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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Kristopher

May 28, 2019 Wes Michael

My name is Kristopher and I’m an RPV Patient Panelist who’s overcoming Hemophilia. I really like taking the surveys because I feel like I’m making an impact. I’m able to … READ MORE

Filed Under: Meet The Patients Tagged With: Hemophilia

Keith MS

May 28, 2019 Wes Michael

My name is Keith and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis My choice today is to not be afflicted by MS but to live with MS. To … READ MORE

Filed Under: Meet The Patients Tagged With: Multiple Sclerosis

Jessica

May 28, 2019 Wes Michael

My name is Jessica and I’m an RPV Patient Panelist who’s overcoming Kugelberg Welander disease I have spinal muscular atrophy type 3, also known as Kugelberg Welander disease. I do … READ MORE

Filed Under: Meet The Patients Tagged With: Kugelberg Welander Disease

Charly Blakk

May 28, 2019 Wes Michael

My name is Charly and I’m an RPV Patient Panelist who’s overcoming Sickle Cell Anemia Hey, it’s Charly. Welcome to another episode of Rare Patient Voice TV. The reason for … READ MORE

Filed Under: Meet The Patients Tagged With: Sickle Cell Anemia

Stephan MS

May 28, 2019 Wes Michael

My name is Stephan and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis The online surveys are pretty easy and they let you be specific about your answers because … READ MORE

Filed Under: Meet The Patients Tagged With: Multiple Sclerosis

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