The Rare Patient Voice Golden Rule means recruiting the right patients, at the right time, for the right studies. How do we do that? Our Patient Advocacy Team is always … READ MORE
The RPV Golden Rule: Precision in Patient Recruitment
The RPV Golden Rule is simple yet powerful: Recruit the right patients, at the right time, for the right study. With a community of 180,000+ patients and family caregivers spanning 1,500+ … READ MORE
Wes Michael Talks Patient Empowerment on 1 in 20 Rare Disease Podcast
The 1 in 20 podcast host Jonathan Cappiello was diagnosed with a rare genetic disorder that affects only 20 people in the world, 3 hydroxyacyl coa synthase deficiency, which in … READ MORE
Meet Our Team: Tiffany White, Director of Business Development
A graduate of the University of Central Florida, Tiffany White joined Rare Patient Voice in 2017 as a Patient Advocate. Currently as the Director of Business Development, she works directly … READ MORE
A 2024 Rare Patient Voice Review
2024 was a big year at Rare Patient Voice! In this video, RPV President Wes Michael shares some highlights and also exciting news for 2025.
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