In this free webinar happening on Dec 11, learn how addressing mental health can improve quality of life in the rare disease community. Attendees will gain insight into survey data … READ MORE
The Co-Design Revolution: Patients and the Future of Clinical Trials
The landscape of clinical trials, particularly within the area of rare diseases, is undergoing a necessary and profound evolution. No longer is the patient merely a passive subject; they are … READ MORE
Lessons Learned on MR Fraud – New Article by Wes Michael in Greenbook
Fraud in research is real and growing, but it doesn’t have to be overwhelming. With vigilance, thoughtful sourcing, and transparency, preserving the integrity of our insights can be a reality. … READ MORE
Pam Cusick Talks Caregiving on All Home Care Matters Podcast
All Home Care Matters is a podcast and YouTube show dedicated to helping provide resources to families as they face long-term care questions and issues for themselves and loved … READ MORE
RPV on the Road: Meeting Our Community at Patient Events and Conferences
At Rare Patient Voice, we love getting out from behind our screens and meeting our community in person. There’s nothing better than being in person and hearing the stories that … READ MORE
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