Hodgkin's Lymphoma (NHL)	0	0	0
Non-radiographic Axial Spondyloarthritis (nrAxSpA)	0	0	0
Nonspecific Interstitial Pneumonia (NSIP)	0	0	0
Nontuberculous Mycobacterial (NTM)	0	0	0
Noonan Syndrome (NS)	0	0	0
Obesity	7	0	7
Obsessive Compulsive Disorder (OCD)	23	1	24
Oppositional Defiant Disorder (ODD)	0	0	0
Oral Cancer	0	0	0
Organ Transplant	0	1	1
Organic Acidemia (OA)	0	0	0
Osteoarthritis (OA)	7	0	7
Osteogenesis Imperfecta (OI)	2	0	2
Osteomyelitis (OM)	0	0	0
Osteopenia	0	0	0
Osteoporosis	5	1	6
Ostomy	0	0	0
Other	14	4	18
Ovarian Cancer	0	0	0
Ovarian Cyst	1	0	1
Overactive Bladder (OAB)	1	0	1
Paget's	0	0	0
Palmoplantar Pustulosis	0	0	0
Pancreatic Cancer	0	0	0
Pancreatitis	0	0	0
Paraganglioma	0	0	0
Paralysis	0	1	1
Paraneoplastic Syndrome	0	0	0
Parkinson's Disease (PD)	0	0	0
Paroxysmal Nocturnal Hemoglobinuria (PNH)	0	0	0
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS)	0	0	0
Pelvic Congestion Syndrome (PCS)	2	0	2
Pelvic Floor Dysfunction	4	0	4
Pelvic Inflammatory Disease (PID)	0	0	0
Pemphigus / Pemphigoid	0	0	0
Pendred Syndrome	0	0	0
Periodic Limb Movement Disorder (PLMD)	0	0	0
Periodontitis (Gum Disease)	1	0	1
Perivascular Epithelioid Cell Tumour (PEComas)	0	0	0
Periventricular Leukomalacia (PVL)	0	0	0
Persistent Genital Arousal Disorder	0	0	0
Personality Disorder	0	0	0
Peyronie's Disease (Penile Fibrosis)	0	0	0
Pfeiffer Syndrome	0	0	0
Phenylketonuria (PKU)	0	0	0
Pheochromocytoma (PCC)	0	0	0
Pierre Robin Sequence (PRS)	0	0	0
Pituitary Tumor	1	0	1
Plagiocephaly (Flat Head Syndrome)	0	0	0
Plantar Fasciitis (PF)	0	0	0
Pneumonia	0	0	0
Poland Syndrome	0	0	0
Polio	0	0	0
Polychondritis	1	0	1
Polycystic Ovarian Syndrome (PCOS)	11	0	11
Polycythemia Vera (PV)	0	0	0
Polymicrogyria (PMG)	0	0	0
Polymyalgia Rheumatica (PMR)	0	0	0
Polymyositis (PM)	0	0	0
Pompe Disease	1	1	2
Popliteal Artery Entrapment Syndrome (PAES)	0	0	0
Porphyria	0	0	0
Post-Polio Syndrome (PPS)	0	0	0
Posttraumatic Stress Disorder (PTSD)	39	2	41
Pre-exposure Prophylaxis (PrEP)	0	0	0
Precocious Puberty	0	0	0
Premature Ovarian Failure (POF) (Primary Ovarian Insufficiency POI)	0	0	0
Premenstrual Dysphoric Disorder (PMDD)	5	0	5
Primary Ciliary Dyskinesia (PCD)	0	0	0
Primary Hyperoxaluria (PH)	0	0	0
Primary Immunodeficiency (PIDD)	0	0	0
Primary Peritoneal	0	0	0
Progressive Multifocal Leukoencephalopathy (PML)	0	0	0
Progressive Supranuclear Palsy (PSP)	0	0	0
Prolactinoma	1	0	1
Prostate Cancer	0	0	0
Protein Deficiency	0	0	0
Proteinuria (Protein in Urine)	0	0	0
Prurigo Nodularis (PN)	0	0	0
Pseudobulbar Affect (PBA)	0	0	0
Psoriasis (PsO)	4	0	4
Psoriatic Arthritis (PsA)	2	0	2
Ptosis (Drooping eye	0	0	0
Pulmonary Arterial Hypertension (PAH)	1	0	1
Pulmonary Embolism (PE)	1	0	1
Pulmonary Fibrosis (PF)	0	0	0
Pyloric Stenosis (Gastric Outlet Obstruction)	0	0	0
