It’s clear that the patient voice is essential to progress in research, but engaging patients for participation in clinical trials can be surprisingly challenging. This is particularly true in rare … READ MORE
Weekly Warrior: Meet Emily
“My name is Emily Parks and I was born with a rare genetic mutation that affected the development of smooth muscle. This primarily changed my GI system, leading to Chronic … READ MORE
Second Round of January 2022 Staff Changes at RPV
TOWSON, MD, January 19, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has announced another first quarter round of promotions and changes to staff, following … READ MORE
Weekly Warrior: Meet Jamie
“I am married and have two kids! A daughter that is 9 and a son that is 6. In January of 2018 I was diagnosed with Neuromylitis Optica! At the … READ MORE
Weekly Warrior: Meet Zoann
“I defended my Master’s thesis during an asthma attack while puffing on my portable nebulizer! I have cough variant asthma, which is a rare form of asthma. I also have … READ MORE
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