In their Rare Disease Day 2025 issue, Rare Revolution Magazine featured RPV’s Senior Vice President, Pam Cusick, on why including the voices of rare disease patients and family caregivers is … READ MORE
I Care for Rare Welcomes RPV’s Wes Michael to Discuss Rare Disease Day
In a special episode of the “I Care for Rare” podcast, host Sherrilynne Starkie and Sandra Markus, founder of I Care for Rare, welcome Rare Patient Voice President Wes Michael to the show in … READ MORE
Elevating Patient Voices for Rare Disease Day and Every Day
Towson, MD, 2.28.2025 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in all types of healthcare … READ MORE
RPV’s Pam Cusick Talks with Empowered Caregivers
“Empowered Caregivers” podcast host Shelly Drymon is a caregiver for her partner Steve, who was diagnosed with transverse myelitis in September 2023. The podcast is for spouses and partners who … READ MORE
Happy Valentine’s Day from RPV!
At Rare Patient Voice, we love our patients, family caregivers, clients, and colleagues! Our zebra mascot Rarity and all of us at RPV wish all of you a Happy Valentine’s … READ MORE
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