Pyoderma Gangrenosum (PG)	0	0	0
Pyruvate Kinase Deficiency (PKD)	0	0	0
Raynaud's Syndrome	3	1	4
Rectal Cancer (CRC)	1	0	1
Rectocele	0	0	0
Recurrent Respiratory Papillomatosis (RRP)	0	0	0
Renal Cell Carcinoma (Kidney Cancer	0	0	0
Respiratory Disease	34	2	36
Respiratory Syncytial Virus (RSV) Infection	0	0	0
Restless Leg Syndrome (RLS)	1	0	1
Retroperitoneal Fibrosis	0	0	0
Rheumatoid Arthritis (RA)	13	0	13
Rickets (Osteomalacia)	0	0	0
Rocky Mountain Spotted Fever (RMSF)	0	0	0
Rosacea	1	0	1
Rubella- German Measles	0	0	0
Sacroiliac Joint Disease (SI)	0	0	0
Sarcoidosis	0	0	0
Sarcoma	0	0	0
Sarcopenia	0	0	0
Schamberg's Disease	0	0	0
Scheuermann's Kyphosis	1	0	1
Schinzel-Giedion Syndrome (SGS)	0	0	0
Schizencephaly	0	0	0
Schizophrenia	1	0	1
Sciatica	0	0	0
Scleroderma	0	0	0
Sclerosing Peritonitis (SP)	0	0	0
Scoliosis	6	0	6
Secondary Adrenal insufficiency	1	0	1
Secondary Immune Deficiency (SID)	1	0	1
Sensory Processing Disorder (SPD)	1	1	2
Sepsis	0	0	0
Sexually Transmitted Disease (STD)	0	0	0
Shaken Baby Syndrome (SBS)	0	0	0
Shingles (Herpes Zoster)	0	0	0
Short Bowel Syndrome (SBS	0	0	0
Shoulder Replacement	0	0	0
Sickle Cell Disease (SCD)	0	0	0
Sickle Cell Trait (SCT)	0	0	0
Sinusitis	1	0	1
Sjogren's Syndrome (SjS	2	0	2
Skin Cancer	1	0	1
Sleep Apnea (OSA)	7	0	7
Sleep Disorder	1	0	1
Small for Gestational Age SGA)	0	0	0
Small Intestinal Bacterial Overgrowth (SIBO)	0	0	0
Smith-Lemli-Opitz Syndrome (SLOS)	0	0	0
Sotos Syndrome	0	0	0
Spasmodic Dysphonia	0	0	0
Spastic Diplegia	1	0	1
Spasticity	0	0	0
Speech Impairment	0	0	0
Spherocytosis	0	0	0
Sphincter of Oddi Dysfunction	2	0	2
Spina Bifida (SB)	0	1	1
Spinal Cancer	0	0	0
Spinal Cord	0	0	0
Spinal Muscular Atrophy (SMA)	2	0	2
Sprengel Deformity	0	0	0
Stickler Syndrome	0	0	0
Stiff Person Syndrome (SPS)	0	0	0
Stomach (Gastric) Cancer	0	0	0
Stomach Ulcer	0	1	1
Stroke	0	0	0
Subcortical Band Heterotopia	0	0	0
Subglottic Stenosis (SGS)	0	0	0
Superior Mesenteric Artery Syndrome (SMA) (Wilkie's Syndrome)	2	0	2
Syncope	1	0	1
Synesthesia	0	0	0
Syringomyelia	0	0	0
Tardive Dyskinesia (TD)	0	0	0
Tarlov Cysts	1	0	1
Tay Sachs (TSD)	0	0	0
Temporomandibular joint (TMJ)	12	0	12
Tendonitis	0	0	0
Tenosynovial Giant Cell Tumor (TGCT)	0	0	0
Testicular Cancer	0	0	0
Thalassemia	1	1	2
Thoracic Outlet Syndrome (TOS)	0	0	0
Throat Cancer	0	0	0
Thrombocytopenia (TCP)	0	0	0
Thrombotic Thrombocytopenic Purpura (TTP)	0	0	0
Thyroid Cancer	0	0	0
Thyroid Eye Disease (TED)	2	0	2
Thyroid Nodule	0	0	0
Thyroidectomy	0	0	0
Tics	1	0	1
Tongue Cancer	0	0	0
Tooth Agenesis (Anodontia)	0	0	0
Torticollis (Wry Neck)	0	0	0
Tourette Syndrome (TS)	0	0	0
Townes-Brocks Syndrome	0	0	0
Toxic Synovitis	0	0	0
Tracheobronchomalacia (TBM)	0	0	0
Tracheomalacia	0	0	0
Transient Global Amnesia (TGA)	0	0	0
