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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Pam Cusick Discusses RPV’s Mission on Run Radio Podcast

June 24, 2025 Laura Mullen

The “Run Radio Podcast” features interviews with guests who share their experiences and insights on entrepreneurship, wellness, and more. In this powerful conversation, host Trina Wilcox and Pam Cusick, SVP … READ MORE

Filed Under: Business, Interviews

Wes Michael Talks Starting RPV in Qual Recruit Podcast Interview

June 12, 2025 Laura Mullen

The Qual Recruit podcast “Insightful Connections” is about all things market research. In this thought-provoking episode, host Sebastian Murdoch-Gibson interviews Wes Michael, President and Founder of Rare Patient Voice. They … READ MORE

Filed Under: Business, Interviews

Meet Our Team: Tana Karamustafic, Project Manager

May 30, 2025 Laura Mullen

Born, raised, and residing to this day in Sarajevo, Bosnia and Herzegovina, Tana Karamustafic joined Rare Patient Voice in 2021 as a Project Manager. Tana volunteered through high school with … READ MORE

Filed Under: Business

The Importance of Patient Perspectives in Healthcare Research and Product Development

May 28, 2025 Laura Mullen

On this episode of “Ponderings from the Perch,” the Little Bird Marketing podcast, host and CEO Priscilla McKinney talks with RPV Senior Vice President Pam Cusick about the critical importance … READ MORE

Filed Under: Business, Interviews

What kinds of projects does RPV do?

May 14, 2025 Laura Mullen

Research can take many forms, from online surveys and one-on-one interviews to clinical trials. Here, Rare Patient Voice President Wes Michael discusses the many types of projects and studies for … READ MORE

Filed Under: Business

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Latest Blog Posts

  • Wes Michael Visits Skot Woldron’s Unlocked for Rare Disease Day 2026
  • Black History Month Meets Rare Disease Day
  • Rare Patient Voice is Acquired by Konovo, a Technology-First Healthcare Intelligence Company
  • Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers
  • Join Us on 2.4 for a Discussion of AI Agents & Patient-Level Data – From Confirmation of Diagnosis to Insights

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