Towson, MD, 2.28.2025 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in all types of healthcare … READ MORE
Discussing the Importance of Rare Disease Day on Unlocked with Skot Waldron
“Unlocked with Skot Waldron” is a podcast dedicated to empowering and educating people to communicate more effectively. In this episode, Skot Waldron and Rare Patient Voice Senior Vice President … READ MORE
RPV’s Pam Cusick Talks with Empowered Caregivers
“Empowered Caregivers” podcast host Shelly Drymon is a caregiver for her partner Steve, who was diagnosed with transverse myelitis in September 2023. The podcast is for spouses and partners who … READ MORE
Meet Our Team: Rheia Beganovic, Project Manager
Based in Bosnia, Rheia Beganovic has been a Project Manager with Rare Patient Voice since November 2021. Prior to working for RPV, she worked on a passenger cruise ship for … READ MORE
Happy Valentine’s Day from RPV!
At Rare Patient Voice, we love our patients, family caregivers, clients, and colleagues! Our zebra mascot Rarity and all of us at RPV wish all of you a Happy Valentine’s … READ MORE
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