Traumatic Brain Injury (TBI)	2	0	2
Treacher Collins syndrome (TCS)	0	0	0
Trichotillomania (TTM)	2	0	2
Trigger Finger (Stenosing Tenosynovitis)	0	0	0
Trisomy 13 (Patau Syndrome)	0	0	0
Trisomy 18 (Edwards Syndrome)	0	0	0
Trisomy X (XXX)	0	0	0
Tuberculosis	0	0	0
Ulcerative Colitis (UC)	4	0	4
Undifferentiated Connective Tissue Disease (UCTD)	1	0	1
Urea Cycle Disorder (UCD)	0	0	0
Urethral Prolapse	0	1	1
Urinary Tract Infection (UTI)	1	0	1
Urticaria (Hives)	1	1	2
Usher Syndrome	0	0	0
Uterine Cancer	0	0	0
Uterine Fibroids	0	0	0
Uterine Leiomyosarcoma	0	0	0
Uterine Polyps	0	0	0
Uveitis	0	0	0
VACTERL Syndrome	0	0	0
Vaginismus	2	0	2
Valosin Containing Protein (VCP)	0	0	0
Varicose Veins	0	1	1
Vasculitis	1	0	1
Velopharyngeal Insufficiency (VPI)	0	0	0
Vertebral Artery Dissection (VAD)	0	0	0
Vertigo	3	0	3
VEXAS Syndrome	0	0	0
Vision Impairment	1	0	1
Vitamin B12 Deficiency	0	0	0
Vitamin D Deficiency	1	0	1
Vitiligo	2	0	2
Vocal Cord Dysfunction (VCD)	1	0	1
Von Hippel-Lindau Syndrome	0	0	0
Von Willebrand Disease (VWD)	0	0	0
Vulvar Cancer	0	0	0
Vulvodynia	1	0	1
Waldenstrom s Macroglobulinemia(WM	0	0	0
Wegener's Granulomatosis with Polyangiitis (GPA)	0	0	0
Wheelchair	8	1	9
Williams Syndrome (WS)	0	0	0
Wilson's Disease (hepatolenticular degeneration)	0	0	0
Wolf-Hirschhorn Syndrome (WHS)	0	0	0
Wolff-Parkinson-White (WPW) Syndrome	1	0	1
X-Linked Hypophosphatemia (XLH)	0	0	0
Zoon vulvitis	0	0	0

For each type of cancer, patients are identified by stage of cancer, stage of treatment, age, and geographical location.

Clients continue to tell us how impressed they are with the high quality of our respondents. This is a result of:

Source – we recruit patients personally at advocacy events and other patient events. We partner with online advocacy and support groups.
Vetting – We vet each patient and caregiver who signs up both manually (looking at the answers to questions about the condition and treatment) and technologically (does their contact information match independent sources? are IP addresses unique?). If unsure, we contact the patient directly and discuss. Amazing how fraudulent entries will simply go away.

These practices set our respondents apart from those screened across the general population (“please check all the conditions you have”). It takes more time and attention, but we feel the highest quality data is certainly worth it.

With more than 40 years in market research experience on both the client and supplier side, we are happy to give you advice on the design of your research. And since we know our panelist very well, we can advise you on the best way to work with them to get the insights you and your clients require.

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